Skip Navigation
Skip to contents

J Korean Acad Nurs : Journal of Korean Academy of Nursing

OPEN ACCESS

Search

Page Path
HOME > Search
50 "Caregiver"
Filter
Filter
Article category
Keywords
Publication year
Authors
Research Papers
The Caring Experience of Family Caregivers for Patients of Living Donor Liver Transplantation from the Family Members
Miseon Bang, Suhye Kwon
J Korean Acad Nurs 2022;52(4):435-450.   Published online August 31, 2022
DOI: https://doi.org/10.4040/jkan.22043
AbstractAbstract PDF
Purpose
The purpose of the study was to understand the care experiences of the family of living donor liver transplantation (LDLT) patients where the donation had occurred within the family.
Methods
Participants were eight family caregivers who cared for recipients and donors of LDLT. Data were collected through individual in-depth interviews from November, 2020 to April, 2021. Data analysis was performed through a cyclical process of data collection and analysis by applying Giorgi’s phenomenological research method.
Results
The five main components extracted from the experiences of the family caregivers were: "A double-edged choice to save the family", "The harsh daily life of liver transplantation care", "The yoke of double care on both shoulders", "The power to withstand the adversity of caring", and "The recovery and growth of life pursued by trusting each other".
Conclusion
The participants tried to do their best in their daily lives, while providing reassurance and care to the LDLT patients in the family; however, they expressed some worry and hardship while doing so. The results of this study provide a deeper understanding of the caring experience of the family caregivers, which may contribute to the development of nursing interventions that will aid these caregivers in providing care to their LDLT family members. Furthermore, the development and application of an integrated management program for LDLT patients in the family is required.

Citations

Citations to this article as recorded by  
  • Challenges and support needs among family caregivers involved in solid organ transplant care process: a scoping review protocol
    Shi He, Ningbin Huang, Meiqi Lai, Wenwen Li, Siting Chen, Guolong Zhang, Danxia Huang, Guilin Peng, Ying Huang, Liang Ruan
    BMJ Open.2025; 15(3): e086771.     CrossRef
  • 2,209 View
  • 44 Download
  • 2 Web of Science
  • 1 Crossref
Close layer
Development and Effects of a Person-Centered Fall Prevention Program for Older Adults with Dementia in Long-Term Care Hospitals: For Older Adults with Dementia and Caregivers in LongTerm Care Hospitals
Jeong Ok Lim, Mee Ock Gu
J Korean Acad Nurs 2022;52(3):341-358.   Published online June 30, 2022
DOI: https://doi.org/10.4040/jkan.21230
AbstractAbstract PDF
Purpose
This study examined the effects of a person-centered fall prevention program for older adults with dementia in long-term care hospitals.
Methods
A nonequivalent control group pretest-posttest design was used. The study sample included 42 older adults with dementia (experimental group: 21, control group: 21) and 42 caregivers (experimental group: 21, control group: 21). The program comprised 48 sessions held over 12 weeks and included exercise intervention with resistance and balance, dance walking (45~60 min, three times/week), cognitive and emotional intervention (35~50 min, once per week), and person-centered fall prevention education (10 min, once per week). The program for caregivers consisted of six educational sessions (i.e., fall prevention competency enhancement and person-centered care strategy education, 80 min, once per week) for six weeks. Data were collected before participation and 12 weeks after program completion from February 18 to May 12, 2019. Data analysis was conducted using the chi-square test, t-test, and Mann―Whitney U test with SPSS/WIN 21.0.
Results
The experimental group of older adults with dementia showed significant improvement in physical and cognitive functions, and a decrease in depression, and behavioral and psychological symptoms, when compared with the control group. caregivers in the experimental group exhibited significant improvement in fall-related knowledge and person-centered care of older adults with dementia compared to the control group.
Conclusion
The study findings indicate that this program was effective as a nursing intervention for fall prevention among older adults with dementia in long-term care hospitals.

Citations

Citations to this article as recorded by  
  • Influencing factors of depressive and anxiety symptoms among caregivers of Alzheimer's disease patients: A cross-sectional study
    Chengfei Duan, Mo Zhu, Xia Li, Ling Yue
    Journal of Alzheimer’s Disease.2026; 109(3): 1264.     CrossRef
  • Factors Affecting Fall Incidents at Long-term Care Hospitals: Using Data from the Korea Patient Safety Reporting and Learning System
    Soojin Chung, Jeongim Lee
    Journal of Health Informatics and Statistics.2025; 50(1): 96.     CrossRef
  • Current Trends of Exercise Programs for Improving Cognitive Function in Older Adults
    Jae-Hyun Lee, Wooyeon Jo, Jaeho Jin, Yaxiong Zheng, Soyoon Lee, Se-Yeon Jang, Minseo Kim, Young-Jin Moon, Hye Gwang Jeong, Sang Ki Lee
    Exercise Science.2024; 33(3): 254.     CrossRef
  • Factors Influencing Dementia Care Competence among Care Staff: A Mixed-Methods Systematic Review Protocol
    Jinfeng Zhu, Jing Wang, Bo Zhang, Xi Zhang, Hui Wu
    Healthcare.2024; 12(11): 1155.     CrossRef
  • Falls in Patients of Medical Institutions in South Korea: A Literature Review
    Jongwon Choi, Woochol Joseph Choi
    Physical Therapy Korea.2023; 30(1): 1.     CrossRef
  • A Study on Emotions to Improve the Quality of Life of South Korean Senior Patients Residing in Convalescent Hospitals
    Aeju Kim, Yucheon Kim, Jongtae Rhee, Songyi Lee, Youngil Jeong, Jeongeun Lee, Youngeun Yoo, Haechan Kim, Hyeonji So, Junhyeong Park
    International Journal of Environmental Research and Public Health.2022; 19(21): 14480.     CrossRef
  • 2,866 View
  • 180 Download
  • 3 Web of Science
  • 6 Crossref
Close layer
Influence of Self-care on Burnout in Primary Family Caregiver of Person with Dementia
Jeong Hwa Kwon, Gwi-Ryung Son Hong
J Korean Acad Nurs 2021;51(2):217-231.   Published online April 30, 2021
DOI: https://doi.org/10.4040/jkan.20274
AbstractAbstract PDF
Purpose
The purpose of this study was to identify the influence of self-care on burnout experienced by primary family caregivers of persons with dementia.
Methods
The subjects of the study were 156 primary family caregivers of persons with dementia at home in Korea. Data were analyzed using descriptive statistics, independent t-test, one-way ANOVA, Pearson correlation coefficient, and hierarchical multiple regression using IBM SPSS Statistics ver. 24.0 for Windows.
Results
The mean scores for self-care and burnout were 42.35 and 61.60, respectively. Self-care, subjective health status, living with a person with dementia, and behavioral and psychological symptoms of dementia were significant factors affecting burnout in family caregivers. Self-care was identified as the strongest factor affecting burnout, explaining 13.9% of burnout with controlling factors in caregivers and care receivers.
Conclusion
To prevent burnout in primary family caregivers of persons with dementia, self-care of family caregivers should be emphasized. In nursing education, family caregivers should be recognized and approached as nursing clients who are responsible for taking care of their health. In nursing practice and research, digital self-care or self-care improvement intervention programs should be designed to help family caregivers, and further studies on self-care centered on health of family caregivers should be conducted.

Citations

Citations to this article as recorded by  
  • Development of a Tool to Measure Slow Nursing for Older Adults in Long-term Care Hospitals: A Methodological Study
    Hyeon Mi Woo
    Korean Journal of Adult Nursing.2024; 36(3): 212.     CrossRef
  • Factors influencing the care burden among family caregivers using dementia care centers for older adults with dementia in Korea: a cross-sectional descriptive study
    Ja Eun Kim, Soo Jin Lee
    Journal of Korean Biological Nursing Science.2024; 26(4): 382.     CrossRef
  • Effects of stress on burnout among infection control nurses during the COVID-19 pandemic: the mediating effects of social support and self-efficacy
    Su-jin Lee, Ju-Young Park, Seo-Hyeon Kim
    BMC Nursing.2024;[Epub]     CrossRef
  • Survey on Tele-Rehabilitation Therapy Awareness Among Primary Caregivers of Dementia Patients
    Ae-Lyeong Kwon, Hye-Jin Jang, Ki-Jeon Kim
    The Journal of Korean Physical Therapy.2024; 36(6): 190.     CrossRef
  • Time usage analysis according to occupational area and satisfaction level in family caregivers of dementia patients
    Woo-Hyuk Jang, Jong-Sik Jang, Jong-Hwi Park
    PeerJ.2023; 11: e15178.     CrossRef
  • Self-Care Experiences of Family Members of Mentally Ill Patients
    Won Hee Jun, Eun Ju Cho, Eun Joung Choi
    Journal of Korean Academy of psychiatric and Mental Health Nursing.2022; 31(4): 458.     CrossRef
  • 4,056 View
  • 157 Download
  • 2 Web of Science
  • 6 Crossref
Close layer
Original Articles
Shifting of Centricity: Qualitative Meta Synthetic Approach on Caring Experience of Family Members of Patients with Dementia
Young Mi Ryu, Mi Yu, Seieun Oh, Haeyoung Lee, Haejin Kim
J Korean Acad Nurs 2018;48(5):601-621.   Published online January 15, 2018
DOI: https://doi.org/10.4040/jkan.2018.48.5.601
AbstractAbstract PDF
Abstract Purpose

This study aimed to synthesize the caring experiences of Korean family members of patients with dementia through a qualitative meta-synthesis method.

Methods

By searching through nine Korean and English databases, we compared 37 qualitative studies on caring experiences of family members of patients with dementia. The selected studies were synthesized through meta-synthesis, proposed by Sandelowski and Barroso (2007).

Results

The meta-synthesis elicited four themes: tough life due to care for patients, changes in relationships, adaptation to caregiver's roles, and new perspectives of life through personal growth. Caregivers were shocked when a sudden diagnosis of dementia was made prior to any preparation on their part. They were tied to their patients all the time and their mind and body got exhausted. Their relationship with patients began to change and they looked at them differently. They experienced conflicts with the other non-caring family members and were alienated from them. They were also socially isolated. However, by building their own care strategies and utilizing social resources, they gradually adapted to their caregiver roles. Finally, they experienced personal growth and acquired a new perspective toward life by accepting their roles and finding meaning in their lives. Shifting the caregiver's centricity from themselves to the patient was the process of becoming human beings who actively constructed their realities while giving meaning to their painful lives and interacting with the environment.

Conclusion

The results of the study can be useful for nurses in understanding the experiences of caregivers of the patients with dementia and in providing them with practical interventions.

Citations

Citations to this article as recorded by  
  • Distinct trajectories of emotional distress and physical health among informal dementia caregivers surrounding bereavement: a systematic review
    Ji-Won Kim, Ji-Won Oh, Bo-Min Kim, Ji-Eun Choi, Chan-Young Kwon
    BMC Psychology.2026;[Epub]     CrossRef
  • Caregiver burden in informal caregivers of cardiac patients: a mixed-methods systematic review
    Fateme Beheshtaeen, Zahra Molazem, Majid Najafi Kalyani, Zinat Mohebbi, Reza Moshfeghinia, Mohammad Goudarzi Rad
    BMC Psychology.2026;[Epub]     CrossRef
  • A qualitative meta-synthesis of the essence of patient experiences of dialysis
    Soyoung Jang, Eunyoung E. Suh, Yoonhee Seok
    Journal of Korean Academy of Nursing.2025; 55(1): 119.     CrossRef
  • Self-care experiences of male spouses of people with dementia: a descriptive phenomenological study
    Sua Jung, Jun-Ah Song
    Aging & Mental Health.2025; 29(7): 1329.     CrossRef
  • Time Usage and Satisfaction Based on Occupational Area Between Weekdays and Weekends of Family Caregivers and Non-family Caregivers of Dementia Patients
    Woo-Hyuk Jang, Jong-Hwi Park
    Annals of Indian Academy of Neurology.2024; 27(5): 543.     CrossRef
  • Health and medical experience of migrant workers: qualitative meta-synthesis
    Hyun-Jin Cho, Kyoungrim Kang, Kyo-Yeon Park
    Archives of Public Health.2024;[Epub]     CrossRef
  • Time usage analysis according to occupational area and satisfaction level in family caregivers of dementia patients
    Woo-Hyuk Jang, Jong-Sik Jang, Jong-Hwi Park
    PeerJ.2023; 11: e15178.     CrossRef
  • Factors related to depression in primary caregivers of older adults with dementia in the COVID-19 pandemic era: A cross-sectional descriptive study
    Su-In Kim, Gwi-Ryung Son Hong
    Journal of Korean Gerontological Nursing.2023; 25(4): 420.     CrossRef
  • Partners' Experience of Informal Caregiving for Patients With Heart Failure
    Zequan Wang, Christine Tocchi
    Journal of Cardiovascular Nursing.2023; 38(2): E40.     CrossRef
  • Caring Experience of Spouse Caregivers of Persons with Alzheimer's Disease: A Qualitative Study
    Jin-Hee Lee, Gwi-Ryung Son Hong
    Journal of Korean Gerontological Nursing.2022; 24(3): 257.     CrossRef
  • Korean Family Caregivers' Experiences With Managing Behavioral and Psychological Symptoms of Dementia: Keeping Harmony in Daily Life
    Jiyeon Kim, Jun-Ah Song, Sua Jung, Hongjin Cheon, Jiyeon Kim
    Research in Gerontological Nursing.2022; 15(3): 141.     CrossRef
  • Family Caregiver Suffering in Caring for Patients with Amyotrophic Lateral Sclerosis in Korea
    Juyeon Oh, Jung-A Kim, Min Sun Chu
    International Journal of Environmental Research and Public Health.2021; 18(9): 4937.     CrossRef
  • Relationship between Caring Burden and Caring Behavior among Family Caregivers of Elderly with Dementia in Community-Dwelling: Mediating Effects of Caring Self-Efficacy and Social Support
    Young Ju Oh, Myung Ha Lee, Hee Sun Kim
    Korean Journal of Adult Nursing.2020; 32(2): 186.     CrossRef
  • Family Members’ Experience in Caring for Elderly with Dementia in Long-Term Care Hospitals
    Eun Kyoung Suh, Hye Ryoung Kim
    Journal of Korean Gerontological Nursing.2020; 22(4): 335.     CrossRef
  • Caring experiences of family caregivers of patients with heart failure: A meta-ethnographic review of the past 10 years
    Eun Young Kim, Seieun Oh, Youn-Jung Son
    European Journal of Cardiovascular Nursing.2020; 19(6): 473.     CrossRef
  • Influencing Factors on Care Burden among Family Caregivers for Elders with Dementia: Focusing on Family Caregivers using a Support Center for Dementia
    Kyung Choon Lim
    Journal of Korean Academic Society of Nursing Education.2019; 25(1): 136.     CrossRef
  • 2,498 View
  • 159 Download
  • 16 Crossref
Close layer
Factors Influencing Psychosocial Well-Being in Family Caregivers of People with Amyotrophic Lateral Sclerosis
Hyeon Sik Chu, Young Ran Tak, Seung Hyun Kim
J Korean Acad Nurs 2018;48(4):454-464.   Published online January 15, 2018
DOI: https://doi.org/10.4040/jkan.2018.48.4.454
AbstractAbstract PDF
Abstract Purpose

The purpose of this study was to identify factors influencing psychosocial well-being in family caregivers of patients with amyotrophic lateral sclerosis (ALS).

Methods

A descriptive correlational design was used. The transactional model of stress and coping was used to investigate the psychosocial well-being of 137 family caregivers of patients with ALS. Data were collected through self-reported questionnaires from January to November 2016. Data were analyzed using an independent t-test, one-way ANOVA, Pearson's correlation, and hierarchical multiple regression analysis with the SPSS WIN 21.0 program.

Results

The regression model had an adjusted R2 of .49, which indicated that meaning-focused coping, social support, ALS patient-family caregiver relationship (especially a spousal relationship), and tracheostomy were significant predictors of caregivers’ psychosocial well-being.

Conclusion

Meaning-focused coping and social support significantly influenced caregivers’ psychosocial well-being. Therefore, interventions to improve caregivers’ psychosocial well-being must focus on increasing meaning-focused coping and social support resources.

Citations

Citations to this article as recorded by  
  • Educational Intervention for the Management of Nonspecific Lower Back Pain in Nonprofessional Caregivers (TRANSFE Program): A Quasi-Experimental Study
    Víctor Ortiz-Mallasén, Eloy Claramonte-Gual, Águeda Cervera-Gasch, Desirée Mena-Tudela, María Jesús Valero-Chillerón, Laura Andreu-Pejó, Irene Llagostera-Reverter, Víctor Manuel González-Chordá
    Nursing Reports.2024; 14(3): 1570.     CrossRef
  • Analysing the influencing factors on caregivers’ burden among amyotrophic lateral sclerosis patients in China: a cross-sectional study based on data mining
    Ling Lian, Minying Zheng, Ruojie He, Jianing Lin, Weineng Chen, Zhong Pei, Xiaoli Yao
    BMJ Open.2022; 12(9): e066402.     CrossRef
  • Evaluación de la efectividad de un programa de intervención en cuidadores no profesionales de personas dependientes en el ámbito de la atención primaria
    Víctor Ortiz-Mallasén, Eloy Claramonte-Gual, Águeda Cervera-Gasch, Esther Cabrera-Torres
    Atención Primaria.2021; 53(1): 60.     CrossRef
  • Family Caregiver Suffering in Caring for Patients with Amyotrophic Lateral Sclerosis in Korea
    Juyeon Oh, Jung-A Kim, Min Sun Chu
    International Journal of Environmental Research and Public Health.2021; 18(9): 4937.     CrossRef
  • Psychometric properties of the Korean version of the positive aspects of caregiving scale for family caregivers of people with amyotrophic lateral sclerosis
    Hyeon Sik Chu, Young Ran Tak
    Palliative and Supportive Care.2020; 18(6): 699.     CrossRef
  • Theme 13 Clinical management and support

    Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration.2019; 20(sup1): 327.     CrossRef
  • 1,513 View
  • 17 Download
  • 6 Crossref
Close layer
A study on the Experience of the Life of Caregivers with Mentally Ill Children
Kyoung Soon Lee
Journal of Nurses Academic Society 1997;27(4):953-960.   Published online March 30, 2017
DOI: https://doi.org/10.4040/jnas.1997.27.4.953
AbstractAbstract

The purpose of this study was to explore and describe the experience of caregivers with mentally ill children. The sample consists of 4 participants who care for their children with mentally ill. They were asked open-ended questions in order for them to talk about their experiences. With permission of the subjects, the interviews were recorded and transcribed. The methodology utilized was the Colaizzi's phonomenological approach. The interview data was organized by themes into 5 categories : anguish, positive emotion, maturation, acceptance of the disease, and seeking information. These 5 themes were further categorized into 4 main groups : emotional impact, spiritual maturation, adapting to the illness, and seeking support needs. The results of this study have clinical and theoretical implications not only for psychiatric nursing in Korea but also for all clinicians working with the families of the mentally ill.

  • 373 View
  • 0 Download
Close layer
Affecting Factors of Homebound Bedridden Elderly's Depression
In Ja Kim, Keum Soon Kim, Moon Ja Suh, Nam Ok Cho
Journal of Korean Academy of Nursing 2002;32(5):665-672.   Published online March 29, 2017
DOI: https://doi.org/10.4040/jkan.2002.32.5.665
AbstractAbstract PDF

PURPOSE: It was identified that how many homebound bedridden elderlies and their primary caregivers were depressed, and which factors affected the bedridden elderly's depression. METHOD: The subjects were 191 homebound bedridden elderlies and their primary caregivers. The affecting factors were classified into two categories: bedridden elderly and their primary caregiver related factors. Then bedridden elderly's factors were classified demographic and disease-related factors again. The stepwise regression was used to identify significant factors. RESULT: The prevalence of bedridden elderly's and caregiver's depression was 77.8% and 67.0%, respectively. And the model explained 33.3% of variance of bedridden elderly's depression. Cognitively-impaired female elderlies who had depressed caregivers were found to be more depressed. And caregivers who perceived burden were identified to be more depressed. CONCLUSION: It is recommended that the health professionals need to identify bedridden elderlies and caregivers at risk of depression. Especially elderlies who is in poor cognition, those who are female, and those whose caregivers were depressed might be considered carefully in all counseling or follow-up. Also the primary caregivers must be helped to access already available formal and informal support.

  • 494 View
  • 2 Download
Close layer
A Relation Study on Burden, Health promotion Behavior and Health Status of the Family Caregiver of Intensive Care Unit Patient
Eun Sil Kim, Jeong Sook Park, Chung Ja Park
Journal of Korean Academy of Nursing 2002;32(5):654-664.   Published online March 29, 2017
DOI: https://doi.org/10.4040/jkan.2002.32.5.654
AbstractAbstract PDF

PURPOSE: The purpose of this study was to identify the burden, health promotion behavior and health status and to describe the relationship of the burden, health promotion behavior and health status of the family caregivers of intensive care unit patients. METHOD: The subjects were 48 family caregivers of ICU patients in a University Hospital. Data were collected between June, 1 and July, 31, 2000 using structured questionnaires. Research tools used were Suh and Oh's Burden Scale, Revised Walker, Sechrist, and Pender's HPLP(1987) ; Revised Nam's Health State Scale(1965). RESULT: The mean score of burden of family caregiver was 3.01(full score was 5). The mean score of health promotion behavior of family caregiver was 2.52 (full score was 4). And the mean score of health status of family caregiver was 0.68(full score was 1.00). The score of psychological health state was a little higher than the physiological one. In correlational analysis, the burden and the health status of caregivers were reversely correlated . The correlation between the burden and the health promotion behavior, and the health behavior and health status were not significant. CONCLUSION: The more burden caregivers of ICU patients felt, the worse their health status. So nurses need to understand the family caregiver's burden and apply nursing care that can reduce burden, in order to improve the health status of family caregivers.

Citations

Citations to this article as recorded by  
  • Experiences of Family Members With Visitation Prohibition for Critically Ill Patients
    Sunjung Kim, Sunghee H. Tak
    Western Journal of Nursing Research.2024; 46(11): 854.     CrossRef
  • The Lived Experiences of Patient’s Families with the Intensive Care Unit Diary
    Yu Jin Jeong, Sung Suk Ryoo, Hyun Jeong Shin, Young Hee Yi
    Journal of Korean Critical Care Nursing.2023; 16(1): 28.     CrossRef
  • Challenges Experienced by Family Caregivers of the Adult Intensive Care Unit Patients in Korea: An Integrative Review
    JiYeon Choi, Judith A. Tate, Youn-Jung Son
    Clinical Nursing Research.2021; 30(4): 423.     CrossRef
  • Factors Affecting Caregivers' Burnout Caring for a Family Member in an Intensive Care Unit
    Min-Jeong Park, So-Hee Park, Mi Young Chung
    Korean Journal of Adult Nursing.2017; 29(5): 517.     CrossRef
  • Nursing Needs of the Parents of Infants in Neonatal Intensive Care Unit
    Ji-Sun Park, Kyung-Sook Bang
    Journal of East-West Nursing Research.2014; 20(2): 136.     CrossRef
  • 890 View
  • 3 Download
  • 5 Crossref
Close layer
A Study on the Factors Affecting Sense of Well-being of Stroke Survivor Family Care Taker
Young Ju Bak, Mi Young Jeong, Eun Hyee Ann
Journal of Korean Academy of Nursing 2001;31(2):315-327.   Published online March 29, 2017
DOI: https://doi.org/10.4040/jkan.2001.31.2.315
AbstractAbstract PDF

This was a descriptive study clarifying the factors affecting family caregivers' sense of well-being. This study was conducted with 131 caregivers using structured self-reporting questionnaires and directly interviewing adult patients who had been under treatment in two general hospitals. The hospitals were located in M city from Aug. 10, 2000 until Sep. 2, 2000. The collected data were analyzed using SAS PC+ program, and the data were tested using descriptive statistics, t-tests, ANOVA, Pearson's Correlation Coefficient, and Stepwise Multiple Regression. The results of this study are as follows; 1) The variables affecting the caregivers' sense of burden were age (F=3.76, p=.0063), education level (F=4.67, p=.0015), monthly income (F=2.49, p=.0466), amount of assistance provided (F=4.19, p=.0037), and the relationship with patient before disease (F=9.49, p=.0001). 2) The variables affecting caregivers' sense of well-being were age (F=9.54, p=.0001), residing with patient (t=11.38, p=.0010), the period of caregiving (F=10.52, p= .0001), education level (F= 2.79, p=.0290), monthly income (F=3.04, p=.0196), and relationship with patient before disease (F= 10.51, p=.0001). Also, all of the variables which showed statistical significance. 3) In viewing the relationship between activities of daily living (ADL) and the senses of burden and well-being, a negative relation- ship between activities of daily living (ADL) and a sense of burden was found (r=-.640, p=.000). However, the relationship between activities of daily living (ADL) and a sense of well-being had a positive correlation (r= .232, p=.008). Also the relationship between the sense of burden and the sense of well-being was revealed to have a negative correlation (r=-.614, p=.000). 4) A sense of burden was the most important indicator to the well-being of the caregivers who took care of stroke patients (R2 =.36). In addition to this, living with the patient (45%), activities of daily living (51%), relationship with patient before disease (53%), and the family's monthly income accounted for 56% of the sense of well-being of the caregivers.

Citations

Citations to this article as recorded by  
  • Spirituality and Quality of Life Model of Family Caregivers Caring for Patients with Stroke: Path Analysis
    Jiyeong Lee, Jinsun Yong
    Korean Journal of Adult Nursing.2016; 28(6): 619.     CrossRef
  • Burden and Quality of Life in Terminal Cancer Patient's Family Caregivers in the area of Jeollanam-do
    Eun-Young Yang, Young A Kim
    Journal of the Korea Academia-Industrial cooperation Society.2015; 16(6): 3954.     CrossRef
  • 737 View
  • 1 Download
  • 2 Crossref
Close layer
Depression of Stroke Patient's Family Caregivers and the Relating Factors
Hee Jung Choi, Moon Ja Suh, Kum Soon Kim, In Ja Kim, Nam Ok Cho
Journal of Korean Academy of Nursing 2000;30(6):1531-1542.   Published online March 29, 2017
DOI: https://doi.org/10.4040/jkan.2000.30.6.1531
AbstractAbstract PDF

In this paper, we examined the depression of stroke patient's caregivers and analyzed influencing factors of the depression. The subjects were 215 caregivers who have takencare of stroke survivors in their home. The conceptual model of this study consisted of the caregiver's depression, perceived burden, illness intrusiveness, and patient's ADL. Modified Korean CES-D, modified subjective and objective Burden Scale, Illness intrusiveness(II), and Instrumental Activity of Daily Living(IADL) were used to measure concepts. Path analysis was used to test the model of this study. The results were as follows: 1. The mean depression score was 11.6 which was below the cut-off score of the CES-D. This score indicates that the subjects were higher than normal adults' mean score but not depressive. Eighty-six out of 215 caregivers(40%) were above the cut-off score. This finding was different from previous research results, and the reason might be the patients' capability of ADL. In a group of low capability patient's activities of daily living, caregiver's depression score was 15.5. 2. Caregiver's depression was positively related to caregiver's burden and illness intrusiveness, but negatively related to patient's activities of daily living. 3. The caregiver's perceived burden and illness intrusiveness directly influenced on their depression. Furthermore, the and caregiver's illness intrusiveness led to depression indirectly through their burden. A patient's activities of daily living didn't influence directly on depression but indirectly through caregiver's illness intrusiveness and burden.

Citations

Citations to this article as recorded by  
  • Spirituality and Quality of Life Model of Family Caregivers Caring for Patients with Stroke: Path Analysis
    Jiyeong Lee, Jinsun Yong
    Korean Journal of Adult Nursing.2016; 28(6): 619.     CrossRef
  • Needs of Family Caregivers Caring for Stroke Patients
    Jae Won Kim, Sung Seek Moon
    Social Work in Health Care.2007; 45(1): 81.     CrossRef
  • 818 View
  • 1 Download
  • 2 Crossref
Close layer
Coping Strategies Utilized in the Caregiving Situation and Predictors of Health Responses among Informal Caregivers of Older Adults
Hae Jung Lee, Rha Yun Song
Journal of Korean Academy of Nursing 2000;30(4):893-904.   Published online March 29, 2017
DOI: https://doi.org/10.4040/jkan.2000.30.4.893
AbstractAbstract PDF

The sample of this study consisted of 140 informal caregivers who provided care to the older adults(over 60 years of age) in Great Cleveland, USA. Self-rated questionnaires were utilized to collect information. The purpose of the study was to identify coping strategies most frequently utilized by informal caregivers of older adults and to examine predictors of the caregivers' health responses to the caregiving situation applying Lazarus and Folkman stress model(1984). Stepwise multiple regression was used to identify significant predictors among caregivers' demographic-socio-economic factors, older adult's dependency of activities of daily living(ADLs), caregiver's appraisal to the caregiving situation, and coping strategies. Informal caregivers (N=140) included in the study utilized help-seeking and problem-solving coping strategies more than self-blame and minimization of threat coping strategies. Caregivers' responses to the caregiving situation were observed by caregivers' perceived physical health, depression and life satisfaction. For perceived physical health, threat appraisal, older adult's dependency on ADLs, existential growth coping strategy, and monthly income accounted for 25% of the variance. Caregivers who appraised the caregiving situation as more threatening, reported higher dependency on ADLs, used more existential growth coping strategy, and had higher monthly income reported better physical health. For depression, threat appraisal, stress appraisal, existential growth coping strategy, self-blame coping strategy, and monthly income accounted for 48% of the variance. Caregivers who used more existential growth coping and less self-blame coping, appraised the situation as less threatening, less stressful, and had higher monthly income reported less depression. For life satisfaction, self-blame coping, existential growth coping, monthly income, stress appraisal accounted for 49% of the variance. Caregivers who used more existential growth coping, less self-blame coping, less stress appraisal, lower monthly income reported better life satisfaction. In conclusion, informal caregivers in this study utilized positive coping strategies such as problem-focused, existential growth, help-seeking, rather than negative coping strategies including self-blame. When they utilized positive coping strategies more often, caregivers experienced higher perceived physical health, higher life satisfaction and lower depression. Therefore, nursing intervention which utilized positive coping strategies is needed to enhance informal caregivers to have positive health responses to the caregiving demands.

Citations

Citations to this article as recorded by  
  • Factors Influencing the Quality of Life of Caregiver using Day Care Service
    Hyun Jeong No, Yeon Hee Choi
    Journal of East-West Nursing Research.2013; 19(1): 1.     CrossRef
  • Family Caregiver Burden by Relationship to Care Recipient with Dementia in Korea
    Gwi-Ryung Son Hong, Hyojeong Kim
    Geriatric Nursing.2008; 29(4): 267.     CrossRef
  • 703 View
  • 5 Download
  • 2 Crossref
Close layer
Relations between Perceived Burden and Social Support of Stroke Patient's Family Caregiver
Yeo Shin Hong, Moon Ja Suh, Keum Soon Kim, In Ja Kim, Nam Ok Cho, Hee Jung Choi, Sung Hee Jung, Eun Man Kim
Journal of Korean Academy of Nursing 2000;30(3):595-605.   Published online March 29, 2017
DOI: https://doi.org/10.4040/jkan.2000.30.3.595
AbstractAbstract PDF

The purpose of this study was to describe the perceived burden of the stroke patient's caregiver and related factors to analyze relationships between perceived burden and social supports. A convenient sample of 225 caregivers who take care for a stroke patient at home participated in this study. Caregiver's perceived burden was measured by the objective and subjective burden scale developed by Montgomery (1985). Related factors of burden were studied in terms of the patient's instrumental activties of daily living, cognitive function, caregiver's demographic variables and caregiver's illness intrusiveness. The results were as follows: (1) The mean of objective burden score was 4.5, and subjective burden score was 3.1. These scores show that caregivers perceive moderate level of burden. (2) Caregivers' objective burden was significantly related to caregivers's illness intrusiveness (r=.62), patient's IADL (r=-.33), and patient's cognitive function (r=-.15). The subjective burden was related to the caregiver's illness intrusiveness (r=.29), the patient's IADL (r=.24), and the caregiver's age(r=.23). (3) The percentage of stroke caregivers who perceived physical support was 49.1%. The percentage of those who perceived emotional support was 61.0%, and those who perceived financial support totaled 37.6%. (4) Caregivers who received any type of social supports perceived lower subjective burden, and caregivers who received physical or psychological support perceived lower objective burden. These results emphasized the necessity of a rehabilitation programs for stroke patients and support program for family caregivers.

Citations

Citations to this article as recorded by  
  • Influencing Factors on Stress in Caregivers of Stroke Patients Being Admitted in Rehabilitation Centers
    Nam-Hee Kim, Young-Sook Tae, Yooun-Sook Choi, Joo-Hee Bae
    Journal of the Korea Academia-Industrial cooperation Society.2016; 17(2): 188.     CrossRef
  • The effectiveness of home‐based individual tele‐care intervention for stroke caregivers in South Korea
    S.S. Kim, E.J. Kim, J.Y. Cheon, S.K. Chung, S. Moon, K.H. Moon
    International Nursing Review.2012; 59(3): 369.     CrossRef
  • The Burden of Aged Parents Caring for Adult Children with Disabilities
    Min-Hyun Suk, Eunhye Kim
    Journal of Korean Academy of Community Health Nursing.2010; 21(4): 439.     CrossRef
  • Korean version of the Revised Caregiving Appraisal Scale: a translation and validation study
    JuHee Lee, Erika Friedmann, Sandra J. Picot, Sue Ann Thomas, Cho Ja Kim
    Journal of Advanced Nursing.2007; 59(4): 407.     CrossRef
  • 724 View
  • 2 Download
  • 4 Crossref
Close layer
Health Promotion Behavior, Self-Efficacy and the Role Stress of Family Caregivers Who Care for Hospitalized Cancer Patients
Hye Sook Jang, Jeong Ran Lee, Moung Sil Lee, Yeon Sun Yun, Young Hee Kim
Journal of Korean Academy of Nursing 2000;30(2):402-412.   Published online March 29, 2017
DOI: https://doi.org/10.4040/jkan.2000.30.2.402
AbstractAbstract PDF

The purpose of this study is to identify health promotion behavior, self-efficacy and role stress of family caregivers who care for hospitalized cancer patient, The results would be used to provide the necessary basic data for promoting healthy behavior of the family caregivers to the cancer patient. The results were as follow : 1) The level of health promotion behavior was significantly different depending on the existence of care givers religion and type of help from family members. There was a positive relationship between the performance level of health promotion behavior and perceived health status or age. There was a negative correlation between the performance level of health promotion behavior and time cared for. 2) The level of self-efficacy was significantly different depending on gender and if the subject was employed. There was a positive relationship between perceived health status and intimacy with patient. 3) The level of role stress was significantly different in genders and relationships with patients. 4) There was a positive relationship between health promotion behavior and self-efficacy.

Citations

Citations to this article as recorded by  
  • The Effect of Self-efficacy and Depression on Sense of Family Coherence in Cancer Patients Undergoing Chemotherapy and Primary Caregivers in Day Care Wards: Using the Method Actor-partner Interdependence Model
    Eun-Hee Do, Eun Joung Choi
    Asian Oncology Nursing.2019; 19(4): 214.     CrossRef
  • The Lived Experience of Suffering of Family with Cancer Patients: Parse’s Human Becoming Research Method
    Ye-Sook Choi
    The Korean Journal of Hospice and Palliative Care.2016; 19(2): 127.     CrossRef
  • 698 View
  • 0 Download
  • 2 Crossref
Close layer
A Critical Review and Visim of Family Caregiving Research on the Demented Elderly's in Republic of Korea
Jin Sun Kim
Journal of Korean Academy of Nursing 1999;29(6):1419-1433.   Published online March 29, 2017
DOI: https://doi.org/10.4040/jkan.1999.29.6.1419
AbstractAbstract PDF

Little is known about the impact of family caregiving for the demented elderly in Korea. The purpose of this study was to identify the current state of development of family caregiving research for the demented elderly in Korea and to identify correlates of caregiver or health problems and burdens within the socio-political contexts of Korea. A critical review of 17 family caregivers was carried out. The review revealed that various caregiving impacts and correlates of caregiver burden or health problems have been studied in relation to demented elderly family caregiving. Family caregiving for the demented elderly is a very complex phenomenon and various factors were related to caregiver burden, or their emotional and physical health. Findings from studies reviewed have shown inconsistent, inconclusive, and contradictory results. Furthermore, several conceptual and methodological problems were identified in the studies reviewed: restricted conceptualization, unrepresentative study samples, inadequate sample size, inappropriate study design, absence of comparison groups, inappropriate psychometric properties, and uncontrolled confounding factors. More research, as well as directions for further research, is recommended to identify family caregiving the impact of for the demented elderly, and to clarify the factors that explain results.

Citations

Citations to this article as recorded by  
  • Overcoming Experiences of Family Members Caring for Elderly Patients with Dementia at Home
    Mi Ra Sung, Myungsun Yi, Dong Young Lee, Hye Young Jang
    Journal of Korean Academy of Nursing.2013; 43(3): 389.     CrossRef
  • 737 View
  • 0 Download
  • 1 Crossref
Close layer
Empathy In Informal Caregiving: Extension of A Concept from Professional Practice
Hae Jung Lee, Patricia F Brennan
Journal of Korean Academy of Nursing 1999;29(5):1123-1133.   Published online March 29, 2017
DOI: https://doi.org/10.4040/jkan.1999.29.5.1123
AbstractAbstract PDF

The concept of empathy was examined in the professional caregiving relationship and its application was extended to the context of informal caregiving. Using the Lazarus and Folkman model. the influence of empathy on the caregiver's experience in the caregiving relationship was illustrated. The effects of the caregiver's empathy on his/her own caregiving outcomes were investigated by examining the relationship between empathy and burnout experience and life satisfaction. Empathy increased emotional exhaustion while increased personal accomplishment and personalization. indicating conflicting relationship between empathy and burnout. This conflict relationship between empathy and burnout can be explained by suggesting the distinct roles of two dimensions of empathy: emotional and caregiving context and to examine the definite roles of two dimensions of empathy were suggested.

Citations

Citations to this article as recorded by  
  • Could virtual reality training be effective for enhancing empathetic behaviours in disability support worker training
    Lee Trevena, Jeni Paay, Rachael McDonald, Jessica Laraine Williams
    Disability and Rehabilitation.2025; 47(11): 2975.     CrossRef
  • VR interventions aimed to induce empathy: a scoping review
    Lee Trevena, Jeni Paay, Rachael McDonald
    Virtual Reality.2024;[Epub]     CrossRef
  • Facilitators and barriers to supporting individuals with spinal cord injury in the community: experiences of family caregivers and care recipients
    Gaya Jeyathevan, B. Catharine Craven, Jill I. Cameron, Susan B. Jaglal
    Disability and Rehabilitation.2020; 42(13): 1844.     CrossRef
  • A comprehensive model for predicting burnout in Korean nurses
    Haejung Lee, Rhayun Song, Young Suk Cho, Gil Za Lee, Barbara Daly
    Journal of Advanced Nursing.2003; 44(5): 534.     CrossRef
  • 618 View
  • 2 Download
  • 4 Crossref
Close layer
A Study on the Burdens and Depressive Reactions on Families who Cared for Patients Suffering from Senile Dementia
Young Ja Kim, Pyoung Sook Lee
Journal of Korean Academy of Nursing 1999;29(4):766-779.   Published online March 29, 2017
DOI: https://doi.org/10.4040/jkan.1999.29.4.766
AbstractAbstract PDF

The purpose of this study was to investigate the relationship between the burdent on families who live with an elderly person suffering from senile dementia, and the degree of their depression. There were 400 participants in this study, staying in the Seoul and Kyonggi areas from August, 1, 1997 to February 28, 1998. Among the group, 100 participants took care of their patients at home, and another 300 participants left 100 patients at a day-care center, 100 sanatorium for senile dementia(asylum for helpless elderly people), 100 an infirmary for elderly people. Eventually 242 subjects out of the 400 were selected for the data analysis. The Zarit(1980) tool was employed to measure the degree of burden and Zung's(1965) "Self-Rating Depression Scale" was employed for the data analysis. The data was analyzed, and the percentage, t-test, ANOVA, and Pearson's Correlation Coefficient were calculated. The results are as follows. 1. The average degree of burden that care-giving families felt was 49.13, which is somewhat high. 2. The average degree of depression that-giving families felt was 51.95, which is relatively high. 3. The degree of burden was directly affected by the relation with the patient(F=2.48, P<.05), and the socio-economic status of the family(F=5.17, P<.05). It's also affected by the patient's educational status(F=2.17, P<.05). 4. The degree of depression of the family was significantly dependent on sex(t=-2.05, P<.05), age(F=2.99, P<.05), the relationship with the patient(F=3.65, P<.01), socio-economic status(F=7.74, P<.001), occupation(t=2.82, P<.01), health status(F=4.42, P<.01), and the place of residence(F=4.30, P<.01). The patient characteristics was significantly dependent on his/her educational status(F=3.85, P<.01), the period of suffering from senile dementia(F=2.47, P<.05), and smoking habit(F=6.17, P<.001). 5. The relationship between the degree of burden and that of depression reads r=0.43, which is statistically positive correlation in the high significant level. Upon analyzing the entire summation, most care-giver for elderly patients suffering from senile dementia lack time in caring for themselves. They also experience chronic fatigue and mental discomfort caused by the isolation from society, curtailment of certain activities, a sense of responsibility of certain activities, a sense of responsibility for their patients, and limits of their endurance in taking care of their patients over time. In conclusion, this study emphasizes the necessity for the following propositions : 1. In order to measure the degree of burden that Korean care-giving families undergo, a new tool must be developed on the basis of Korean culture. 2. An educational program based on the demands that care-giving families undergo must e developed, and its clinical effect also has to be examined.

Citations

Citations to this article as recorded by  
  • Factors Influencing the Quality of Life among Family Caregivers of the Elderly with Dementia
    Hwasoon Kim
    Journal of Korean Academy of Fundamentals of Nursing.2021; 28(4): 500.     CrossRef
  • Review of studies on spousal caregivers of frail spouses in South Korea
    Youngsam Oh, Eunyoung Han
    International Social Work.2019; 62(2): 529.     CrossRef
  • The Burden of Aged Parents Caring for Adult Children with Disabilities
    Min-Hyun Suk, Eunhye Kim
    Journal of Korean Academy of Community Health Nursing.2010; 21(4): 439.     CrossRef
  • Comparison in Care Burden, Fatigue, and Life Contentment of Caregivers by Gender Relationship with Demented Elders
    Young Whee Lee, In Sook Cho, Hwa Soon Kim
    Korean Journal of Women Health Nursing.2009; 15(3): 196.     CrossRef
  • Family Caregiver Burden by Relationship to Care Recipient with Dementia in Korea
    Gwi-Ryung Son Hong, Hyojeong Kim
    Geriatric Nursing.2008; 29(4): 267.     CrossRef
  • Factors Affecting Burden of Family Caregivers of Community-Dwelling Ambulatory Elders with Dementia in Korea
    Young Mi Lim, Gwi-Ryung Son, Jun-Ah Song, Elizabeth Beattie
    Archives of Psychiatric Nursing.2008; 22(4): 226.     CrossRef
  • A thematic analysis of Korean family caregivers' experiences in making the decision to place a family member with dementia in a long‐term care facility
    Myonghwa Park, Howard Karl Butcher, Meridean L. Maas
    Research in Nursing & Health.2004; 27(5): 345.     CrossRef
  • 758 View
  • 2 Download
  • 7 Crossref
Close layer
Predictors of Burnout among Informal Caregivers of Older Adults: Using Discriminant Analysis
Haejung Lee, Rhayun Lee
Journal of Korean Academy of Nursing 1999;29(3):585-595.   Published online March 29, 2017
DOI: https://doi.org/10.4040/jkan.1999.29.3.585
AbstractAbstract PDF

The purse fo this study was to examine the predictors of burnout among informal caregivers of older adults. One hundred thirty seven caregivers of who had provided care to older adults over 60 years of age for more than one month were included in the study. Most of the caregivers where white (91%) and female (78%). mean ages of the caregivers were 64 years and 78% of them were married. Seventy percent of the older adults suffered from Alzheimer and related disease. In this study, caregivers and related disease. In this study, caregivers reported that they experience burnout once a month. The scores of emotional exhaustion and reduced personal accomplishment of the caregivers were in the moderate burnout rang. To examine the predictors of burnout, discriminant analysis was used. Caregivers were divided by two groups based on the sum of score (cutpoint=6) on three dimensions of burnout after each dimension was categorized into high(3), moderate(2), and low(1). Nine predictors were include in the analysis: Caregiver's age, employment status, Instrumental Activities of Daily Living (IADL) of the older adult, presence of dementia of the older adult, caregiver's empathy toward the older adult(emotional and cognitive), and 3 coping strategies (negative, problem-focused, cognitive reconstructioning). Catefgivers who reported high burnout showed higher cognitive empathy toward the adults than those who showed low burnout. Caregivers who experienced high burnout used negative coping more often, and cognitive reconstructioning coping and problem focused coping less often than their counterparts. Wilks' Lambda was .78 indicating that their differences between the two groups were signigicant. Cognitive empathy and cognitive reconstructioning coping showed high standardized canonical discriminant function coefficients over .40. Discriminant function with 9 predictors correctly classified 71% of the sample. In conclusion, informal caregivers also experienced certain level of burnout. Cognitive empathy and coping strategies predicted burnout experience of the caregivers. Based on this study, nursing intervention to the informal caregovers to improve their cognitive empathy toward the older adults and to modify their coping strategies in way to reduce burnout experience can be applied. Further research to develop effective nursing interventions for the purpose of reducing burnout experience by modifying predictors was suggested.

  • 502 View
  • 0 Download
Close layer
The Comparison of the coping Patterns of Cancer Patients and Their Caregivers According to the Phases of Illness
Young Hee Yang
Journal of Korean Academy of Nursing 1998;28(4):970-979.   Published online March 29, 2017
DOI: https://doi.org/10.4040/jkan.1998.28.4.970
AbstractAbstract PDF

Cancer has been considered a life-threatening disease and coping patterns could have a string impact the physical and psychological health of patients and their family. The purpose of this study was to identify the change of coping patterns according to the phases of illness in the patients with cancer and their family caregivers and to compare the coping patterns of patients with those of their caregivers. The phases of illness consisted of 1st(initial) stage, 2nd(metastatic or recurred) stage and 3rd(terminal) stage based on literature. The coping methods were measured using the modified Ways of Coping Questionnaire by Lazarus and Folkman(1984). Seventy-nine patients(35 in stage 1,31 in stage 2, and 13 in stage 3) and ninety-two caregivers(38 in stage 1,30 in stage 2 and 24) agreed to participate from two general hospitals in Seoul and Choongnam. No significant changes were found in the coping patterns according to the phases of illness in both groups. Patients in stage 2 and caregivers in stages 2 and 3 problem-focused coping methods were significantly used more than emotion-focused coping methods. Patients in stage 1 significantly used two coping strategies that were cognitive reconstruction and emotion expression more than caregivers. Patents in stage 2 significantly used emotion-focused coping methods including minimizing threat, blame, and emotion expression excepting wishful thinking more than caregivers. We need more research to identify the relationship between the coping methods and their efficiencies through long-term observation and attempt to develop the nursing interventions that could have an improvement on positive coping methods and provide guidance on the problems the patients experience.

Citations

Citations to this article as recorded by  
  • Factors influencing resilience among breast cancer survivors: Implications for evidence‐based practice
    Myeongshin Kim, Sohyune Sok
    Worldviews on Evidence-Based Nursing.2024; 21(1): 87.     CrossRef
  • Factors related to self‐care behaviours among patients with diabetic foot ulcers
    Eun Jo Kim, Kuem‐Sun Han
    Journal of Clinical Nursing.2020; 29(9-10): 1712.     CrossRef
  • Factors Influencing Turnover Intention in Clinical Nurses: Compassion Fatigue, Coping, Social Support, and Job Satisfaction
    Young Hee Yang, Jong Kyung Kim
    Journal of Korean Academy of Nursing Administration.2016; 22(5): 562.     CrossRef
  • A Study on the Development and Effectiveness Verification of a Program Designed to Strengthen Family Resilience of Inpatients with Cancer and Their Families
    Moo-Hee Yang, Gyung-Ja Yoon
    Journal of the Korean Home Economics Association.2012; 50(1): 121.     CrossRef
  • A Study on the Relationship among Family Support, Stress and Quality of Life on according to the Phases of Illness in Breast Cancer Patients
    Sang Sun Cheon, So Young Choi
    Korean Journal of Women Health Nursing.2010; 16(1): 10.     CrossRef
  • Stress and Coping Strategies of Patients With Cancer
    Hee-Seung Kim, Hye-A Yeom, Young-Sun Seo, Nam-Cho Kim, Yang-Suk Yoo
    Cancer Nursing.2002; 25(6): 425.     CrossRef
  • 673 View
  • 5 Download
  • 6 Crossref
Close layer
Actual Physical Symptom and Stress in Caregivers of Patients with Cerebrovascular Disease
Hee Seoung Kim, Hyeoun Ae Park, Mi Jeong Oh
Journal of Korean Academy of Nursing 1998;28(3):695-704.   Published online March 29, 2017
DOI: https://doi.org/10.4040/jkan.1998.28.3.695
AbstractAbstract PDF

This study amis for examines the actual physical symptom and stress in caregivers of patients with cerebrovascular disease. The data were collected by a survey conducted from August to September, 1997 which included 65 caregivers of cerebrovascular disease patient in 4 hospitals located in Seoul. The caregiver's stress was measured by Choi(1992)'s instrument and the actual physical symptoms were investigated. The data were analyzed using ANOV, Scheffe test, pearson correlation coefficient and stepwise multiple regression. The results were as follows : 1. The mean number of caregiver's physical symptom was 3.5. There were significantly higher number of physical symptom in women, those of who have a religious affiliation, those of two perceive their own health status perceived s bad, and those of two perceived their patients disease condition as serious than in their counterparts. Also, the number of caregiver's physical symptom was significantly higher in caregivers whose patients have a paralysis symptom and the disease onset as spontaneous. 2. The average of caregiver's stress was 57.9. The caregiver's stress was the highest in between the ages of 50 and 59. There were also significantly higher level of stress in women, those of two perceived the disease condition of their patient as serious than in counterparts. 3. The most common caregiver's physical symptom was fatigue(87.7%). This was followed by insomnia(58.5%) and muscle (47.4%). 4. Caregiver's physical symptom was positively correlated with caregiver's stress and negatively correlated with patient's activity of daily life. 5. The most important variable affecting the caregiver's physical symptom was patient's activity of daily life which accounted for 12.7% of the total variance in stepwise multiple regression analysis. The most important variable affecting the caregiver's stress was the patient disease condition perceived by the caregiver that accounted for 12.1% of the total variance.

Citations

Citations to this article as recorded by  
  • Relationship between Stress and Quality of Life of Family Caregivers of Patient with Lung Cancer
    Ju-Young Park
    Journal of Korean Oncology Nursing.2010; 10(2): 129.     CrossRef
  • 623 View
  • 0 Download
  • 1 Crossref
Close layer
A Model for Quality of Life of Family Caregivers with a Chronically Ill Patient
Eun Sook Park, Sook Ja Lee, Young Joo Park
Journal of Korean Academy of Nursing 1998;28(2):344-357.   Published online March 29, 2017
DOI: https://doi.org/10.4040/jkan.1998.28.2.344
AbstractAbstract PDF

This study was designed to construct a model that predicts the quality of life of family caregivers with a chronically ill patient. The hypothetical model wad developed based on the findings from past studies on quality of life and on the family with a chronically ill patients. Data were collected by self-reported questionnaires from 200 family caregivers in Seoul and Kyung Gi-Do, from May 1 to July 21, 1997. Data were analyzed using descriptive statistics and correlation analysis. The Linear Structural Relationship(LISREL) modeling process was used to find the best fit model which predicts causal relationships among variables. The results are as follows: 1. The overall fit of the hypothetical model to the data was moderate [X2=31.54(df=23, p=.11), GFI=.96, AGFI=.91, RMR=.04]. 2. Paths of the model were modified by considering both its theoretical implication and the statistical significance of the parameter estimates. Compared to the hypothetical model, the revised model has become parsimonious and had a better fit to the data expect chi-square value(GFI=.95, AGFI=.91, RMR=.04). 3. Some of predictive factors, especially economic status, physical ability to perform daily-life activity, period after disease-onset, social support and fatigue revealed indirect effect on the quality of life of family caregivers with a chronically ill patient. 4. The factors, burden and role satisfaction revealed significant direct effects on the quality of life of family caregivers with a chronically ill patient. 5. All predictive variables of quality of life of family caregivers with a chronically ill patient, especially economic status, physical ability to perform daily-life activity, period after disease-onset, social support, fatigue, burden and role satisfaction explained 38.0% of the total variance in the model. In conclusion, the derived model in this study is considered appropriate in explaining and predicting quality of life of family caregivers with a chronically ill patient. Therefore it can effectively be used as a reference model for further studies and suggests direction in nursing practice.

  • 367 View
  • 1 Download
Close layer
A Study of the Caregiving Burden on Grandmothers Who Raise Their Grandchildren: A Phenomenological Research
Moonjeong Kim
Journal of Korean Academy of Nursing 2007;37(6):914-923.   Published online March 28, 2017
DOI: https://doi.org/10.4040/jkan.2007.37.6.914
AbstractAbstract PDF

PURPOSE: This qualitative study aimed to identify the common, lived experiences of grandmothers who cared for their grandchildren as the primary caregivers. METHODS: This study was based on the phenomenological method described by Colaizzi (1978). RESULTS: Seven theme clusters emerged from the data as follows: "grandmother caregivers accept the parenting role of the incessant responsibilities and the distrust of non-kin caregivers.", "grandmother caregivers have a double maternal roles; an instrument-oriented maternal role to their own child and relationship-oriented maternal role to their grandchild.", "grandmother caregivers are partially authorized to make decisions in the matters of their grandchild.", "grandmother caregivers suffer a deterioration in their health by an acceleration of the aging process.", "caregiving causes grandmother caregivers to feel a sense of social isolation, and persue various coping strategies to control this feeling.", "grandmother caregivers have a greater feeling of self-esteem, but they often conflict with their adult children if they don't feel appreciated by them.", "grandmother caregivers have limited social support and their health issues are often overlooked in the family context." CONCLUSION: The results of this study can guide nurses and health care workers to understand the experiences of grandmother caregivers and to implement individualized nursing interventions suited for them.

Citations

Citations to this article as recorded by  
  • Longitudinal Patterns of Grandchild Care in South Korea
    Aely Park
    International Journal of Environmental Research and Public Health.2022; 19(3): 1136.     CrossRef
  • A Phenomenological Study on the Grandchild Caregiving Experiences in Middle Class Family : Application of Contextual Model of Family Stress
    Yoon Joo Cho
    Korean Journal of Human Ecology.2016; 25(5): 559.     CrossRef
  • Current Situation of Postmenopausal Grandmothers Raising Their Grandchildren
    Jang Yong Jin, Tae-Hee Kim
    Journal of Menopausal Medicine.2015; 21(2): 72.     CrossRef
  • Caregivers' Knowledge, Concerns and Management of Pediatric Febrile Convulsions.
    Ae Ree Kwak, Jin Sun Kim
    Child Health Nursing Research.2014; 20(3): 149.     CrossRef
  • Providing and Utilizing Child Care by Grandmothers in South Korea : Grandmothers' and Employed Mothers' Relationship Experiences
    Jaerim Lee
    Journal of Korean Home Management Association.2013; 31(2): 1.     CrossRef
  • Grandmother's Life Satisfaction and Influencing Factors by Grandparenting
    Chae Weon Chung, Moon Jeong Kim
    Korean Journal of Women Health Nursing.2010; 16(3): 288.     CrossRef
  • Structural Equation Modeling on Personal Satisfaction with Life in Grandmothers Parenting Grandchildren
    Moon Jeong Kim
    Korean Journal of Women Health Nursing.2009; 15(3): 231.     CrossRef
  • The Lived Experience of Struggling against Illness for Patients with Amyotrophic Lateral Sclerosis
    Sung Ye Kang
    Journal of Korean Academy of Nursing.2008; 38(6): 802.     CrossRef
  • 974 View
  • 8 Download
  • 8 Crossref
Close layer
Family Caregivers' Experiences Utilizing a Nursing Home for Their Elderly Family Members
Sun Woo Hong, Haeng Mi Son
Journal of Korean Academy of Nursing 2007;37(5):724-735.   Published online March 28, 2017
DOI: https://doi.org/10.4040/jkan.2007.37.5.724
AbstractAbstract PDF
Purpose

The purpose of this study was to explore and describe the experiences of the family caregivers using a nursing home for their elderly family members.

Method

Participants for this study were 1 man and 9 women caregivers. Data was collected through in-depth interviews from October, 2005 to April, 2006 and analyzed using Strauss and Corbin's grounded theory methodology.

Results

“Finding a way to live together” emerged as a core category and it reflected expanding consciousness allowing them to see each other in a more positive view. The basic social process of “finding a way to live together” includes 3 phases: 1) recognizing the problems, 2) finding solutions to the problems, and 3) accepting the changes in their surrounding. Lack of privacy, family troubles, extreme distress, and unavailable caregivers are reflected in the process of recognizing the problems. The process of finding solutions was making a decision, obtaining family agreement, choosing the best nursing home, and enduring the financial burden. Possible outcomes of the last phase include recovering peace of mind and continuing conflict.

Conclusion

Findings from this study offer suggestions for developing a strategy to help not only the elderly but also the family caregivers.

Citations

Citations to this article as recorded by  
  • Development of the Care Burden Scale for Family of Elderly in Nursing Facilities
    Eun Jeong Kim, Kyung Mi Sung
    Journal of Korean Academy of psychiatric and Mental Health Nursing.2024; 33(1): 80.     CrossRef
  • Useful lessons for the provision of services in long-term care facilities in South Korea: operators’ experiences illuminate the phenomenon of working with the elderly in the field
    Young Ran Tak, Hae Young Woo, Lee Han Yi, Ah Rim Kim
    International Journal of Qualitative Studies on Health and Well-being.2019;[Epub]     CrossRef
  • Hospice care education needs of nursing home staff in South Korea: a cross-sectional study
    Mihyun Park, Hye-Ah Yeom, Sr Jinsun Yong
    BMC Palliative Care.2019;[Epub]     CrossRef
  • Prise en charge d’un proche âgé dépendant à domicile en Corée du Sud : recherche sur les aidantes principales de la génération du baby-boom
    Yoonji Oh
    Enfances, Familles, Générations.2017;[Epub]     CrossRef
  • The Barriers and Solution of Providing Long-term Care Services at Home for the Beneficiaries with Mild Dementia: A Focus Group Interview
    Mi Sook Song, Kyung Sook Lim
    Journal of Korean Public Health Nursing.2016; 30(2): 259.     CrossRef
  • Assessment of Long-Term Care Service Needs in the Baby Boom Generation
    Song Yi Han
    Journal of Korean Academy of Community Health Nursing.2016; 27(1): 21.     CrossRef
  • Feelings of Guilt and Depression in Family Caregivers after Nursing Home Placement of Older Adults
    Sun Young You, Young Ran Tak
    Journal of Korean Gerontological Nursing.2014; 16(3): 276.     CrossRef
  • Grounded Theory Approach on the Adaptation Process in Facility of Long-Term Care Elderly
    신용석, Jung-Woo Kim, 김수정
    Korean Journal of Social Welfare.2013; 65(3): 155.     CrossRef
  • A Study on the conflict among Siblings Regarding the Long-term Care of Older Parents
    Yoo,Hi-Jung
    Korean Journal of Family Social Work.2013; null(40): 63.     CrossRef
  • A Study of Determinants of Caregivers’ Attitudes towards Utilization of Residential Care in the UK: Focused on Scottish Family Caregiver in Edinburgh City
    이현숙
    Health and Social Welfare Review.2013; 33(1): 260.     CrossRef
  • Knowledge regarding Advance Directives among Community-dwelling Elderly
    Sun Woo Hong, Shin Mi Kim
    The Journal of Korean Academic Society of Nursing Education.2013; 19(3): 330.     CrossRef
  • Nursing Home Placement: The Process of Decision Making and Adaptation among Adult Children Caregivers of Demented Parents in Korea
    Su-Hye Kwon, Young-Sook Tae
    Asian Nursing Research.2012; 6(4): 143.     CrossRef
  • The Study on commodification of filial piety through Long term care service
    홍세영, 서종희
    Korean Journal of Gerontological Social Welfare.2012; null(57): 51.     CrossRef
  • Validity and Reliability of the Korean Version of the Observable Indicators of Nursing Home Care Quality Evaluation Instrument
    Jia Lee
    Journal of Korean Academy of Nursing.2008; 38(3): 474.     CrossRef
  • 794 View
  • 6 Download
  • 14 Crossref
Close layer
The Effects of a Support Group Intervention on the Burden of Primary Family Caregivers of Stroke Patients
Eun Kwang Yoo, Sanghee Jeon, Jeong Eun Yang
Journal of Korean Academy of Nursing 2007;37(5):693-702.   Published online March 28, 2017
DOI: https://doi.org/10.4040/jkan.2007.37.5.693
AbstractAbstract PDF

PURPOSE: The purpose of this study was to develop and evaluate the effects of a support group intervention on the burden of primary family caregivers of stroke patients. METHOD: A nonequivalent control group pretest-posttest design was used. The subjects were 36 primary family caregivers of stroke patients [experimental(N=18) and control(N=18) groups] in a neurosurgery ward of a university hospital. The experimental group members participated in six sessions of a support group intervention for two weeks and the degree of their caregiving burden was evaluated. Data was analyzed by Chi-square tests, t-tests, and paired t-tests using SPSS 10.0. RESULT: The experimental group had a significantly lower total burden score (t=2.061, p= .047)and sub-scales of emotional(t=-3.319, p= .002), time-dependent(t=-2.045, p= .049) and developmental(t=-2.656, p= .012) burden scores than the control group, while no significant differences were found in physical, social or financial burden scores between the two groups. Within the experimental group, there was a significant decrease in physical(t=2.507, p= .023), emotional(t=4.754, p= .000), social(t=2.932, p= .009), time- dependent(t=5.015, p= .000) and developmental(t=7.541, p= .000) burden scores but not the financial burden score. CONCLUSION: The results suggest that a support group intervention can be utilized as an effective nursing program to reduce the burden of primary family caregivers of stroke patients.

Citations

Citations to this article as recorded by  
  • Comparison Between Comprehensive Nursing Care Ward and Private Care Ward on Functional Recovery in Stroke Patients
    Yang Rok Hur, Woo Sup Song, Kyung Min Kim, Ki Hun Hwang
    Brain & Neurorehabilitation.2022;[Epub]     CrossRef
  • The Development and Evaluation of Navigation Program for Caregivers of Stroke Patients Admitted to a Rehabilitation Centers: A Pilot Study
    Nam Hee Kim, Young Sook Tae
    Korean Journal of Adult Nursing.2018; 30(3): 277.     CrossRef
  • Effects of a Footbath Program on Heart Rate Variability, Blood Pressure, Body Temperature and Fatigue in Stroke Patients
    Yu Lim Son, Myung Sook Yoo
    Journal of Korean Biological Nursing Science.2016; 18(1): 51.     CrossRef
  • The Effect of Post-Stroke Depression on Rehabilitation Outcome and the Impact of Caregiver Type as a Factor of Post-Stroke Depression
    Dong-Heun Ahn, Yung-Jin Lee, Ji-Hun Jeong, Yong-Rok Kim, Jong-Bum Park
    Annals of Rehabilitation Medicine.2015; 39(1): 74.     CrossRef
  • Effects of a Telephone-based Support Group Program for Family Caregivers Providing Long-term Care for Elders
    Eun-Young Kim, Jeong Ok Kwon
    Journal of Korean Gerontological Nursing.2014; 16(1): 38.     CrossRef
  • 809 View
  • 9 Download
  • 5 Crossref
Close layer
Subjective and Objective Caregiver Burden in Parkinson's Disease
Keum Soon Kim, Bog Ja Kim, Kyung Hee Kim, Myoung Ae Choe, Myungsun Yi, Yang Sook Hah, Sun Ju Chung, So Hi Kwon
Journal of Korean Academy of Nursing 2007;37(2):242-248.   Published online March 28, 2017
DOI: https://doi.org/10.4040/jkan.2007.37.2.242
AbstractAbstract PDF
Purpose

Parkinson's disease (PD) is a common neurodegenerative disorder characterized by motor disabilities and increasing dependence on others for daily life activities with consequent impact on patients' and caregivers' quality of life. The aim of this study was to elucidate the burden on primary caregivers of patients with PD, and identify related factors.

Methods

A cross-sectional descriptive study. Seventy-six primary caregivers of PD patients in a neurology outpatient clinic, Seoul, Korea completed structured questionnaires, of which 68 were analyzed. The structured self-report questionnaire included (1) demographic information on the caregivers, (2) information regarding the disease characteristics of the patients, and (3) the subjective and objective caregiver burdens as assessed on Montgomery, Gonyea, & Hooyman's scale.

Results

The mean age of the caregivers was 54.56 years, and spouses represented the largest proportion(47.0%). Caregivers of PD patients experienced high levels of burden (mean scores on the subjective and objective burdens were 45.22 and 34.90, respectively), which were comparable to the caregiver burdens in stroke, and higher than the caregiver burdens in general chronic disease. Older caregivers and spousal caregivers experienced significantly higher burdens (p=.004 and p=.019, respectively). A greater motor disability and higher modified Hoehn and Yahr grade were related to higher caregiver burden (p=.001 and p=.018, respectively).

Conclusion

Caring for PD patients is associated with a high level of caregiver burden. Therefore, healthcare professionals should identify the burden of caregivers who look after PD patients and develop comprehensive management strategies both for patients and their caregivers.

Citations

Citations to this article as recorded by  
  • Perceptions of workload in caregivers involved in the care of patients with Parkinson’s disease: an exploratory - correlational study
    Elsa Vitale, Luana Conte, Rosita Pasquadibisceglie, Antonino Calabrò, Cosimo Leone, Maicol Carvello, Roberto Lupo
    Journal of Gerontology and Geriatrics.2024; 72(3): 122.     CrossRef
  • Development of the Forman Parkinson’s Disease Symptom Checklist
    Bushra Akram, Ivan Suneel
    Journal of Professional & Applied Psychology .2022; 3(3): 356.     CrossRef
  • Effects of Multimodal Rehabilitation on the Activities of Daily Living, Quality of Life, and Burden of Care for Patients with Parkinson’s Disease: A Randomized Control Study
    Hyun-Se Choi, Seung-Hyun Cho
    Healthcare.2022; 10(10): 1888.     CrossRef
  • Parkinson's Disease Caregiver Strain in Singapore
    Siok-Bee Tan, Allison F. Williams, Eng-King Tan, Richard B. Clark, Meg E. Morris
    Frontiers in Neurology.2020;[Epub]     CrossRef
  • Psychological distress and perceived burden in caregivers of persons with autism spectrum disorder
    Eman Khamis Alnazly, Amjed Abojedi
    Perspectives in Psychiatric Care.2019; 55(3): 501.     CrossRef
  • Caregiver Burden, Spirituality, and Psychological Well-Being of Parents Having Children with Thalassemia
    Jawaria Anum, Rabia Dasti
    Journal of Religion and Health.2016; 55(3): 941.     CrossRef
  • Predictors of Depression Among Caregivers of Older Adults With Severe Mental Illness
    Sherry M. Cummings, Nancy P. Kropf
    Journal of Gerontological Social Work.2015; 58(3): 253.     CrossRef
  • The Relationship among Caregiver Burden, Demographic Variables, and the Clinical Characteristics of Patients with Parkinson’s Disease—A Systematic Review of Studies Using Various Caregiver Burden Instruments
    Ingrid Leiknes, Unn-Tone Lien, Elisabeth Severinsson
    Open Journal of Nursing.2015; 05(10): 855.     CrossRef
  • A Structural Model of Health-Related Quality of Life in Parkinson’s Disease Patients
    JuHee Lee, MoonKi Choi, Dukyoo Jung, Young H. Sohn, JinYong Hong
    Western Journal of Nursing Research.2015; 37(8): 1062.     CrossRef
  • Factors Affecting Caregiver Burden in Caregivers of Patients with Parkinson's Disease
    Dong Won Kim, Eun Sook Bae
    Korean Journal of Adult Nursing.2015; 27(3): 283.     CrossRef
  • Factors Related to Family Caregivers' Burden with the Community-Dwelling Disabled Elderly under the Long-Term Care Insurance System
    Eun-Jeong Han, Jung-Myun Lee, Jin-Hee Kwon, Seul-Bi Shin, Jung-Suk Lee
    Health Policy and Management.2014; 24(1): 71.     CrossRef
  • Family caregivers’ experiences of provided home care to persons with Parkinson’s disease
    Ingrid Leiknes, Sevald Høye
    Nordisk sygeplejeforskning.2012; 2(1): 29.     CrossRef
  • Factors Influencing Quality of Life in Caregivers of People with Parkinson's Disease and Implications for Clinical Guidelines
    D. Morley, S. Dummett, M. Peters, L. Kelly, P. Hewitson, J. Dawson, R. Fitzpatrick, C. Jenkinson
    Parkinson's Disease.2012; 2012: 1.     CrossRef
  • 1,104 View
  • 9 Download
  • 13 Crossref
Close layer
The Influence of Culture on the Experiences of Korean, Korean American, and Caucasian-American Family Caregivers of Frail Older Adults: A Literature Review
Eun Hi Kong
Journal of Korean Academy of Nursing 2007;37(2):213-220.   Published online March 28, 2017
DOI: https://doi.org/10.4040/jkan.2007.37.2.213
AbstractAbstract PDF
Purpose

The purpose of this review is to explore cultural influences on the experiences of Korean, Korean American, and Caucasian American family caregivers caring for frail older adults in terms of the selection of a primary caregiver, caregiving motivation, support/help-seeking, and negative emotional responses(depression and burden).

Methods

Seven electronic databases were searched to retrieve studies from 1966 to 2005. Thirty-two studies were identified.

Results

This review supported cultural influences on the selection of primary caregiver, caregiving motivation, and support/help-seeking among the three caregiver groups. In Korean caregivers, the major primary caregivers were daughters-in-law while among Korean American and Caucasian American caregivers, the major primary caregivers were daughters or spouses. As a major caregiving motivation, Caucasian American caregivers reported filial affection while Korean caregivers and Korean American caregivers reported filial obligation. Korean caregivers reported higher extended family support, while Caucasian American caregivers reported higher utilization of formal support. Korean caregivers showed the highest levels of depression followed by Korean American caregivers and Caucasian American caregivers.

Conclusion

In order to develop culturally appropriate interventions and policies, more research is needed to further explain these differences among the three groups, especially regarding support/help-seeking and negative emotional responses.

Citations

Citations to this article as recorded by  
  • Racial/ethnic differences in social support for dementia caregiving: Midlife women family caregivers of people with Alzheimer's disease
    Hyunwoo Jeong, Heejung Kim, Euno Kim, Wonshik Chee, Eun-Ok Im
    Geriatric Nursing.2025; 62: 131.     CrossRef
  • A Phenomenological Study on the Perceived Quality of Life Among Older Female North Korean Refugees in South Korea
    Myeonghee Kim, Soochan Choi, Jeongsu Lim
    Journal of Immigrant & Refugee Studies.2025; : 1.     CrossRef
  • Being devastated by critical illness journey in the family: A grounded theory approach of post-intensive care syndrome-family
    Jiyeon Kang
    Intensive and Critical Care Nursing.2023; 78: 103448.     CrossRef
  • Living up to Parental Expectations, Psychological Separation, and Life Satisfaction
    Soojung Lee, Myung Sun Kim, Dohyung Lee, Kyu Jin Yon, Alex J. Nelson
    Emerging Adulthood.2023; 11(2): 403.     CrossRef
  • Capacity or Necessity? Comparing the Socio-Economic Distribution of Productive Activities Between Italy and South Korea
    Ginevra Floridi
    Research on Aging.2023; 45(1): 21.     CrossRef
  • Support system diversity among family caregivers of stroke survivors: a qualitative study exploring Asian perspectives
    Shilpa Tyagi, Nan Luo, Chuen Seng Tan, Kelvin Bryan Tan, Boon Yeow Tan, Edward Menon, N. Venketasubramanian, Wei Chin Loh, Shu Hui Fan, Kenneth Lam Thuan Yang, Audrey Swee Ling Chan, Aysha Farwin, Zunairah Binti Lukman, Gerald Choon-Huat Koh
    BMC Geriatrics.2021;[Epub]     CrossRef
  • QUALITY OF LIFE OF FAMILY CAREGIVERS OF CHILDREN WITH LEUKEMIA: A DESCRIPTIVE QUANTITATIVE STUDY
    Ikeu Nurhidayah, Sri Hendrawati, Dewi Pratiwi Hasriyadhi
    Belitung Nursing Journal.2020; 6(2): 52.     CrossRef
  • Caregiving Attitudes and Needs of Later-generation Chinese-American Family Caregivers of Older Adults
    Christina E. Miyawaki
    Journal of Family Issues.2020; 41(12): 2377.     CrossRef
  • Motivations for being informal carers of people living with dementia: a systematic review of qualitative literature
    Nan Greenwood, Raymond Smith
    BMC Geriatrics.2019;[Epub]     CrossRef
  • Bereaved Families’ Experiences of End-of-Life Care at Home for Older Adults with Non-Cancer in South Korea
    Hanul Lee, Jiwon Lee, Jong-Eun Lee
    Journal of Community Health Nursing.2019; 36(1): 42.     CrossRef
  • Spiritual Well-being Among Palliative Care Patients With Different Religious Affiliations: A Multicenter Korean Study
    Seok Joon Yoon, Sang-Yeon Suh, Sun Hyun Kim, Jeanno Park, Yu Jung Kim, Beodeul Kang, Youngmin Park, Jung Hye Kwon, Kwonoh Park, Dong Wook Shin, Hyeon Jeong Kim, Hong-Yup Ahn, David Hui
    Journal of Pain and Symptom Management.2018; 56(6): 893.     CrossRef
  • Health utility scores of family caregivers for leukemia patients measured by EQ-5D-3L: a cross-sectional survey in China
    Hongjuan Yu, Huan Zhang, Jinjin Yang, Chaojie Liu, Chengfang Lu, Hongbin Yang, Weidong Huang, Jin Zhou, Wenqi Fu, Linmei Shi, Yan Yan, Guoxiang Liu, Limin Li
    BMC Cancer.2018;[Epub]     CrossRef
  • Factors associated with the quality of life of family caregivers for leukemia patients in China
    Hongjuan Yu, Limin Li, Chaojie Liu, Weidong Huang, Jin Zhou, Wenqi Fu, Yi Ma, Si Li, Yuying Chang, Guoxiang Liu, Qunhong Wu
    Health and Quality of Life Outcomes.2017;[Epub]     CrossRef
  • The relationship between geographical and social space and approaches to care among rural and urban caregivers caring for a family member with Dementia: a qualitative study
    Kethy Ehrlich, Azita Emami, Kristiina Heikkilä
    International Journal of Qualitative Studies on Health and Well-being.2017; 12(1): 1275107.     CrossRef
  • Association of Filial Responsibility, Ethnicity, and Acculturation Among Japanese American Family Caregivers of Older Adults
    Christina E. Miyawaki
    Journal of Applied Gerontology.2017; 36(3): 296.     CrossRef
  • What cancer means to the patients and their primary caregivers in the family‐accounted Korean context: A dyadic interpretation
    Ansuk Jeong, Ji Yeong An, Jong Hyock Park, Keeho Park
    Psycho-Oncology.2017; 26(11): 1777.     CrossRef
  • Factors Associated with Care Burden among Family Caregivers of Terminally Ill Cancer Patients
    Jee Hye Lee, Hyun Kyung Park, In Cheol Hwang, Hyo Min Kim, Su-Jin Koh, Young Sung Kim, Yong Joo Lee, Youn Seon Choi, Sun Wook Hwang, Hong Yup Ahn
    The Korean Journal of Hospice and Palliative Care.2016; 19(1): 61.     CrossRef
  • Multidimensional Caregiving Burden of Female Family Caregivers in Korea
    Young Mi Lim, Yang Heui Ahn, Ji Yeong Ahn
    Clinical Nursing Research.2016; 25(6): 665.     CrossRef
  • A Review of Ethnicity, Culture, and Acculturation Among Asian Caregivers of Older Adults (2000-2012)
    Christina E. Miyawaki
    Sage Open.2015;[Epub]     CrossRef
  • Sociodemographic Characteristics and Health Status of Asian, Hispanic, and Non-Hispanic White Family Caregivers of Older Adults Across Generations
    Christina E. Miyawaki
    Journal of Ethnic & Cultural Diversity in Social Work.2015; 24(4): 257.     CrossRef
  • Modifiable factors associated with caregiver burden among family caregivers of terminally ill Korean cancer patients
    Seok-Joon Yoon, Jong-Sung Kim, Jin-Gyu Jung, Sung-Soo Kim, Samyong Kim
    Supportive Care in Cancer.2014; 22(5): 1243.     CrossRef
  • Cultural aspects of caregiver burden in psychiatric disorders
    Subho Chakrabarti
    World Journal of Psychiatry.2013; 3(4): 85.     CrossRef
  • Nursing Home Placement: The Process of Decision Making and Adaptation among Adult Children Caregivers of Demented Parents in Korea
    Su-Hye Kwon, Young-Sook Tae
    Asian Nursing Research.2012; 6(4): 143.     CrossRef
  • Comparison of Health Locus of Control, Depression, Wellbeing, and Health Promoting Lifestyle Profile II in Middle Aged Korean and Korean-American Women
    Eun Hee Lee, Ae Young So, Kyung Sook Lee
    Korean Journal of Women Health Nursing.2010; 16(2): 157.     CrossRef
  • Depression in Family Caregivers of Cancer Patients: The Feeling of Burden As a Predictor of Depression
    Young Sun Rhee, Young Ho Yun, Sohee Park, Dong Ok Shin, Kwang Mi Lee, Han Jin Yoo, Jeong Hwa Kim, Soon Ok Kim, Ran Lee, Youn Ok Lee, Nam Shin Kim
    Journal of Clinical Oncology.2008; 26(36): 5890.     CrossRef
  • Family Caregiver Burden by Relationship to Care Recipient with Dementia in Korea
    Gwi-Ryung Son Hong, Hyojeong Kim
    Geriatric Nursing.2008; 29(4): 267.     CrossRef
  • 1,149 View
  • 12 Download
  • 26 Crossref
Close layer
A Study on the Related Factors of the Wellbeing of Family Caregivers in Elderly with Stroke
Yeon Hwan Park, Su Jeong Yu, Shin Mi Kim, Yun Jung Lee
Journal of Korean Academy of Nursing 2006;36(2):373-380.   Published online March 28, 2017
DOI: https://doi.org/10.4040/jkan.2006.36.2.373
AbstractAbstract PDF
Purpose

The purpose of this study was to identify the factors related to the wellbeing of the family caregivers of the elderly with a stroke.

Methods

The subjects of this study were 199 elderly treated in four oriental hospitals in Korea, and their primary family caregivers. The data was collected by interviewsand a self reported questionnaire, during the period from October, 2003 to April, 2004.

Results

The results of this study were as follows. The mean score of wellbeing of family caregivers was 60.6412.63. The factors related to wellbeing of family caregivers were sex, age, education, depression, illness severity, ADL, paralysis, and speech disability in elderly characteristics. Among family caregivers characteristics, education, relation, and burden were significantly related. In situational variables, family income and the previous relationship between the elderly and family caregivers were related to wellbeing. Stepwise multiple regression analysis revealed that the most powerful predictor of wellbeing was the burden of family caregivers. A combination of the depression of elderly and age of family caregivers accounted for 50.3% of the variance of wellbeing.

Conclusions

On developing the nursing intervention for improving wellbeing of family caregivers, many factors should be considered, especially caregiver burden, and elderly depression.

  • 485 View
  • 2 Download
Close layer
Influencing Factors that Affect the Psychological Well-being in Family Caregivers of Stroke Patients
Jung Hee Kim, Ok Soo Kim
Journal of Korean Academy of Nursing 2005;35(2):399-406.   Published online March 28, 2017
DOI: https://doi.org/10.4040/jkan.2005.35.2.399
AbstractAbstract PDF
Purpose

The purpose of this study was to investigate the factors that affect the psychological well-being in family caregivers of stroke patients.

Method

The General Health Perception, short form 36, Health Survey Questionaire was used to measure health perception. The Caregiving Mastery Scale was used to assess the mastery, while the Psychological General Well-Being Index was used to examine the level of well-being.

Result

Subjective health, caregiving mastery, patient's ADL and caregiving duration influenced on caregiver's psychological well-being. Subjective health had effect on psychological well-being both directly and indirectly. Caregiving duration and patient's ADL had indirect effect on psychological well-being through caregiving mastery.

Conclusion

It is need to develop a health program for the caregivers of stroke patient's and to provide nursing intervention to improve the caregiver's ability, thereby improving the well-being of the family caregivers.

Citations

Citations to this article as recorded by  
  • Video Content-Assisted Informed Consent for Surgery Improves Satisfaction Among Patients With Thyroid Cancer and Surgeons
    Ho Jung Jeong, Jun Sung Lee, Jin Seok Lee, Hyeok Jun Yun, Yong Sang Lee, Hang-Seok Chang
    Journal of Endocrine Surgery.2025; 25(2): 78.     CrossRef
  • Happiness Felt by Family Caregivers of Older Adults Needing Care
    Chikako Takabayashi
    Journal of Japan Academy of Nursing Science.2024; 44: 743.     CrossRef
  • Associations among disability, depression, anxiety, stress, and quality of life between stroke survivors and their family caregivers: An Actor‐Partner Interdependence Model
    Sri Yuliana, Erica Yu, Yohanes Andy Rias, Nur Atikah, Hsiu Ju Chang, Hsiu Ting Tsai
    Journal of Advanced Nursing.2023; 79(1): 135.     CrossRef
  • Personality and Psychological Well-Being among Cancer Caregivers at the Uganda Cancer Institute and Mbarara Regional Referral Hospital
    Rachel K., Milton M., Godfrey Z.R., Nixon N., Jackson O., Simon K.
    African Journal of Social Sciences and Humanities Research.2022; 5(3): 62.     CrossRef
  • Influencing Factors on Stress in Caregivers of Stroke Patients Being Admitted in Rehabilitation Centers
    Nam-Hee Kim, Young-Sook Tae, Yooun-Sook Choi, Joo-Hee Bae
    Journal of the Korea Academia-Industrial cooperation Society.2016; 17(2): 188.     CrossRef
  • Effects of a Patient Educational Video Program on Bowel Preparation Prior to Colonoscopy
    You Young Cho, Hyeon Ok Kim
    Journal of Korean Academy of Nursing.2015; 45(5): 704.     CrossRef
  • Effects of a web-based stroke education program on recurrence prevention behaviors among stroke patients: a pilot study
    J.-I. Kim, S. Lee, J.-H. Kim
    Health Education Research.2013; 28(3): 488.     CrossRef
  • Factors Influencing the Burden Felt by Main Family Caregivers of Elderly Patients with Brain and Spinal Diseases
    Hee Kyung Park, Kyung Min Park
    Journal of Korean Academy of Community Health Nursing.2011; 22(4): 389.     CrossRef
  • Effects of Moxibustion on Physiological Indices and Autonomic Nervous Symptoms in Adults with Prehypertension
    Soon Hee Cho
    Journal of Korean Academy of Nursing.2010; 40(5): 686.     CrossRef
  • 827 View
  • 4 Download
  • 9 Crossref
Close layer
Women Caregivers' Experiences in Caring at Home for a Family Member with Dementia: A Feminist Approach
Bong Sook Yih, Chun Mi Kim, Myung Sun Yi
Journal of Korean Academy of Nursing 2004;34(5):881-890.   Published online March 28, 2017
DOI: https://doi.org/10.4040/jkan.2004.34.5.881
AbstractAbstract PDF
Purpose

The purpose of this study was to explore women caregivers' lived experiences in caring at home for a family member with dementia and to identify conditions that oppress women in the context of family caregiving.

Method

This study was conducted within the feminist perspectives using qualitative secondary data. Ten secondary data conveying self reflective contents were selected from the 25 original data obtained in 1999 to 2000.

Result

Six themes that emerged from the qualitative thematic content analysis were; androcentric view of family caregiving, undervalued family caregiving by the family members, Self rationalization in the context of family caregiving, family-centric care mechanism, exemplary caring within the family context, and inter-familial relationships among women.

Conclusion

The main focus of feminist research is to provide empowerment for the women research participants and to bring about social change of oppressive constraint through some actions. On the basis of the research findings, therefore, action strategies from feminist perspectives were suggested in some aspects of health care delivery sectors, nursing education and research sectors, and administrative sectors.

Citations

Citations to this article as recorded by  
  • How Do Young Adults Become Socially Isolated?
    Juyeon Ryu, Kiok Seong, Soojin Kim
    Journal of Social Science.2023; 34(3): 47.     CrossRef
  • Time usage analysis according to occupational area and satisfaction level in family caregivers of dementia patients
    Woo-Hyuk Jang, Jong-Sik Jang, Jong-Hwi Park
    PeerJ.2023; 11: e15178.     CrossRef
  • Changes in Family Dynamics in Caregiving for People With Dementia in South Korea: A Qualitative Meta-Synthesis Study
    Seieun Oh, Mi Yu, Young Mi Ryu, Haejin Kim, Haeyoung Lee
    Qualitative Health Research.2020; 30(1): 60.     CrossRef
  • A Content Analysis of the Experience of Participation in Community Leisure Programs among Older Adults
    Insuk Rho, Sunhee Cho
    Journal of East-West Nursing Research.2016; 22(2): 138.     CrossRef
  • The Barriers and Solution of Providing Long-term Care Services at Home for the Beneficiaries with Mild Dementia: A Focus Group Interview
    Mi Sook Song, Kyung Sook Lim
    Journal of Korean Public Health Nursing.2016; 30(2): 259.     CrossRef
  • Overcoming Experiences of Family Members Caring for Elderly Patients with Dementia at Home
    Mi Ra Sung, Myungsun Yi, Dong Young Lee, Hye Young Jang
    Journal of Korean Academy of Nursing.2013; 43(3): 389.     CrossRef
  • Nurses' Experiences of Caring with Demented Oder Persons
    Chun-Gill Kim, Young Hee Lee
    Korean Journal of Adult Nursing.2012; 24(5): 454.     CrossRef
  • An Analysis of the Meaning of Respite for Family Caregivers of Elderly with Dementia
    Mi Ryeong Song, Yong-Mi Lee, Suk-Hee Cheon
    Journal of Korean Academy of Nursing.2010; 40(4): 482.     CrossRef
  • 753 View
  • 6 Download
  • 8 Crossref
Close layer
The Effects of the Day Care Service Program for the Elderly and Family with the Stroke: Compared with the Elderly and Family in Home
Yeon Hwan Park
Journal of Korean Academy of Nursing 2003;33(7):990-998.   Published online March 28, 2017
DOI: https://doi.org/10.4040/jkan.2003.33.7.990
AbstractAbstract PDF
Purpose

The purpose of this study was to identify the effects of the day care service for the elderly and family with the stroke.

Method

Data were collected from September 2002 to March 2003 by self report questionnaires and interview. 50 elderlies and families(Gr I) who used day care center were compared with 51 elderlies and families (Gr II) who didn't used. The data were analyzed using independent sample t test and chi square test.

Result

The general characteristics, stressors, and situational variables related to outcome variables were homogeneous between two groups. The caregiver burden(t=-2.287, p=.024) score in the Gr I was significantly lower than in the Gr II. However there was no evidence of an effect day care center attendance on the depression of the elderly, the relationship between elderly and caregiver, and the family functioning.

Conclusion

Findings indicate that day care service was effective in reducing the caregiver burden of the elderly, however more day care service programs(elderly health management, rehabilitation...)will be added.

Citations

Citations to this article as recorded by  
  • The Long-term Care Utilization of the Elderly with Dementia, Stroke, and Multimorbidity in Korea
    Boyoung Jeon, Soonman Kwon, Hongsoo Kim
    Health Policy and Management.2013; 23(1): 90.     CrossRef
  • Factors Influencing the Quality of Life of Caregiver using Day Care Service
    Hyun Jeong No, Yeon Hee Choi
    Journal of East-West Nursing Research.2013; 19(1): 1.     CrossRef
  • 800 View
  • 1 Download
  • 2 Crossref
Close layer
Predictors of Depression among Family Caregivers of Older Adults with Dementia
Hae Jung Lee, Young Sook Kim, Ki Ryeon Kim, Ju Sung Kim, Ji Min Seo
Journal of Korean Academy of Nursing 2003;33(7):936-944.   Published online March 28, 2017
DOI: https://doi.org/10.4040/jkan.2003.33.7.936
AbstractAbstract PDF
Purpose

This study was to identify important predictors of depression among characteristics of caregiving situation and utilized resources in order to provide basic information for effective nursing interventions to reduce depression experienced by family caregivers of older adults with dementia.

Method

Seventy one family caregivers were identified from community service centers and face-to-face interviewed using structured questionnaires. Data were analyzed with descriptive statistics, Pearson correlation and hierarchical multiple regression using SPSS WIN 10.0 program.

Result

Family caregivers reported high levels of depression, moderate levels of social support, and moderate utilization of coping strategies. Female caregivers who (β=.22) utilized ‘negative’ coping strategies more often (β=.48) and ‘cognitive reconstructuring’ coping strategies less often (β=-.23) were more likely to report higher depression (R2=0.63).

Conclusion

Nursing interventions increasing family caregivers' utilization of positive coping strategies such as problem solving, existential growth, and help seeking and decreasing their utilization of negative coping strategies such as self-blaming are needed to decrease their depression levels.

Citations

Citations to this article as recorded by  
  • Effects of a Problem-Solving Program on Problem-Solving Ability, Self-Esteem, and Depression for Middle School Girls
    Hwa-Yoon Um, Haejung Lee, Yeonjung Lim
    Journal of Korean Academy of Psychiatric and Mental Health Nursing.2010; 19(3): 318.     CrossRef
  • Comparison in Care Burden, Fatigue, and Life Contentment of Caregivers by Gender Relationship with Demented Elders
    Young Whee Lee, In Sook Cho, Hwa Soon Kim
    Korean Journal of Women Health Nursing.2009; 15(3): 196.     CrossRef
  • Family Caregiver Burden by Relationship to Care Recipient with Dementia in Korea
    Gwi-Ryung Son Hong, Hyojeong Kim
    Geriatric Nursing.2008; 29(4): 267.     CrossRef
  • 726 View
  • 9 Download
  • 3 Crossref
Close layer
The Role of Social Support in the Relationship between Stress and Depression among Family Caregivers of Older Adults with Dementia
Hae Jung Lee, Ji Min Seo, Suk Hee Ahn
Journal of Korean Academy of Nursing 2003;33(6):713-721.   Published online March 28, 2017
DOI: https://doi.org/10.4040/jkan.2003.33.6.713
AbstractAbstract PDF
Purpose

This study was to determine the mediator or moderator role of social support in the relationship between stress and depression among family caregivers of older adults with dementia.

Method

Sixty nine family caregivers were randomly selected from health care centers in P city and a face-to-face interview was conducted using questionnaires from January to May of 2002. Data were analyzed with descriptive statistics, Pearson correlation, and hierarchical multiple regression using SPSS program.

Result

Family caregivers of older adults with higher dependency in ADLs and higher problematic behaviors, provided care to the older adults for a longer period of time, and perceived less social support reported higher depression. Social support showed mediating effects between stress and depression, while did not show moderating effects. Elderly dependency on ADLs and caregiving duration decreased perceived social support and decreased social support increased depression.

Conclusion

To increase family and social support to the caregivers of more functionally impaired elderly, family education to increase emotional support and physical assistance to the caregivers and broader and flexible application of social support such as increasing accessibility to the elderly daycare service with lower price may prove beneficial.

Citations

Citations to this article as recorded by  
  • Perceived Social Support and Well-Being: Mediation and Buffering of the Stress–Depression Link in Rural Older Adults
    Paul Alan Arkin Alvarado-García, Taniht Lisseth Cubas Romero, Lis Paola Reyes Sánchez, Valeria Alexxandra Sandoval Bocanegra, Marilú Roxana Soto-Vásquez
    Healthcare.2026; 14(3): 336.     CrossRef
  • Characteristics of Early Onset Dementia and Caring Experiences and Service Needs of Family Caregivers: A Mixed Methods Study
    Jin Ha Kim, Gyungjoo Lee
    Journal of Korean Academy of psychiatric and Mental Health Nursing.2023; 32(2): 101.     CrossRef
  • Association between Social Support and Depressive Symptoms in Informal Caregivers of Adult and Older Dependents: A Systematic Review and Meta-Analysis
    Belén Gutiérrez-Sánchez, Vasiliki Orgeta, Catalina López-Martínez, Rafael del-Pino-Casado
    Journal of Clinical Medicine.2023; 12(20): 6468.     CrossRef
  • Double child and elder care responsibilities and emotional exhaustion of an older sandwiched generation: The mediating effect of self-care
    Soo Jung Jang, Dayoung Song, Kyungheun Baek, Allison Zippay
    International Social Work.2021; 64(4): 611.     CrossRef
  • The effect of a comprehensive mobile application program (CMAP) for family caregivers of home‐dwelling patients with dementia: A preliminary research
    Eunsil Park, Heeok Park, Eun Kyung Kim
    Japan Journal of Nursing Science.2020;[Epub]     CrossRef
  • Depressive symptoms in individuals with family members requiring ADL assistance
    Junhyun Kwon, Eun-Cheol Park, Woorim Kim, Dong-Woo Choi, Sung-In Jang
    Environmental Health and Preventive Medicine.2019;[Epub]     CrossRef
  • File-up Stress, Family Hardiness and Mental Health Status in Family Caregivers Caring for Elderly Dementia 
    Kuem Sun Han, Hee Su Lim
    Korean Journal of Stress Research.2016; 24(4): 309.     CrossRef
  • Content Analysis of Hwa-byung Awareness in Middle-Aged Women
    Sun-Jung Park, Eun-Young Choi
    Journal of the Korea Academia-Industrial cooperation Society.2015; 16(2): 1304.     CrossRef
  • Overcoming Experiences of Family Members Caring for Elderly Patients with Dementia at Home
    Mi Ra Sung, Myungsun Yi, Dong Young Lee, Hye Young Jang
    Journal of Korean Academy of Nursing.2013; 43(3): 389.     CrossRef
  • Predictors of Korean Elderly People's Self-rated Health Status and Moderating Effects of Socio-Economic Position
    Mee Ae Lee, Dae Chul Kim
    The Korean Journal of Community Living Science.2013; 24(1): 37.     CrossRef
  • Validation of multidimensional scale of perceived social support in middle-aged Korean women with diabetes
    Hyunju Park, Tam Nguyen, Hyunjeong Park
    Asia Pacific Journal of Social Work and Development.2012; 22(3): 202.     CrossRef
  • A Study on The Relationships Between Job Stress, Social Support and Job Satisfaction of Taxi Drivers
    Eun-Seon Im, Soon-Hee Choi
    Journal of Korean Public Health Nursing.2012; 26(2): 195.     CrossRef
  • The Relationship among Perceived Entrapment, Depression and Subjective Well-being of Women as Family Caregivers Caring for Dementia Elderly
    Suk-Hee Cheon
    Korean Journal of Women Health Nursing.2011; 17(3): 285.     CrossRef
  • 1,150 View
  • 13 Download
  • 13 Crossref
Close layer
The Comparison of the Stress and Coping Methods of Cancer Patients and Their Caregivers
Hee Seung Kim
Journal of Korean Academy of Nursing 2003;33(5):538-543.   Published online March 28, 2017
DOI: https://doi.org/10.4040/jkan.2003.33.5.538
AbstractAbstract PDF
Purpose

The purpose of this study was to identify the stress and the coping methodes in the cancer patients and their caregivers.

Method

The stress method was measured by VAS(Visual Analogue Scale). The coping methodes was measured using the modified Ways of Coping Questionnaire. The phases of patient illness consisted of 1st(initial) stage, and 2nd(recurred) stage and 3rd(terminal) stage based on Lewandowski & Jones(1988) method. The data were collected by a survey of convenience sampling of 257 cancer patients and 196 of their caregivers from two hospitals in Seoul. The data were analyzed using paired t-test, unpaired t-test.

Result

The stress level of cancer patients was lower than their caregivers. The cancer patients used emotion-focused coping mode than problem-focused coping mode. The caregivers problem-focused coping mode over emotion-focused coping mode. In the problem-focused coping mode, the caregivers significantly used two coping strategies that were ‘positve cope’, ‘information seeking’ more than patients. In emotion-focused coping mode, the caregivers significantly used one coping strategies that was ‘wish’ more than patients. The patients tended to used two coping strategies that were ‘blame’ and ‘emotion expression’ more than the caregivers.

Conclusion

Further study needs to be done to positively identify these coping methods and develop interventions to assist patients and their caregivers.

Citations

Citations to this article as recorded by  
  • The Mediating Effect of Meaning in Life in the Relationship Stress Perceived by Adolescents and School Adjustment
    Jung-Soo KIM
    JOURNAL OF FISHRIES AND MARINE SCIENCES EDUCATION.2020; 32(1): 181.     CrossRef
  • Experiences of Distress among Family Caregivers of Hospitalized Cancer Patients
    Juhye Jin, Jin-Hee Yoo
    Korean Journal of Adult Nursing.2017; 29(5): 451.     CrossRef
  • Stress and Coping Strategies of Breast Cancer Patients and their Spouses
    Kyeong-Sook Cha, Yang-Sook Yoo, Ok-Hee Cho
    Asian Oncology Nursing.2012; 12(1): 20.     CrossRef
  • The Experiences of Prayer in Christian Patients with Breast Cancer
    Won Hee Lee, Ji Hyun Sung, Jung Eun Lee, Kyung Ah Kang
    Journal of Korean Oncology Nursing.2010; 10(2): 199.     CrossRef
  • Coping, Anxiety and Depression in Turkish Patients with Cancer
    Elanur Y. Karabulutlu, Mehmet Bilici, Kerim Çayır, Salim Başol Tekin, Ragibe Kantarcı
    Electronic Journal of General Medicine.2010; 7(3): 296.     CrossRef
  • 771 View
  • 6 Download
  • 5 Crossref
Close layer
Hermeneutic Phenomenological Study on Caring Experience of Spouses of Elderly People with Dementia at Home
Hye-Young Jang, Myungsun Yi
J Korean Acad Nurs 2017;47(3):367-379.   Published online January 15, 2017
DOI: https://doi.org/10.4040/jkan.2017.47.3.367
AbstractAbstract PDF
Abstract Purpose

This study aimed to understand and describe the caring experiences of spouses of elderly people with dementia.

Methods

The hermeneutic phenomenological method was used and participants were 12 spouses aged 65 and over who were taking care of their husbands or wives with dementia at home. Data were collected from individual in-depth interviews on participants’ actual caring experiences. Additionally, novels, movies, and memoirs on elderly couples with partner who had dementia were included as data for the analysis. The qualitative data analysis software program was used to manage and process the collected qualitative data. Data were analyzed using hermeneutic phenomenological analysis based on four fundamental existentials including lived body, lived space, lived time, and lived others.

Results

Five essential themes emerged from the analysis: 1) body moving like an old machine, 2) swamp of despair filling with hope, 3) sweet time after bitterness, 4) disappointed elderly couple in the empty nest, and 5) unappreciation vs. empathetic feelings. These essential themes were comprehensively summarized as “the road leading to the maturation of life with dedication and hope while bearing the weight of caring based on the couple's relationship.”

Conclusion

The findings indicate that the nature of the caring experience of spouses of elderly individuals with dementia is filled with many dynamic and paradoxical dimensions. Thus, results of the study would help with developing interventions tailored specifically for elderly spouse caregivers to support their role adaptation and ultimately improving their quality of life.

Citations

Citations to this article as recorded by  
  • Relationship between anxiety and fatigue in dementia family caregivers: hope as a mediator
    Jiin-Ling Jiang, Shing-Ling Chang, Ke-chieh Wang, Yu-Chin Ma
    BMC Nursing.2025;[Epub]     CrossRef
  • Self-care experiences of male spouses of people with dementia: a descriptive phenomenological study
    Sua Jung, Jun-Ah Song
    Aging & Mental Health.2025; 29(7): 1329.     CrossRef
  • Development of a Bayesian nomogram for predicting depression in family caregivers for dementia patients at home in South Korea
    Haewon Byeon
    Medicine.2025; 104(44): e45164.     CrossRef
  • A web-based care assistant for caregivers of the elderly: Development and pilot study
    Hwawoo Jeon, Yong Suk Choi, Yoonseob Lim
    DIGITAL HEALTH.2023;[Epub]     CrossRef
  • Predictors of Sleep Quality in Spouse Caregivers of Community-Dwelling People With Dementia Using Propensity Score Matching Analysis
    Hyeon Sik CHU, Hye-Young JANG
    Journal of Nursing Research.2023; 31(6): e299.     CrossRef
  • Barriers to Social Inclusion among Older Adults with Disabilities in Imo State, Nigeria: A Descriptive Phenomenological Inquiry
    Anthony Iwuagwu, Paulinus Okah, Chinwe Nnama-Okechukwu, Ngozi Chukwu, Agha Agha, Nkemdili Anazonwu, Chinyere Onalu, Uzoma Okoye
    Scandinavian Journal of Disability Research.2023; 25(1): 132.     CrossRef
  • Caring Experience of Spouse Caregivers of Persons with Alzheimer's Disease: A Qualitative Study
    Jin-Hee Lee, Gwi-Ryung Son Hong
    Journal of Korean Gerontological Nursing.2022; 24(3): 257.     CrossRef
  • Safety Accidents and Coping Experiences among Family Caregivers Caring for Community-Dwelling Persons Living with Dementia
    Ji Yeon Lee, Ha Rim Lee, Kyung Hee Lee
    Journal of Korean Gerontological Nursing.2021; 23(4): 352.     CrossRef
  • Dementia: How does spouse perceive it?
    Anung Ahadi Pradana, Junaiti Sahar, Henny Permatasari
    Enfermería Clínica.2021; 31: S16.     CrossRef
  • Predictors of Satisfaction with Care Services among Family Members of Older Adult Residents of Long-Term Care Facilities
    Eun-Ok Song, Hye-Young Jang
    International Journal of Environmental Research and Public Health.2020; 17(9): 3298.     CrossRef
  • Development and Validation of the Scale for Partnership in Care—for Family (SPIC-F)
    Hye-Young Jang, Eun-Ok Song
    International Journal of Environmental Research and Public Health.2020; 17(6): 1882.     CrossRef
  • Family Members’ Experience in Caring for Elderly with Dementia in Long-Term Care Hospitals
    Eun Kyoung Suh, Hye Ryoung Kim
    Journal of Korean Gerontological Nursing.2020; 22(4): 335.     CrossRef
  • Partnership between staff and family in long-term care facility: a hybrid concept analysis
    Hye-Young Jang
    International Journal of Qualitative Studies on Health and Well-being.2020; 15(1): 1801179.     CrossRef
  • Predictors of Health-related Quality of Life among Spouses of Older Adults with Dementia in the Community-dwelling
    Hye-Young Jang, Song Yi Han
    Journal of Korean Academy of Community Health Nursing.2019; 30(4): 518.     CrossRef
  • Empathy in Family Caregivers for Persons with Dementia: A Q Methodology Study
    Kim Hyojin, Song Jun-Ah
    Journal of Korean Gerontological Nursing.2017; 19(3): 214.     CrossRef
  • 2,213 View
  • 18 Download
  • 15 Crossref
Close layer
Effects of Home Care Services Use by Older Adults on Family Caregiver Distress
Jiyeon Kim, Hongsoo Kim
J Korean Acad Nurs 2016;46(6):836-847.   Published online December 30, 2016
DOI: https://doi.org/10.4040/jkan.2016.46.6.836
AbstractAbstract PDF
Purpose

The purpose of this study was to examine the association between utilization of home care services under the national long-term care insurance system and family caregiver distress.

Methods

A secondary data analysis was conducted in this study using data collected in 2011 and 2012 from the Korean version of International Resident Assessment Instrument (interRAI) Home Care assessment system. The study sample included 228 clients receiving community based home care and their family caregivers in Korea. Descriptive statistics, χ2 test, t-test, and Heckman selection model analysis were conducted using SAS 9.3.

Results

Presence of family caregiver distress was significantly associated with days of nurse visits (β=-.89, p=<.001) and home helper visits (β=-.53, p=.014). Level of caregiver distress was also significantly associated with days of nurse visits (β=-.66, p=.028). Other factors which were significantly associated with caregiver distress were depression, cognitive function, inadequate pain control, social support for older adult, and caregiver relationship to the older adult.

Conclusion

The results of this study show that visiting nurse service and appropriate support programs for Older Adults and family caregivers experiencing caregiver distress should be developed and provided to families based on the health care needs of older adults and their family caregivers for effective and sustainable home care.

Citations

Citations to this article as recorded by  
  • Career Disruption and Employment Status of Korean Family Caregivers of Older Adults Using Home-Based Care
    Minah Lee
    Nursing Reports.2024; 14(3): 1587.     CrossRef
  • Effect of perceived chronic illness management support, health literacy, and social support on the care burden of families caring for older people with multiple chronic conditions at home: A cross-sectional study
    Eun Sil Lee, Mi Young Kim
    Journal of Korean Gerontological Nursing.2023; 25(1): 76.     CrossRef
  • Korean primary health care program for people with disabilities: do they really want home-based primary care?
    Hye-Jin Kim, Jae-Young Lim, Soong-Nang Jang
    BMC Health Services Research.2023;[Epub]     CrossRef
  • Use of Home Care Services Reduces Care-Related Strain in Long-Distance Caregivers
    Francesca B Falzarano, Verena Cimarolli, Kathrin Boerner, Karen L Siedlecki, Amy Horowitz, Suzanne Meeks
    The Gerontologist.2022; 62(2): 252.     CrossRef
  • Comparing the Needs of Family Caregivers and Program Providers in Long-Term Care in Terms of Family Support Program
    Myonghwa Park, Younghye Go, Miri Jeong, Eun-Jeong Han
    Korean Journal of Adult Nursing.2019; 31(1): 14.     CrossRef
  • Development and Application of Cost Management Program for Visiting Nursing Centers Using Time-Driven Activity-Based Costing
    Juhang Kim, Ji Young Lim
    Journal of Korean Academy of Nursing.2019; 49(5): 586.     CrossRef
  • 1,507 View
  • 10 Download
  • 6 Crossref
Close layer
A Prediction Model for Unmet Needs of Elders with Dementia and Caregiving Experiences of Family Caregivers
Sora Choi, Myonghwa Park
J Korean Acad Nurs 2016;46(5):663-674.   Published online October 31, 2016
DOI: https://doi.org/10.4040/jkan.2016.46.5.663
AbstractAbstract PDF
Purpose

The purposes of this study were to develop and test a prediction model for caregiving experiences including caregiving satisfaction and burden in dementia family caregivers.

Methods

The stress process model and a two factor model were used as the conceptual frameworks. Secondary data analysis was done with 320 family caregivers who were selected from the Seoul Dementia Management Survey (2014) data set. In the hypothesis model, the exogenous variable was patient symptomatology which included cognitive impairment, behavioral problems, dependency in activity of daily living and in instrumental activity of daily living. Endogenous variables were caregiver's perception of dementia patient's unmet needs, caregiving satisfaction and caregiving burden. Data were analysed using SPSS/WINdows and AMOS program.

Results

Caregiving burden was explained by patient symptomatology and caregiving satisfaction indicating significant direct effects and significant indirect effect from unmet needs. The proposed model explained 37.8% of the variance. Caregiving satisfaction was explained by patient symptomatology and unmet needs. Mediating effect of unmet needs was significant in the relationship between patient symptomatology and caregiving satisfaction.

Conclusion

Results indicate that interventions focusing on relieving caregiving burden and enhancing caregiver satisfaction should be provided to caregivers with high levels of dementia patients' unmet needs and low level of caregiving satisfaction.

Citations

Citations to this article as recorded by  
  • Experiences of Family Caregivers Utilizing Care Support of Dementia Center
    Chun-Gill Kim, Myung Soon Kwon, Young Hee Lee
    Korean Journal of Adult Nursing.2018; 30(3): 314.     CrossRef
  • 1,009 View
  • 5 Download
  • 1 Crossref
Close layer
The Effect of Patient-centered CPR Education for Family Caregivers of Patients with Cardiovascular Diseases
Hyun Sun Kim, Hyun-Jin Kim, Eunyoung E. Suh
J Korean Acad Nurs 2016;46(3):463-474.   Published online June 30, 2016
DOI: https://doi.org/10.4040/jkan.2016.46.3.463
AbstractAbstract PDF
Purpose

For cardiovascular patients, family caregivers play a vital role in daily nursing and cardiac emergencies. This study aimed to evaluate the effect of patient-centered CPR education (PCE) for family caregivers of patients with cardiovascular diseases.

Methods

Fifty-four participants were randomly assigned to the PCE or control group. The PCE group received tailored counseling on overall cardiovascular disease information and CPR followed by interactive instructor-guided CPR training and re-education follow-up by telephone 2 weeks later. The control group received only video-based CPR self-education and booklets. Cardiovascular disease and CPR knowledge and self-efficacy were measured before (pre-test), immediately after (post-test 1), and 4 weeks after the PCE (post-test 2). CPR skills and performance were measured pre-test and at post-test1.

Results

The PCE group demonstrated significant improvements in knowledge (F=91.09, p<.001), self-efficacy (F=15.19, p<.001) and CPR skills and performance (F=8.10, p=.008), as well as significant differences over time (knowledge: F=364.25, p<.001; self-efficacy: F=1162.28, p<.001; CPR skills and performance: F=1798.81, p<.001). There were significant group-by-time interactions for knowledge (F=8.10, p=.001), self-efficacy (F=4.30, p=.019) and CPR skills and performance (F=4.81, p=.036) by repeated measures ANOVA.

Conclusion

This is the first study to demonstrate the effects of a patient-centered intervention with CPR education tailored for patients' and family caregivers' preferences, needs, and lifestyles. The results of this study encourage the use of tailored, patient-centered interventions in cardiovascular nursing practice.

Citations

Citations to this article as recorded by  
  • Mastering the Art of Caregiving: Instructional Approaches to Teaching Healthcare‐Related Procedural Skills to Informal Caregivers—An Integrative Review
    An Ling Siew, Esther Yin Hui Chew, Ee‐Yuee Chan, Elaine Kee Chen Siow
    Journal of Advanced Nursing.2026; 82(1): 272.     CrossRef
  • Effect of tailored cardiopulmonary resuscitation training for middle-aged and older adults with visual impairment: A cluster-randomized controlled trial
    Eunjin Yang, Kyung Hee Lee, Youngshin Joo
    Disability and Health Journal.2025; 18(4): 101909.     CrossRef
  • Basic life support training targeted to family members or carers of those at high-risk of out-of-hospital cardiac arrest: a systematic review
    Zakary Doherty, Janet E. Bray, Judith Finn, Susie Cartledge
    Resuscitation Plus.2025; 25: 101031.     CrossRef
  • Education, Implementation, and Teams: 2025 International Liaison Committee on Resuscitation Consensus on Science With Treatment Recommendations
    Robert Greif, Adam Cheng, Cristian Abelairas-Gómez, Katherine S. Allan, Jan Breckwoldt, Andrea Cortegiani, Aaron J. Donoghue, Kathryn J. Eastwood, Barbara Farquharson, Ming-Ju Hsieh, Tracy Kidd, Ying-Chih Ko, Kasper G. Lauridsen, Yiqun Lin, Andrew S. Lock
    Circulation.2025;[Epub]     CrossRef
  • Education, Implementation, and Teams: 2025 International Liaison Committee on Resuscitation Consensus on Science With Treatment Recommendations
    Robert Greif, Adam Cheng, Cristian Abelairas-Gómez, Katherine S. Allan, Jan Breckwoldt, Andrea Cortegiani, Aaron J. Donoghue, Kathryn J. Eastwood, Barbara Farquharson, Ming-Ju Hsieh, Tracy Kidd, Ying-Chih Ko, Kasper G. Lauridsen, Yiqun Lin, Andrew S. Lock
    Resuscitation.2025; 215: 110807.     CrossRef
  • 2022 International Consensus on Cardiopulmonary Resuscitation and Emergency Cardiovascular Care Science With Treatment Recommendations: Summary From the Basic Life Support; Advanced Life Support; Pediatric Life Support; Neonatal Life Support; Education, I
    Myra H. Wyckoff, Robert Greif, Peter T. Morley, Kee-Chong Ng, Theresa M. Olasveengen, Eunice M. Singletary, Jasmeet Soar, Adam Cheng, Ian R. Drennan, Helen G. Liley, Barnaby R. Scholefield, Michael A. Smyth, Michelle Welsford, David A. Zideman, Jason Acwo
    Pediatrics.2023;[Epub]     CrossRef
  • Expert opinion on evidence after the 2020 Korean Cardiopulmonary Resuscitation Guidelines: a secondary publication
    Sung Phil Chung, Youdong Sohn, Jisook Lee, Youngsuk Cho, Kyoung-Chul Cha, Ju Sun Heo, Ai-Rhan Ellen Kim, Jae Guk Kim, Han-Suk Kim, Hyungoo Shin, Chiwon Ahn, Ho Geol Woo, Byung Kook Lee, Yong Soo Jang, Yu Hyeon Choi, Sung Oh Hwang
    Clinical and Experimental Emergency Medicine.2023; 10(4): 382.     CrossRef
  • Application of the Modified Basic Life Support Training Model in Improving Community Residents’ Rescue Willingness in Nantong City in China
    Yu-Fei Qian, Yu-Qin Ren, Li Wang, Rong-Qian Sun, Dan-Feng Li, Samar Tharwat
    International Journal of Clinical Practice.2022;[Epub]     CrossRef
  • 2021 International Consensus on Cardiopulmonary Resuscitation and Emergency Cardiovascular Care Science With Treatment Recommendations: Summary From the Basic Life Support; Advanced Life Support; Neonatal Life Support; Education, Implementation, and Teams
    Myra H. Wyckoff, Eunice M. Singletary, Jasmeet Soar, Theresa M. Olasveengen, Robert Greif, Helen G. Liley, David Zideman, Farhan Bhanji, Lars W. Andersen, Suzanne R. Avis, Khalid Aziz, Jason C. Bendall, David C. Berry, Vere Borra, Bernd W. Böttiger, Richa
    Circulation.2022;[Epub]     CrossRef
  • 2022 International Consensus on Cardiopulmonary Resuscitation and Emergency Cardiovascular Care Science With Treatment Recommendations: Summary From the Basic Life Support; Advanced Life Support; Pediatric Life Support; Neonatal Life Support; Education, I
    Myra H. Wyckoff, Robert Greif, Peter T. Morley, Kee-Chong Ng, Theresa M. Olasveengen, Eunice M. Singletary, Jasmeet Soar, Adam Cheng, Ian R. Drennan, Helen G. Liley, Barnaby R. Scholefield, Michael A. Smyth, Michelle Welsford, David A. Zideman, Jason Acwo
    Resuscitation.2022; 181: 208.     CrossRef
  • 2022 International Consensus on Cardiopulmonary Resuscitation and Emergency Cardiovascular Care Science With Treatment Recommendations: Summary From the Basic Life Support; Advanced Life Support; Pediatric Life Support; Neonatal Life Support; Education, I
    Myra H. Wyckoff, Robert Greif, Peter T. Morley, Kee-Chong Ng, Theresa M. Olasveengen, Eunice M. Singletary, Jasmeet Soar, Adam Cheng, Ian R. Drennan, Helen G. Liley, Barnaby R. Scholefield, Michael A. Smyth, Michelle Welsford, David A. Zideman, Jason Acwo
    Circulation.2022;[Epub]     CrossRef
  • Clinicians for CARE: A Systematic Review and Meta‐Analysis of Interventions to Support Caregivers of Patients With Heart Disease
    Kellen A. Knowles, Helen Xun, Sunyoung Jang, Sharon Pang, Charles Ng, Apurva Sharma, Erin M. Spaulding, Rohanit Singh, Alaa Diab, Ngozi Osuji, Joshua Materi, Danielle Amundsen, Shannon Wongvibulsin, Daniel Weng, Pauline Huynh, Julie Nanavati, Jennifer Wol
    Journal of the American Heart Association.2021;[Epub]     CrossRef
  • Effectiveness of the Family and Friends CPR course in learning cardiopulmonary resuscitation in relatives of patients with high cardiovascular risk or who have suffered a cardiovascular event
    Bruno Enzo Vargas-Sánchez, Miluska Madeleine Salazar-Arteaga, Aida Del Carmen Rotta-Rotta, Roy Germán Dueñas-Carbajal
    Iberoamerican Journal of Medicine.2021; 3(4): 307.     CrossRef
  • 2021 International Consensus on Cardiopulmonary Resuscitation and Emergency Cardiovascular Care Science With Treatment Recommendations
    Myra H. Wyckoff, Eunice M. Singletary, Jasmeet Soar, Theresa M. Olasveengen, Robert Greif, Helen G. Liley, David Zideman, Farhan Bhanji, Lars W. Andersen, Suzanne R. Avis, Khalid Aziz, Jason C. Bendall, David C. Berry, Vere Borra, Bernd W. Böttiger, Richa
    Resuscitation.2021; 169: 229.     CrossRef
  • The impact of bystander cardiopulmonary resuscitation on patients with out-of-hospital cardiac arrests
    Fang-Yu Liou, Kun-Chang Lin, Chian-Shiu Chien, Wan-Ting Hung, Yi-Ying Lin, Yi-Ping Yang, Wei-Yi Lai, Tzu-Wei Lin, Shu-Hung Kuo, Wei-Chun Huang
    Journal of the Chinese Medical Association.2021; 84(12): 1078.     CrossRef
  • Formación de población adulta lega en soporte vital básico. Una revisión sistemática
    Violeta González-Salvado, Emilio Rodríguez-Ruiz, Cristian Abelairas-Gómez, Alberto Ruano-Raviña, Carlos Peña-Gil, José Ramón González-Juanatey, Antonio Rodríguez-Núñez
    Revista Española de Cardiología.2020; 73(1): 53.     CrossRef
  • Training adult laypeople in basic life support. A systematic review
    Violeta González-Salvado, Emilio Rodríguez-Ruiz, Cristian Abelairas-Gómez, Alberto Ruano-Raviña, Carlos Peña-Gil, José Ramón González-Juanatey, Antonio Rodríguez-Núñez
    Revista Española de Cardiología (English Edition).2020; 73(1): 53.     CrossRef
  • Targeting relatives: Impact of a cardiac rehabilitation programme including basic life support training on their skills and attitudes
    Violeta González-Salvado, Cristian Abelairas-Gómez, Francisco Gude, Carlos Peña-Gil, Carmen Neiro-Rey, José Ramón González-Juanatey, Antonio Rodríguez-Núñez
    European Journal of Preventive Cardiology.2019; 26(8): 795.     CrossRef
  • 1,871 View
  • 38 Download
  • 18 Crossref
Close layer
Invited Article
Psychological and Physical Health in Family Caregivers of Intensive Care Unit Survivors: Current Knowledge and Future Research Strategies
JiYeon Choi, Michael P. Donahoe, Leslie A. Hoffman
J Korean Acad Nurs 2016;46(2):159-167.   Published online April 29, 2016
DOI: https://doi.org/10.4040/jkan.2016.46.2.159
AbstractAbstract PDF
Purpose

This article provides an overview of current knowledge on the impact of caregiving on the psychological and physical health of family caregivers of intensive care unit (ICU) survivors and suggestions for future research.

Methods

Review of selected papers published in English between January 2000 and October 2015 reporting psychological and physical health outcomes in family caregivers of ICU survivors.

Results

In family caregivers of ICU survivors followed up to five years after patients' discharge from an ICU, psychological symptoms, manifested as depression, anxiety and post-traumatic stress disorder, were highly prevalent. Poor self-care, sleep disturbances and fatigue were identified as common physical health problems in family caregivers. Studies to date are mainly descriptive; few interventions have targeted family caregivers. Further, studies that elicit unique needs of families from diverse cultures are lacking.

Conclusion

Studies to date have described the impact of caregiving on the psychological and physical health in family caregivers of ICU survivors. Few studies have tested interventions to support unique needs in this population. Therefore, evidence for best strategies is lacking. Future research is needed to identify ICU caregivers at greatest risk for distress, time points to target interventions with maximal efficacy, needs of those from diverse cultures and test interventions to mitigate family caregivers' burden.

Citations

Citations to this article as recorded by  
  • Effect of diary intervention on sleep quality and risk of stress disorders among critically ill children in pediatric intensive care units and on their parents’ anxiety level: A randomized controlled trial
    Yingshuang He, Yuhong Zhang, Huining Xin, Jinling Lin, Shuting Lin, Sijia Li, Xiao Cheng, Guihua Liu, Jinhua Liao
    Intensive and Critical Care Nursing.2026; 93: 104315.     CrossRef
  • The Caregiver Pathway Intervention Can Contribute to Reduced Post-Intensive Care Syndrome Among Family Caregivers of ICU Survivors: A Randomized Controlled Trial
    Solbjørg Watland, Lise Solberg Nes, Øivind Ekeberg, Morten Rostrup, Elizabeth Hanson, Mirjam Ekstedt, Una Stenberg, Milada Hagen, Elin Børøsund
    Critical Care Medicine.2025; 53(3): e555.     CrossRef
  • Interventions for adult survivors discharged from the intensive care unit: a scoping review
    Tong Wu, Fanghong Yan, Guoli Zhang, Rongrong Zhao, Guotian Peng, Ruiyi Sun, Yuxia Ma, Lin Han, Jinping Liu
    BMJ Open.2025; 15(8): e096634.     CrossRef
  • Mirror Emotions: A Cross‐Sectional Study of How Patients' Stress, Anxiety and Depression in Critical Care Settings Shape Family Caregivers' Emotional Distress
    Asma Alhasani, Zainab Al Kindi, Omar Al Omari, Sulaiman Al Sabei, Hala Mohamed Sanad, Fawwaz Alaloul, Huda Al‐Noumani, Zakariya Al‐Naamani, Mohammad Al Qadire, Mohammed ALBashtawy, Abdullah Alkhawaldeh
    Nursing in Critical Care.2025;[Epub]     CrossRef
  • Families’ Experiences Making Decisions across Time and Settings in Chronic Critical Illness
    Amanda C. Moale, Chareeni E. Kurukulasuriya, Mikhaila N. Layshock, Svea Cheng, Robert M. Arnold, Renee D. Boss, Bryan J. McVerry, Douglas B. White, Judy C. Chang
    Annals of the American Thoracic Society.2025; 22(10): 1539.     CrossRef
  • Family Satisfaction of Polytrauma Patients in Intensive Care Unit at a Tertiary Care Center
    Vipin K Singh , Azin Ahmad, Vaibhav Jaiswal
    Cureus.2024;[Epub]     CrossRef
  • Does gender moderate resiliency variables and posttraumatic stress symptoms in informal caregivers of neurocritical care patients? An exploratory study
    Melissa V. Gates, Ethan G. Lester, Mira Reichman, Ilyssa H. Silverman, Ann Lin, Ana-Maria Vranceanu
    Psychology, Health & Medicine.2024; 29(1): 22.     CrossRef
  • Novel Definitions of Wellness and Distress among Family Caregivers of Patients with Acute Cardiorespiratory Failure: A Qualitative Study
    Blair Wendlandt, Torrie Edwards, Sherick Hughes, Bradley N. Gaynes, Shannon S. Carson, Laura C. Hanson, Mark Toles
    Annals of the American Thoracic Society.2024; 21(5): 782.     CrossRef
  • Integrating Perspectives on Family Caregiving After Critical Illness: A Qualitative Content Analysis
    Amanda C. Moale, Erica M. Motter, Peter Eisenhauer, Nimit Gandhi, S. Peter Kim, Tim D. Girard, Charles F. Reynolds, Natalie E. Leland, Judy C. Chang, Leslie P. Scheunemann
    American Journal of Critical Care.2024; 33(3): 180.     CrossRef
  • Posttraumatic Stress Symptom Trajectories in Family Caregivers of Patients With Acute Cardiorespiratory Failure
    Blair Wendlandt, Liam Pongracz, Feng-Chang Lin, Mark Toles, Bradley N. Gaynes, Laura C. Hanson, Shannon S. Carson
    JAMA Network Open.2023; 6(4): e237448.     CrossRef
  • The Caregiver Pathway, a Model for the Systematic and Individualized Follow-up of Family Caregivers at Intensive Care Units: Development Study
    Solbjørg Watland, Lise Solberg Nes, Elizabeth Hanson, Mirjam Ekstedt, Una Stenberg, Elin Børøsund
    JMIR Formative Research.2023; 7: e46299.     CrossRef
  • Exploring Psychosocial Concerns and Needs of Ventilator and Nonventilator Caregivers in the Emergency and Trauma Care Setting
    Tiruchengode R. Kanmani, Birudu Raju, Srikanth Pallerla, Pallavi Mech, Annmary Jacob, Suffi Makkar
    Journal of Health and Allied Sciences NU.2023; 13(02): 212.     CrossRef
  • Chronic illness and critical care—A qualitative exploration of family experience and need
    Geraldine O'Gara, Theresa Wiseman, Anne‐Marie Doyle, Natalie Pattison
    Nursing in Critical Care.2023; 28(4): 574.     CrossRef
  • Sleep Disturbances among Caregivers of Home-Isolated and Hospitalized COVID-19 Patients: A Multi-National Cross-Sectional Study
    Nafisa Turabi, Shashi Prabha Tomar, Onyekachi E. Anyagwa, Hanusha Durganaudu, V Ishwarya, Husam Kivan, Magdalena M. Kras, Paraskevi Samouti, Eman Khaled, N Nishitha Ramesh, Amruth S. Krishnegowda, Moshi Moshi Shabani, Miguel A. Palacios-Garay, Fernanda Am
    Indian Journal of Community Medicine.2023; 48(5): 676.     CrossRef
  • Relationships among Demographic, Clinical, and Psychological Factors Associated with Family Caregiver Readiness to Participate in Intensive Care Unit Care
    Breanna D. Hetland, Natalie S. McAndrew, Kevin A. Kupzyk, Dustin C. Krutsinger, Alison E. Turnbull, Bunny J. Pozehl, Jennifer M. Heusinkvelt
    Annals of the American Thoracic Society.2022; 19(11): 1881.     CrossRef
  • Family Caregiver Preferences and Contributions Related to Patient Care in the ICU
    Breanna D. Hetland, Natalie S. McAndrew, Kevin A. Kupzyk, Dustin C. Krutsinger, Bunny J. Pozehl, Jennifer M. Heusinkvelt, Courtney E. Camenzind
    Western Journal of Nursing Research.2022; 44(3): 214.     CrossRef
  • Psychological Attachment Orientation and Long-Term Posttraumatic Stress Symptoms Among Family Members of ICU Patients
    Qiang Zhang, Andrea K. Knies, Jolanta Pach, Tara Kimbrough, Aida Martinez, Prerak Juthani, Stephanie Tu, Joan K. Monin, Ana-Maria Vranceanu, David Y. Hwang
    Critical Care Explorations.2022; 4(9): e0753.     CrossRef
  • The effect of short music videos on needs satisfaction and separation anxiety of children's family members during COVID-19: The example of TikTok
    Ya-Li Huang, Yu-Kun Chen, Shi-Hao Lin, Hua Cao, Qiang Chen
    Frontiers in Pediatrics.2022;[Epub]     CrossRef
  • Interpreting the lived experiences of home caregivers in the families of patients with COVID-19 in Iran: a phenomenological study
    Masumeh Akbarbegloo, Mahnaz Sanaeefar
    International Journal for Quality in Health Care.2022;[Epub]     CrossRef
  • Experiences of family caregivers of patients with COVID-19
    Tahereh Rahimi, Neda Dastyar, Foozieh Rafati
    BMC Family Practice.2021;[Epub]     CrossRef
  • Music experience is associated with lower depression level and higher quality of life among family caregivers of critically ill patients
    Ga Eul Yoo, Jeongmin Kim, Da In Choi, Myung Sun Yeo, Soo Ji Kim, Sungwon Na
    Psychology of Music.2021; 49(4): 901.     CrossRef
  • Posttraumatic Stress Disorder Symptom Trajectories in ICU Family Caregivers
    Blair Wendlandt, Yi Tang Chen, Feng-Chang Lin, Mark Toles, Bradley Gaynes, Laura Hanson, Shannon Carson
    Critical Care Explorations.2021; 3(4): e0409.     CrossRef
  • Challenges Experienced by Family Caregivers of the Adult Intensive Care Unit Patients in Korea: An Integrative Review
    JiYeon Choi, Judith A. Tate, Youn-Jung Son
    Clinical Nursing Research.2021; 30(4): 423.     CrossRef
  • Experiencias de pacientes con discapacidades funcionales posteriores al tratamiento en la Unidad de Cuidados Intensivos
    Camila Zucato da Silva, Claudinei José Gomes Campos , Michelle Ferraz Martins Jamarim , Gerusa Marcondes Pimentel de Abreu Lima
    Revista Cuidarte.2020;[Epub]     CrossRef
  • Family intensive care unit syndrome: An integrative review
    Yaser Saeid, MohammadMahdi Salaree, Abbas Ebadi, SeyedTayeb Moradian
    Iranian Journal of Nursing and Midwifery Research.2020; 25(5): 361.     CrossRef
  • Review: Post-Intensive Care Syndrome: Unique Challenges in the Neurointensive Care Unit
    Jamie Nicole LaBuzetta, Jonathan Rosand, Ana-Maria Vranceanu
    Neurocritical Care.2019; 31(3): 534.     CrossRef
  • Family members' satisfaction with care and decision‐making in intensive care units and post‐stay follow‐up needs—a cross‐sectional survey study
    Gro Frivold, Åshild Slettebø, Daren K Heyland, Bjørg Dale
    Nursing Open.2018; 5(1): 6.     CrossRef
  • The Post-ICU Clinic: Implications for Critical Care Medicine and the Health Care System
    Karen A. Korzick, A. Joseph Layon
    ASA Monitor.2017; 81(11): 10.     CrossRef
  • Quality of Life and Related Factors Among Patients Discharged from Critical Care Units
    Azita Zaheri, Zohre Sadat, Mohamad Abasian, Leila Ghanbari Afra, Mohamad Abdi, Koroosh Joodaki, Masoumeh Sadat Mousavi Sarcheshmeh
    Journal of Critical Care Nursing .2017;[Epub]     CrossRef
  • 2,644 View
  • 29 Download
  • 29 Crossref
Close layer
Original Article
Development of a Measurement Instrument for Parenting Behavior of Primary Caregivers in Early Childhood
Sun-Jung Park, Kyung-Ah Kang
J Korean Acad Nurs 2015;45(5):650-660.   Published online October 30, 2015
DOI: https://doi.org/10.4040/jkan.2015.45.5.650
AbstractAbstract PDF
Purpose

The purpose of this study was to develop an instrument to measure the parenting behavior of primary caregivers of children in early childhood.

Methods

An instrument was developed according to Devellis's instrument development process. The participants in this study who completed the main survey were 370 mothers and grandmothers. The survey was conducted from June 1 to July 30, 2014, and collected data were analyzed using item analysis, half-split reliability and Cronbach's α coefficient, exploratory and confirmatory factor analysis, convergent validity.

Results

The factor structure of the instrument showed the cumulative variance as 55.7% in the factor analysis. As a result of a confirmatory factor analysis, a four-factor structure was found to be appropriate, and the construct validity and convergent validity of the instrument were thereby confirmed. The finalized parenting behavior instrument consisted of 26 items and four independent factors: affectionate, laissez-faire, educational and impulsive. A five-point Likert scale was employed, and a higher score in a particular factor showed that most of the behaviors belonged to the factor.

Conclusion

The instrument developed in this study was found to be reliable and valid, and can be used to develop parent-child relationship building.

Citations

Citations to this article as recorded by  
  • Maternal identity measurement based on the experiences of mothers with infants: a methodological study
    Sun jung Park, Eun young Choi
    Women's Health Nursing.2025; 31(1): 46.     CrossRef
  • Research trends over 10 years (2010-2021) in infant and toddler rearing behavior by family caregivers in South Korea: text network and topic modeling
    In-Hye Song, Kyung-Ah Kang
    Child Health Nursing Research.2023; 29(3): 182.     CrossRef
  • Reliability and Validity of Korean Version of the Child Abuse Potential Inventory
    Sona Lee, Hye Young Ahn
    Child Health Nursing Research.2019; 25(2): 85.     CrossRef
  • Motherhood Ideology and Parenting Stress according to Parenting Behavior Patterns of Married Immigrant Women with Young Children
    So-Hyun Moon, Miok Kim, Hyeun Na
    Journal of Korean Academy of Nursing.2019; 49(4): 449.     CrossRef
  • 1,073 View
  • 5 Download
  • 4 Crossref
Close layer
Review Article
Effects of Family Support Programs for Caregivers of People with Dementia - Caregiving Burden, Depression, and Stress: Systematic Review and Meta-analysis
Seyeon Park, Myonghwa Park
J Korean Acad Nurs 2015;45(5):627-640.   Published online October 15, 2015
DOI: https://doi.org/10.4040/jkan.2015.45.5.627
AbstractAbstract PDF
Abstract Purpose

The objective of this systematic review was to assess the effects of family support programs on caregiving burden, depression, and stress in family caregivers of people with dementia.

Methods

A literature search was conducted of electronic databases to identify randomized controlled studies with family support programs done between 2000 and 2014. Studies published in English and/or Korean were included for the analysis with search strategies adapted from the Cochrane Dementia and Cognitive Improvement Group. Studies were rated for quality assessment by two independent reviewers using the appraisal checklist developed by Cochrane Reviews and Dissemination. Of 8,334 articles identified in the literature search, full texts of 76 articles that met the inclusion criteria were reviewed and 38 were found to include relevant outcomes.

Results

Results from selected studies were pooled in statistical meta-analysis using Review Manager Software and heterogeneity between combined studies was assessed using the Chi-square test. Meta-analysis showed that the effect sizes of family caregiver support programs were small to medium for categories of caregiving burden (Hedge's g= - 0.17, 95% CI= - 0.30~ - 0.04), depression (Hedge's g= - 0.30, 95% CI= - 0.40~ - 0.20), and stress (Hedge's g= - 0.39, 95% CI= - 0.52~ - 0.25).

Conclusion

The review results indicate that a support programs can assist family care-givers in reducing their psycho-emotional distress.

Citations

Citations to this article as recorded by  
  • Impact of the presence of a family member with dementia on the prevalence of depression: a comparison based on household income level
    Min Hui Moon, Suk Woong Kang, Min Hyeok Choi
    International Journal for Equity in Health.2024;[Epub]     CrossRef
  • Evaluation of the Reitman Centre CARERS program for supporting dementia family caregivers: a pre–post intervention study
    Joel Sadavoy, Sima Sajedinejad, Mary Chiu
    International Psychogeriatrics.2022; 34(9): 827.     CrossRef
  • Caregiver Burden among Caregivers of Patients with Mental Illness: A Systematic Review and Meta-Analysis
    Choy Qing Cham, Norhayati Ibrahim, Ching Sin Siau, Clarisse Roswini Kalaman, Meng Chuan Ho, Amira Najiha Yahya, Uma Visvalingam, Samsilah Roslan, Fairuz Nazri Abd Rahman, Kai Wei Lee
    Healthcare.2022; 10(12): 2423.     CrossRef
  • Evaluating the Effectiveness of Community-Based Dementia Caregiver Intervention on Caregiving Burden, Depression, and Attitude Toward Dementia: A Quasi‐experimental Study
    Su Jung Lee, Hyun-Ju Seo, IL Han Choo, Seong Min Kim, Jeong Min Park, Eun-Young Yang, Yu Mi Choi
    Clinical Interventions in Aging.2022; Volume 17: 937.     CrossRef
  • Loss and Grief in the Context of Dementia Caregiving
    Olimpia Paun, Dimitra Loukissa, Marianne G. Chirica, Horace M. Nowell
    Journal of Psychosocial Nursing and Mental Health Services.2022; 60(10): 7.     CrossRef
  • Korean Family Caregivers' Experiences With Managing Behavioral and Psychological Symptoms of Dementia: Keeping Harmony in Daily Life
    Jiyeon Kim, Jun-Ah Song, Sua Jung, Hongjin Cheon, Jiyeon Kim
    Research in Gerontological Nursing.2022; 15(3): 141.     CrossRef
  • Health Promotion Behavior among Older Korean Family Caregivers of People with Dementia
    Aram Cho, Chiyoung Cha
    International Journal of Environmental Research and Public Health.2021; 18(8): 4123.     CrossRef
  • A systematic review of interventions for family caregivers of the elderly with dementia in Korea
    Seonghee Jeong, Jeonghae Hwang, Doonam Oh
    The Journal of Korean Academic Society of Nursing Education.2021; 27(3): 306.     CrossRef
  • An empowerment program for family caregivers of people with dementia
    Heun Keung Yoon, Gwang Suk Kim
    Public Health Nursing.2020; 37(2): 222.     CrossRef
  • Horticultural Therapy Programs Enhancing Quality of Life and Reducing Depression and Burden for Caregivers of Elderly with Dementia
    Yong Hyun Kim, Chul Soo Park, Hwa-Ok Bae, Eun Ji Lim, Kyung Heui Kang, Euy Sun Lee, Su Hyeon Jo, Moo Ryong Huh
    Journal of People, Plants, and Environment.2020; 23(3): 305.     CrossRef
  • An Exploratory Study of the Research on Caregiver Depression: Using Bibliometrics and LDA Topic Modeling
    Soyoung Choi, JooYoung Seo
    Issues in Mental Health Nursing.2020; 41(7): 592.     CrossRef
  • The Effects of a Support Program for Family Caregivers of Elderly with Dementia on Empowerment and Attitudes toward Dementia
    So Yoon Kim, Seonghee Jeong
    Journal of Korean Academic Society of Nursing Education.2019; 25(1): 103.     CrossRef
  • Behavioural Changes in Dementia and their Impact on Professional Caregivers: A Grounded Theory Approach
    Katie Appleton, Antonina Pereira
    Dementia.2019; 18(4): 1479.     CrossRef
  • The Effects of Group Occupational Therapy Including Education Programs on Depression, Anxiety, and Participation of Activities in People With Dementia
    Min-Joo Ham, Hee Kim
    Journal of Korean Society of Occupational Therapy.2018; 26(4): 97.     CrossRef
  • Shifting of Centricity: Qualitative Meta Synthetic Approach on Caring Experience of Family Members of Patients with Dementia
    Young Mi Ryu, Mi Yu, Seieun Oh, Haeyoung Lee, Haejin Kim
    Journal of Korean Academy of Nursing.2018; 48(5): 601.     CrossRef
  • Effects of a Dementia Family Education Program for Dementia Recognition, Burden, and Depression in Caregivers of Elders with Dementia
    Sun-A Lee, Hee-Sook Kim
    Journal of Korean Academy of Psychiatric and Mental Health Nursing.2017; 26(1): 14.     CrossRef
  • Hermeneutic Phenomenological Study on Caring Experience of Spouses of Elderly People with Dementia at Home
    Hye-Young Jang, Myungsun Yi
    Journal of Korean Academy of Nursing.2017; 47(3): 367.     CrossRef
  • The voices of family caregivers of seniors with chronic conditions: a window into their experience using a qualitative design
    Suzette Brémault-Phillips, Jasneet Parmar, Melissa Johnson, Arlene Huhn, Anna Mann, Victoria Tian, Lori-Ann R. Sacrey
    SpringerPlus.2016;[Epub]     CrossRef
  • Conceptualization of an evidence-based smartphone innovation for caregivers and persons living with dementia
    Melvyn W.B. Zhang, Sally Chan, Olivia Wynne, Sarah Jeong, Sharyn Hunter, Amada Wilson, Roger C.M. Ho
    Technology and Health Care.2016; 24(5): 769.     CrossRef
  • Factors Influencing Caregiving Satisfaction among Family Caregivers of Patients with Dementia
    Yunhee Lee, Myonghwa Park
    Journal of Korean Gerontological Nursing.2016; 18(3): 117.     CrossRef
  • 2,196 View
  • 34 Download
  • 20 Crossref
Close layer
Original Articles
Depression and Caregiving Burden in Families of Patients with Amyotrophic Lateral Sclerosis
Juyeon Oh, Ji Won An, Ki-Wook Oh, Seong-Il Oh, Jung A Kim, Seung Hyun Kim, Jeong Seop Lee
J Korean Acad Nurs 2015;45(2):202-210.   Published online April 30, 2015
DOI: https://doi.org/10.4040/jkan.2015.45.2.202
AbstractAbstract PDF
Purpose

The purpose of this study was to describe depression, caregiving burden and the correlation of the two variables in the families of patients with amyotrophic lateral sclerosis (ALS) and to clarify factors predicting caregiving burden.

Methods

A descriptive and cross-sectional study was conducted with 139 family members who provided care to patients with ALS. The characteristics of patients and families, Korean-Beck Depression Inventory (K-BDI), Korean version of Zarit Burden Interview (K-ZBI) and Korean-Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (K-ALSFRS-R) were used as study measures.

Results

The mean score for K-BDI was 19.39 out of 63 suggesting sub-clinical depression and 38.2% of the family members exhibited depression. The mean score for K-ZBI was 66.03 out of 88. The predictors for K-ZBI were K-BDI, age of family member, length of time spent per day in caring, relationship to patient and K-ALSFRS-R.

Conclusion

The results of this study suggest that levels of depression and caregiving burden are high among family members caring for patients with ALS. As depression is associated with caregiving burden, screening and emotional supports should be provided to reduce the burden of care for these family. Support programs to alleviate the care burden are also needed, considering family demographics, time per day in caring giving and K-ALSFRS-R.

Citations

Citations to this article as recorded by  
  • Effectiveness of the Mindfulness-Based Interventions for Caregivers of Patients with Amyotrophic Lateral Sclerosis: A Scoping Review
    Lutfiye İpek, Gokce Yagmur Gunes Gencer, Pınar Kısacık, Sibel Bozgeyik
    Journal of Nursology.2025; 28(1): 89.     CrossRef
  • Psychosoziale Unterstützungsbedürfnisse und Anforderungen an Unterstützungsprogramme für pflegende Angehörige von ALS-Patient*innen – Eine qualitative Analyse aus dem Projekt „potentiALS“
    Svenja Heyne, Adelina Kuzmanova, Peter Esser, Anja Mehnert-Theuerkauf, Moritz Metelmann
    PPmP - Psychotherapie · Psychosomatik · Medizinische Psychologie.2025; 75(11): 447.     CrossRef
  • Caring for people living with ALS in Korea: challenges and possible paths forward
    Crystal Jing Jing Yeo, Zachary Simmons
    Muscle & Nerve.2024; 70(5): 881.     CrossRef
  • The quality of life and depression in primary caregivers of patients with amyotrophic lateral sclerosis is affected by patient-related and culture-specific conditions
    Anna Maksymowicz-Śliwińska, Dorothée Lulé, Krzysztof NieporĘcki, Katarzyna Ciećwierska, Albert C. Ludolph, Magdalena Kuźma-Kozakiewicz
    Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration.2023; 24(3-4): 317.     CrossRef
  • The experiences of patients with amyotrophic lateral sclerosis of their decision‐making processes to invasive home mechanical ventilation—A qualitative study
    Tina Thorborg, Jeanette Finderup, Dorte Skriver Winther, Charlotte Kirkegaard Lorenzen, Pia Dreyer
    Nursing Open.2023; 10(8): 5139.     CrossRef
  • Psychological Support for Family Caregivers of Patients With Amyotrophic Lateral Sclerosis at the Time of the Coronavirus Disease 2019 Pandemic: A Pilot Study Using a Telemedicine Approach
    Minoo Sharbafshaaer, Daniela Buonanno, Carla Passaniti, Manuela De Stefano, Sabrina Esposito, Fabrizio Canale, Giulia D’Alvano, Marcello Silvestro, Antonio Russo, Gioacchino Tedeschi, Mattia Siciliano, Francesca Trojsi
    Frontiers in Psychiatry.2022;[Epub]     CrossRef
  • Factors associated with caring behaviors of family caregivers for patients receiving home mechanical ventilation with tracheostomy: A cross-sectional study
    Hyang Sook Kim, Chung Eun Lee, Yong Sook Yang, Tai-Heng Chen
    PLOS ONE.2021; 16(7): e0254987.     CrossRef
  • Family Caregiver Suffering in Caring for Patients with Amyotrophic Lateral Sclerosis in Korea
    Juyeon Oh, Jung-A Kim, Min Sun Chu
    International Journal of Environmental Research and Public Health.2021; 18(9): 4937.     CrossRef
  • Everyday life experiences of close relatives of people with amyotrophic lateral sclerosis receiving home mechanical ventilation—A qualitative study
    Dorte Winther, Charlotte Kirkegaard Lorenzen, Pia Dreyer
    Journal of Clinical Nursing.2020; 29(13-14): 2306.     CrossRef
  • Unmet supportive care needs mediate the relationship between functional status and quality of life in patients with amyotrophic lateral sclerosis
    Juyeon Oh, Seung Hyun Kim, Jung A Kim
    Palliative and Supportive Care.2019; 17(6): 650.     CrossRef
  • The Impact of Cognitive and Behavioral Symptoms on ALS Patients and Their Caregivers
    Jashelle Caga, Sharpley Hsieh, Patricia Lillo, Kaitlin Dudley, Eneida Mioshi
    Frontiers in Neurology.2019;[Epub]     CrossRef
  • Validity and Utility of the Center for Epidemiological Studies Depression Scale for Detecting Depression in Family Caregivers of Persons with Dementia
    Jiangbo Ying, Philip Yap, Mihir Gandhi, Tau Ming Liew
    Dementia and Geriatric Cognitive Disorders.2019; 47(4-6): 323.     CrossRef
  • Caregiving burden and depression in paid caregivers of hospitalized patients: a pilot study in China
    Yao-Dan Liang, Ya-Li Wang, Zhi Li, Li He, Ying Xu, Qing Zhang, Gui-Ying You, Xu-Hua Mi
    BMC Public Health.2018;[Epub]     CrossRef
  • The amyotrophic lateral sclerosis supportive care needs assessment instrument: Development and psychometric evaluation
    Juyeon Oh, Seong-il Oh, Jung A Kim
    Palliative and Supportive Care.2018; 16(6): 692.     CrossRef
  • Factors Influencing Psychosocial Well-Being in Family Caregivers of People with Amyotrophic Lateral Sclerosis
    Hyeon Sik Chu, Young Ran Tak, Seung Hyun Kim
    Journal of Korean Academy of Nursing.2018; 48(4): 454.     CrossRef
  • Factor analysis of the Zarit Burden Interview in family caregivers of patients with amyotrophic lateral sclerosis
    Juyeon Oh, Jung A. Kim
    Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration.2018; 19(1-2): 50.     CrossRef
  • An exploration into caring for a stroke-survivor in Lima, Peru: Emotional impact, stress factors, coping mechanisms and unmet needs of informal caregivers
    M. Amalia Pesantes, Lena R. Brandt, Alessandra Ipince, J. Jaime Miranda, Francisco Diez-Canseco
    eNeurologicalSci.2017; 6: 33.     CrossRef
  • Information-seeking Behavior and Information Needs in Patients With Amyotrophic Lateral Sclerosis
    Juyeon Oh, Jung A Kim
    CIN: Computers, Informatics, Nursing.2017; 35(7): 345.     CrossRef
  • Supportive care needs of patients with amyotrophic lateral sclerosis/motor neuron disease and their caregivers: A scoping review
    Juyeon Oh, Jung A Kim
    Journal of Clinical Nursing.2017; 26(23-24): 4129.     CrossRef
  • Convergence Study on Burden in Families Caregivers of Patients with Burn
    Gye-Hyun Jung, Hyun-Ju Na
    Journal of the Korea Convergence Society.2016; 7(6): 275.     CrossRef
  • 1,522 View
  • 19 Download
  • 20 Crossref
Close layer
Structural Equation Model for Caregiving Experience of Families Providing Care for Family Members with Mental Disorders
In Ohg Oh, Sunah Kim
J Korean Acad Nurs 2015;45(1):97-106.   Published online February 27, 2015
DOI: https://doi.org/10.4040/jkan.2015.45.1.97
AbstractAbstract PDF
Purpose

This study was done to develop and test a structural model for caregiving experience including caregiving satisfaction and caregiving strain in families providing care for family members with a mental disorder.

Methods

The Stress-appraisal-coping model was used as the conceptual framework and the structural equation model to confirm the path that explains what and how variables affect caregiving experience in these families. In this hypothesis model, exogenous variables were optimism, severity of illness and uncertainty. The endogenous variables were self efficacy, social support, caregiving satisfaction and caregiving strain. Data were collected using structured questionnaires.

Results

Optimism and caregiving self-efficacy had significant direct and indirect effects on caregiving satisfaction. Optimism, severity of illness and uncertainty had significant direct and indirect effects on caregiving strain. The modified path model explained effects of optimism on caregiving self-efficacy with social support in the path structure as a mediator. Also, there were direct and indirect effects of optimism and uncertainty on caregiving satisfaction with social support and caregiving self-efficacy in the path structure as a mediators.

Conclusion

Results suggest the need to improve caregiving self-efficacy of these families, establish support systems such as a mental health professional support programs for caregiving self-efficacy. Optimism, severity of illness and uncertainty perceived by families need to be considered in the development of support programs in order to increase their effectiveness.

Citations

Citations to this article as recorded by  
  • Development of the Caring Competence Scale for Family Caregivers of Persons With Mental Disorders
    Won Hee Jun
    Journal of Psychiatric and Mental Health Nursing.2025; 32(5): 1248.     CrossRef
  • Experience of Mental Healthcare Services by Family Caregivers of Patients With Mental Disorders
    Ja-Yeon Nam, In-Seo Son, Tae-Hoon Kim, Yoon-Young Nam
    Journal of Korean Neuropsychiatric Association.2024; 63(1): 38.     CrossRef
  • Influence of Gratitude and Sense of Meaning in Life on Caregiving Self-Efficacy of Family Caregivers of Persons With Mental Illness
    Won Hee Jun
    Western Journal of Nursing Research.2023; 45(12): 1104.     CrossRef
  • Development of Discharge Nursing Service Model for Heart Failure Patients
    Sung Hye Park, Ju Hee Lee, Yeon Soo Jang, Soo Young Han, Young Ah Kim, Eui Geum Oh
    Journal of Korean Academy of Nursing Administration.2023; 29(2): 141.     CrossRef
  • Factors Influencing the Quality of Life of Family Caregivers of Stroke Patients: A Cross-Sectional Survey
    Ji-Hye Lee, Mi Sook Jung
    Journal of Korean Academy of Fundamentals of Nursing.2023; 30(4): 479.     CrossRef
  • Uncertainty and Nursing Needs of Parents with Pediatric Cancer Patients in Different Treatment Phases: A Cross-Sectional Study
    Mijeong Park, Eunyoung E. Suh, Soo-Young Yu
    International Journal of Environmental Research and Public Health.2021; 18(8): 4253.     CrossRef
  • Suffering Experience of Primary Caregivers of People with Mental Disabilities in Community Dwellings
    Eun Joung Choi, Hyun Mee Cho, Eun Ju Cho, Minkyung Lee
    Journal of Korean Academy of psychiatric and Mental Health Nursing.2020; 29(3): 218.     CrossRef
  • A Review of Trend of Nursing Theories related Caregivers in Korea
    Sung Hae Kim, Yoona Choi, Ji-Hye Lee, Da-El Jang, Sanghee Kim
    The Open Nursing Journal.2018; 12(1): 26.     CrossRef
  • Effects of Family Burden, Resilience and Spiritual Well-being on the Quality of Life of Primary Caregivers of People with Mental Illness
    Hyun Mee Joe, Eun Joung Choi
    Journal of Korean Academy of Psychiatric and Mental Health Nursing.2017; 26(3): 226.     CrossRef
  • Experiences of Caring for a Spouse with Schizophrenia
    Gong Ju Chai, Eun Sook Nam
    Journal of Korean Academy of Psychiatric and Mental Health Nursing.2016; 25(2): 133.     CrossRef
  • 1,196 View
  • 19 Download
  • 10 Crossref
Close layer
The Experience of Adult Korean Children Caring for Parents Institutionalized with Dementia
Suhye Kwon, Young-Sook Tae
J Korean Acad Nurs 2014;44(1):41-54.   Published online February 28, 2014
DOI: https://doi.org/10.4040/jkan.2014.44.1.41
AbstractAbstract PDF
Purpose

The purpose of the study was to explore and describe the experience of adult Korean children who are caregivers for parents institutionalized with dementia.

Methods

Participants were fourteen adult children caregivers of elders institutionalized with dementia. Data were collected through in-depth unstructured interviews with individual participants from August to November, 2012. Theoretical sampling was used to the point of theoretical saturation. Data were analyzed using Strauss and Corbin's Grounded Theory Method.

Results

From open coding, 67 concepts, 29 sub-categories, and 14 categories were identified. Analysis revealed that the core category of the experience of adult children caring for their parents institutionalized with dementia was 'enduring the role of a prop' consisting of four phases: initial turmoil, exploration, role adjustment, and acclimation. To manage the role of a prop, participants utilized various action/interactional strategies such as overcoming the unfamiliarity, overseeing the nursing home care, and counterbalancing the caring roles. As a result, participants experienced ambivalence towards the existence of parents with dementia, changes in family relationships, altered viewpoint towards nursing homes, and restructuring of life.

Conclusion

In-depth understanding of the experience will guide nurses to promote effective interventions in order to better support the Korean family caregivers of parents institutionalized with dementia.

Citations

Citations to this article as recorded by  
  • The Association Between Cohabitation With Dementia Patients and Family Mental Health
    Yoo J. Lee, In C. Hwang, Hong Y. Ahn
    Alzheimer Disease & Associated Disorders.2025; 39(4): 328.     CrossRef
  • Development of the Care Burden Scale for Family of Elderly in Nursing Facilities
    Eun Jeong Kim, Kyung Mi Sung
    Journal of Korean Academy of psychiatric and Mental Health Nursing.2024; 33(1): 80.     CrossRef
  • A web-based care assistant for caregivers of the elderly: Development and pilot study
    Hwawoo Jeon, Yong Suk Choi, Yoonseob Lim
    DIGITAL HEALTH.2023;[Epub]     CrossRef
  • Time in the State of Dementia Caregiving in South Korea: When Care Becomes (Non-)Waiting
    Jieun Lee
    Culture, Medicine, and Psychiatry.2023; 47(4): 898.     CrossRef
  • Depression, anxiety, and sleep quality of caregivers of children with spinal muscular atrophy
    Almala Pinar Ergenekon, Zeynep Gümüş, Cansu Yilmaz Yegit, Muruvvet Cenk, Aynur Gulieva, Mine Kalyoncu, Merve Selcuk, Seyda Karabulut, Gulten Ozturk, Ela Erdem Eralp, Olcay Unver, Bulent Karadag, Yasemin Gokdemir
    Pediatric Pulmonology.2023; 58(6): 1697.     CrossRef
  • Empathy and perceived burden in caregivers of patients with schizophrenia spectrum disorders
    Rosaria Di Lorenzo, Anna Girone, Nunzio Panzera, Gianluca Fiore, Margherita Pinelli, Giulia Venturi, Federica Magarini, Paola Ferri
    BMC Health Services Research.2021;[Epub]     CrossRef
  • Family Members’ Experience in Caring for Elderly with Dementia in Long-Term Care Hospitals
    Eun Kyoung Suh, Hye Ryoung Kim
    Journal of Korean Gerontological Nursing.2020; 22(4): 335.     CrossRef
  • Development and Validation of the Scale for Partnership in Care—for Family (SPIC-F)
    Hye-Young Jang, Eun-Ok Song
    International Journal of Environmental Research and Public Health.2020; 17(6): 1882.     CrossRef
  • Partnership between staff and family in long-term care facility: a hybrid concept analysis
    Hye-Young Jang
    International Journal of Qualitative Studies on Health and Well-being.2020; 15(1): 1801179.     CrossRef
  • Development and Psychometric Evaluation of a Fear of Dementia Scale for Community-Dwelling Older Adults
    Minkyung LEE, Dukyoo JUNG
    Journal of Nursing Research.2020; 28(3): e94.     CrossRef
  • Predictors of Satisfaction with Care Services among Family Members of Older Adult Residents of Long-Term Care Facilities
    Eun-Ok Song, Hye-Young Jang
    International Journal of Environmental Research and Public Health.2020; 17(9): 3298.     CrossRef
  • A Concept Analysis of Fear of Dementia
    Minkyung Lee, Dukyoo Jung
    Journal of Korean Academy of Community Health Nursing.2018; 29(2): 206.     CrossRef
  • Caregiver burden and prevalence of depression, anxiety and sleep disturbances in Alzheimer's disease caregivers in China
    Shuai Liu, Chonghui Li, Zhihong Shi, Xiaodan Wang, Yuying Zhou, Shuling Liu, Jing Liu, Tao Yu, Yong Ji
    Journal of Clinical Nursing.2017; 26(9-10): 1291.     CrossRef
  • The Effect of Post-Stroke Depression on Rehabilitation Outcome and the Impact of Caregiver Type as a Factor of Post-Stroke Depression
    Dong-Heun Ahn, Yung-Jin Lee, Ji-Hun Jeong, Yong-Rok Kim, Jong-Bum Park
    Annals of Rehabilitation Medicine.2015; 39(1): 74.     CrossRef
  • 1,225 View
  • 8 Download
  • 14 Crossref
Close layer
Structural Relationship of Burnout and Related Variables among Family Caregivers of Cancer Patients
Min Joo Hong, Young Sook Tae
J Korean Acad Nurs 2013;43(6):812-820.   Published online December 31, 2013
DOI: https://doi.org/10.4040/jkan.2013.43.6.812
AbstractAbstract PDF
Purpose

The purpose of this study was to construct a structural equational model to explain and predict burnout in family caregivers of patients with cancer. The study was based on the Stress-Appraisal-Coping Model of Lazarus and Folkman (1984) and Family Stress Theory (Hill, 1958).

Methods

Data were collected from July 10 to September 30, 2012 through direct interviews and a self-report questionnaire survey. Participants in this study were 206 family caregivers providing care for patients with cancer in In-patient or Out-patient departments of three different general hospitals located in Busan. Measured variables were exogenous variables (social support and perceived health status) and endogenous variables (perceived stress, hope and burnout).

Results

Goodness of fit in the hypothetical model was χ2=174.07, TLI=.95, CFI=.97, RMSEA=.08. Perceived health status, perceived stress, and hope showed statistically significant direct effects on burnout of family caregivers. Social support affected burnout of family caregivers indirectly. These variables explained 68.5% of total variance in burnout.

Conclusion

The results from this study suggest that perceived stress, perceived health status, and hope should be considered as major influential factors when developing nursing interventions to control burnout of family caregivers (of patients with cancer).

Citations

Citations to this article as recorded by  
  • Effect of Laughter Therapy on Mood Disturbances, Pain, and Burnout in Terminally Ill Cancer Patients and Family Caregivers
    Hee Moon, Songjah Journ, Seonah Lee
    Cancer Nursing.2024; 47(1): 3.     CrossRef
  • Structural Equation Model for Psychosocial Adjustment of Breast Cancer Survivors Based on Family Resilience Model
    Jiyoung Seo, Myungsun Yi
    Korean Journal of Adult Nursing.2022; 34(2): 178.     CrossRef
  • The Mediating Effect of Depression on the Relationship between Social Support, Spirituality and Burnout in Family Members of Patients with Cancer
    Won-Hee Jun, Kyung-Sook Cha, Kee-Lyong Lee
    International Journal of Environmental Research and Public Health.2021; 18(4): 1727.     CrossRef
  • Factors Influencing Depression of the Cancer Patient’s Family Caregivers
    Min-joo Hong, Young-suk Kim, Bu-kyeong Bang, Ick-Jee Kim
    The Korean Journal of Health Service Management.2019; 13(3): 163.     CrossRef
  • Factors Influencing Burnout in Primary Family Caregivers of Hospital-based Home Care Patients
    Ju Ok Yang, Hye Kyung Lee
    Journal of Korean Academy of Community Health Nursing.2018; 29(1): 54.     CrossRef
  • Factors Affecting Caregivers' Burnout Caring for a Family Member in an Intensive Care Unit
    Min-Jeong Park, So-Hee Park, Mi Young Chung
    Korean Journal of Adult Nursing.2017; 29(5): 517.     CrossRef
  • Factors Influencing Burden among Family Caregivers of Elderly Cancer Patients
    Yooun Sook Choi, Joo Hee Bae, Nam Hee Kim, Young Sook Tae
    Asian Oncology Nursing.2016; 16(1): 20.     CrossRef
  • Relation of Compassionate Competence to Burnout, Job Stress, Turnover Intention, Job Satisfaction and Organizational Commitment for Oncology Nurses in Korea
    Sun-A Park, Seung-Hee Ahn
    Asian Pacific Journal of Cancer Prevention.2015; 16(13): 5463.     CrossRef
  • 1,287 View
  • 13 Download
  • 8 Crossref
Close layer
Overcoming Experiences of Family Members Caring for Elderly Patients with Dementia at Home
Mi Ra Sung, Myungsun Yi, Dong Young Lee, Hye Young Jang
J Korean Acad Nurs 2013;43(3):389-398.   Published online June 28, 2013
DOI: https://doi.org/10.4040/jkan.2013.43.3.389
AbstractAbstract PDF
Purpose

The purpose of the study was to understand and describe the overcoming experiences of family members caring for elderly patients with dementia at home.

Methods

Data came from autobiographies on the overcoming experiences of caregiving from 31 participants, who had submitted the autobiographies to a public contest held by the Seoul Metropolitan Center for Dementia in 2012. Data were analyzed using qualitative content analysis.

Results

Four overcoming stages emerged from the analysis: confronting stage; challenging stage; integrating stage; and transcendental stage, representing transformation of experiences from frustration and suffering to happiness and new hope in life. The confronting stage illustrates severe negative feelings and exhaustion occurring after the diagnosis of dementia. The challenging stage signifies major driving forces in taking good care of their patients. It includes tender loving memories about the patients as well as family and social supports. The integrating stage shows genuine empathy for the patients' situation and the happiness of 'here and now', while the transcendental stage represents new hope in the future.

Conclusion

Health professionals need to support caregivers to find true meaning of caring and happiness in everyday life, while providing specific information on dementia care and relieving various negative feelings.

Citations

Citations to this article as recorded by  
  • Factors influencing the care burden among family caregivers using dementia care centers for older adults with dementia in Korea: a cross-sectional descriptive study
    Ja Eun Kim, Soo Jin Lee
    Journal of Korean Biological Nursing Science.2024; 26(4): 382.     CrossRef
  • Experiences of Family Caregivers of Older Adults With Dementia in Korea During the COVID-19 Pandemic: A Qualitative Analysis
    Eun Same Joh, Yun-Jung Choi
    Journal of Gerontological Nursing.2024; 50(10): 42.     CrossRef
  • Characteristics of Early Onset Dementia and Caring Experiences and Service Needs of Family Caregivers: A Mixed Methods Study
    Jin Ha Kim, Gyungjoo Lee
    Journal of Korean Academy of psychiatric and Mental Health Nursing.2023; 32(2): 101.     CrossRef
  • Time usage analysis according to occupational area and satisfaction level in family caregivers of dementia patients
    Woo-Hyuk Jang, Jong-Sik Jang, Jong-Hwi Park
    PeerJ.2023; 11: e15178.     CrossRef
  • Experience of family caregivers using dementia management programs for patients with dementia during COVID-19: Based on focus group interviews
    Doonam Oh, Jeonghae Hwang, Seonghee Jeong
    Korean Journal of Health Education and Promotion.2022; 39(5): 101.     CrossRef
  • Safety Accidents and Coping Experiences among Family Caregivers Caring for Community-Dwelling Persons Living with Dementia
    Ji Yeon Lee, Ha Rim Lee, Kyung Hee Lee
    Journal of Korean Gerontological Nursing.2021; 23(4): 352.     CrossRef
  • Health Promotion Behavior among Older Korean Family Caregivers of People with Dementia
    Aram Cho, Chiyoung Cha
    International Journal of Environmental Research and Public Health.2021; 18(8): 4123.     CrossRef
  • Changes in Family Dynamics in Caregiving for People With Dementia in South Korea: A Qualitative Meta-Synthesis Study
    Seieun Oh, Mi Yu, Young Mi Ryu, Haejin Kim, Haeyoung Lee
    Qualitative Health Research.2020; 30(1): 60.     CrossRef
  • Family Members’ Experience in Caring for Elderly with Dementia in Long-Term Care Hospitals
    Eun Kyoung Suh, Hye Ryoung Kim
    Journal of Korean Gerontological Nursing.2020; 22(4): 335.     CrossRef
  • Factors associated with Burden of Family Caregivers of Home-dwelling Elderly People with Dementia: A Systematic Review and Meta-analysis
    Eun Kyung Kim, Heeok Park
    Korean Journal of Adult Nursing.2019; 31(4): 351.     CrossRef
  • Patient and Caregiver Interplay in Behavioral and Psychological Symptoms of Dementia: Family Caregiver’s Experience
    Jun-Ah Song, Myonghwa Park, Jaewon Park, Hong Jin Cheon, Mihyun Lee
    Clinical Nursing Research.2018; 27(1): 12.     CrossRef
  • Experience of a Special Rating Dementia Service for Family Caregivers of Elderly People with Dementia
    Hee Kyung Cho, Soo Jung Chang
    Journal of Korean Academy of Community Health Nursing.2018; 29(2): 231.     CrossRef
  • Experiences of Family Caregivers Utilizing Care Support of Dementia Center
    Chun-Gill Kim, Myung Soon Kwon, Young Hee Lee
    Korean Journal of Adult Nursing.2018; 30(3): 314.     CrossRef
  • Hermeneutic Phenomenological Study on Caring Experience of Nurses Working in a Chemotherapy Ward in Korea
    Ji Young Seo, Myungsun Yi
    Asian Oncology Nursing.2017; 17(1): 55.     CrossRef
  • A Prediction Model for Unmet Needs of Elders with Dementia and Caregiving Experiences of Family Caregivers
    Sora Choi, Myonghwa Park
    Journal of Korean Academy of Nursing.2016; 46(5): 663.     CrossRef
  • Knowledge about dementia in South Korean nursing students: a cross-sectional survey
    Jung Ha Shin, Hyun-Ju Seo, Kye Ha Kim, Kyoung-Hoon Kim, Youngjin Lee
    BMC Nursing.2015;[Epub]     CrossRef
  • Compassion Fatigue within Dementia Nursing Practice: A Concept Analysis
    Ju Young Ha, So Young Jeon
    Journal of Korean Gerontological Nursing.2015; 17(1): 48.     CrossRef
  • Experience of Treatment Adherence in Korean Patients with HIV
    Yunhee Park, Min Jeong Seo, Sanghee Kim, Soon-Young Park
    Journal of Korean Academy of Nursing.2014; 44(4): 407.     CrossRef
  • Cognitive Function, Behavioral Problems, and Physical Function in Long‐Term Care Insurance Beneficiaries with Dementia in South Korea: Comparison of Home Care and Institutional Care Services
    Tae Wha Lee, Eunsil Yim, Eunhee Cho, Jane Chung
    Journal of the American Geriatrics Society.2014; 62(8): 1467.     CrossRef
  • 1,329 View
  • 8 Download
  • 19 Crossref
Close layer
Experiences of Family Caregivers of Patients with Terminal Cancer
Eun Sook Choi, Keum Soon Kim
J Korean Acad Nurs 2012;42(2):280-290.   Published online April 30, 2012
DOI: https://doi.org/10.4040/jkan.2012.42.2.280
AbstractAbstract PDF
Purpose

This study done to identify the experiences of families caring for patients with terminal cancer. The question was, "What is the caregiving experience of a family who has a member with terminal cancer?"

Methods

Grounded Theory was applied and in-depth interviews were done with 11 family members. Interviews were recorded with the interviewees' consent and were transcribed and analyzed. Participants' relationships to patients were 6 spouses, 4 daughters, and 1 mother. The ages of the participants were between 32 and 62, with an average of 47.5.

Results

The study showed "enduring with bonds" as the main category and the main factor affecting this category was the "patients' diagnosis of terminal cancer." The caregiving experience was divided into four stages: shock, confusion, struggle, and acceptance. Mediating factors were relationship with the patient, intimacy with the patient, social support, communication, and trust. Conclusively, participants underwent internal maturity, and changes occurred in family and social and personal life.

Conclusion

The families took care of the patients with responsibility and love. The study results should help with the understanding of a family with a member with terminal cancer and should be used to develop nursing, mediating, and consulting programs for these caregivers.

Citations

Citations to this article as recorded by  
  • Challenges and Proposed Improvements in Advance Care Planning: Insights from a Real Clinical Case of a Terminally Ill Patient in Korea
    Hongyeul Lee
    Korean Journal of Medical Ethics.2025; 28(1): 41.     CrossRef
  • The End-of-Life Experiences of Cancer Patients’ Families in a Tertiary Hospital Providing Palliative Care Consultation During the COVID-19 Pandemic
    Hyoung Suk Han, Mi Young Kim
    Journal of Hospice and Palliative Care.2025; 28(2): 40.     CrossRef
  • Do spouse burden of care, family resilience, and coping affect family function in gynecologic cancer in Korea?: a cross-sectional study
    Minkyung Kim, Sukhee Ahn
    Korean Journal of Women Health Nursing.2022; 28(3): 197.     CrossRef
  • Caregiving experiences of Korean family caregivers of cancer patients: An integrative literature review
    Eunice E. Lee, Shin‐Young Lee
    Psycho-Oncology.2020; 29(10): 1486.     CrossRef
  • Validation of the Nurses’ Involvement in Dying Patients and Family Care-Korean Version
    Mi Yeon Kim, Hanna Lee, Inyoung Lee, Mirim Lee, Haeryun Cho
    The Korean Journal of Hospice and Palliative Care.2020; 23(4): 228.     CrossRef
  • A Concept Analysis of Posttraumatic Growth in Family Caregivers of Cancer Patients
    Kyoung Hee Kim, Yong Soon Shin
    Asian Oncology Nursing.2019; 19(1): 9.     CrossRef
  • Experiences of Distress among Family Caregivers of Hospitalized Cancer Patients
    Juhye Jin, Jin-Hee Yoo
    Korean Journal of Adult Nursing.2017; 29(5): 451.     CrossRef
  • Unmet Needs and Caregiver Burden Among Family Caregivers of Hospice Patients in South Korea
    Jihyeon Lee, Chiyoung Cha
    Journal of Hospice & Palliative Nursing.2017; 19(4): 323.     CrossRef
  • The Lived Experience of Suffering of Family with Cancer Patients: Parse’s Human Becoming Research Method
    Ye-Sook Choi
    The Korean Journal of Hospice and Palliative Care.2016; 19(2): 127.     CrossRef
  • Experiences of Spouses of Patients with Hematologic Malignancies: Finding a Way to Get Out of the Endless Tunnel
    Youngshin Lee, Youngran Tak
    Asian Oncology Nursing.2016; 16(1): 46.     CrossRef
  • Family Caregivers’ Quality of Life, Depression and Anxiety according to Symptom Control in Hospice Patients
    Yun Hee Kim, Seung Hun Lee, Ho Seop Lim, Young Jin Choi, Yun Jin Kim, Sang Yeoup Lee, Jeong Gyu Lee, Dong Wook Jeong, Kyoung Hwa Yu
    The Korean Journal of Hospice and Palliative Care.2015; 18(4): 314.     CrossRef
  • Impact Factors for Health of Family Caregivers of Hospice Patients
    Bok Yae Chung, Hyeon Sook Park
    The Korean Journal of Hospice and Palliative Care.2014; 17(2): 75.     CrossRef
  • Effect of Supportive Education Program for Hospice Patients's Family
    Tae Yeon Lee, Yunhee Kwon
    The Journal of Korean Academic Society of Nursing Education.2014; 20(2): 175.     CrossRef
  • Recognition of Patients, Families, Nurses, and Physicians about Clinical Decision-making and Biomedical Ethics
    Ae Ran Park, Hyang Sook So, Myeong Cheong Chae
    Asian Oncology Nursing.2014; 14(1): 23.     CrossRef
  • 1,545 View
  • 10 Download
  • 14 Crossref
Close layer
The Effects of Oral Care Education on Caregivers’ Knowledge, Attitude, & Behavior toward Oral Hygiene for Elderly Residents in a Nursing Home
Myung Sook Park, Smi Choi-Kwon
J Korean Acad Nurs 2011;41(5):684-693.   Published online October 12, 2011
DOI: https://doi.org/10.4040/jkan.2011.41.5.684
AbstractAbstract PDF
Abstract Purpose

To investigate the effects of oral care education on knowledge, attitudes & behavior of caregivers in oral care and oral hygiene for residents in nursing homes.

Methods

In this quasi-experimental study, the intervention group (n=27) of residents received oral care from intervention group caregivers (n=28) who had received 6 weeks of oral care education. The control group (n=27) of residents received usual oral care from control group caregivers (n=26). Data on knowledge, attitude, and behavioral change in oral health care by the caregivers and plaque index & halitosis of the residents were collected. Data were analyzed using SPSS WIN 16.0.

Results

1) Scores on caregivers’ knowledge (p<.001) and behavior (p<.001) for oral care were higher in the intervention group 6 and 12 weeks. The caregivers’ attitude (p<.001) score for oral care was higher in the intervention group 12 weeks. 2) The plaque index (p=.004) and halitosis (p=.002) of the nursing home residents were lower in the intervention group than the control group at 6 and 12 weeks.

Conclusion

Oral care education programs for caregivers are effective in improving the oral hygiene of elderly residents in nursing homes through enhancement of caregiv-ers’ knowledge, attitude, and behavioral change.

Citations

Citations to this article as recorded by  
  • Caregivers’ Perception about the Relationship between Oral Health and Overall Health in Individuals with Disability in Qatif, Saudi Arabia: A Cross‐Sectional Study
    Marwa Alalshaikh, Rasha Alsheikh, Amal Alfaraj, Khalifa S. Al-Khalifa, Sivakumar Nuvvula
    International Journal of Dentistry.2022;[Epub]     CrossRef
  • Are oral health education for carers effective in the oral hygiene management of elderly with dementia? A systematic review
    Nithin Manchery, GireeshKumar Subbiah, Nagappan Nagappan, Parvathy Premnath
    Dental Research Journal.2020; 17(1): 1.     CrossRef
  • Development and Effects of a Coping Skill Training Program for Caregivers in Feeding Difficulty of Older Adults with Dementia in Long-Term Care Facilities
    Hyun Hwa Hong, Mee Ock Gu
    Journal of Korean Academy of Nursing.2018; 48(2): 167.     CrossRef
  • One-to-one oral hygiene advice provided in a dental setting for oral health
    Francesca A Soldani, Thomas Lamont, Kate Jones, Linda Young, Tanya Walsh, Rizwana Lala, Janet E Clarkson
    Cochrane Database of Systematic Reviews.2018;[Epub]     CrossRef
  • Survey on Oral Health Awareness by Pneumoconiosis Patients of Care Hospitals
    Na-Rae Oh, Sung Uk Yoon, Mi-Ae Jeong
    The Journal of the Korea Contents Association.2016; 16(6): 387.     CrossRef
  • A home‐based training programme improves family caregivers’ oral care practices with stroke survivors: a randomized controlled trial
    Y‐W Kuo, M Yen, S Fetzer, L‐C Chiang, Y‐IL Shyu, T‐H Lee, H‐I Ma
    International Journal of Dental Hygiene.2016; 14(2): 82.     CrossRef
  • Effect of Professional Oral Healthcare Program on the Oral Status of Elderly Residents in Long-Term Care Facilities
    Keun-Yoo Lee, Soon-Ryun Lim
    Journal of Dental Hygiene Science.2016; 16(6): 432.     CrossRef
  • Oral health educational interventions for nursing home staff and residents
    Martina Albrecht, Ramona Kupfer, Daniel R Reissmann, Ingrid Mühlhauser, Sascha Köpke
    Cochrane Database of Systematic Reviews.2016;[Epub]     CrossRef
  • A Study on Recuperation Nurses' Oral Health Knowledge and Perceptions, and Senile Denture Management Behavior in Andong City
    Young-Hee Kim, Seung-Hee Lee, Hyun-Kyung Yun
    The Korean Journal of Health Service Management.2014; 8(4): 69.     CrossRef
  • The Effect of Inter Dental Brush Education on the Dental Plaque Index and the Degree of Halitosis for Elementary School Students
    Ha Na Lee, Joo Hyun Kim
    Journal of Korean Biological Nursing Science.2014; 16(1): 8.     CrossRef
  • The Effects of Oral Health on Activity of Daily Living, Depression and Quality of Life in Elderly Women
    Hung Sa Lee, Chunmi Kim, Dohyun Lee
    Korean Journal of Health Promotion.2014; 14(2): 50.     CrossRef
  • Effects of Oral Health Impact Profile (OHIP) on Depression and Quality of Life among Community-dwelling Korean Elderly Persons
    Hung Sa Lee, Chunmi Kim
    Journal of Korean Academy of Community Health Nursing.2012; 23(3): 338.     CrossRef
  • 1,782 View
  • 35 Download
  • 12 Crossref
Close layer
Correlation between Severe ALS Patient-Caregiver Couples' Characteristics and Caregivers' Health Related Quality of Life
Myoung Soo Kim, Hyung-Ik Shin, Yusun Min, Jung Yoon Kim, Jung Soon Kim
J Korean Acad Nurs 2011;41(3):354-363.   Published online June 13, 2011
DOI: https://doi.org/10.4040/jkan.2011.41.3.354
AbstractAbstract PDF
Purpose

The purpose of this cross-sectional study was to examine the relationship between characteristics of severe ALS patient-caregiver couples and health related quality of life (HRQoL) in family caregivers.

Methods

The participants in this study were 89 pairs of ALS patients using ventilators and a family caregiver. The characteristics of the ALS patients and caregivers, Korean-Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised, Zarit Burden Interview and SF-36 were measured in this study. The data were collected from August 2008 to April 2009. Descriptive statistics, Pearson correlation coefficients, and canonical correlation were used for data analysis.

Results

The physical component summary and mental component summary of the HRQoL score for family caregivers were 147.49±31.63 and 129.09±35.83, respectively. HRQoL for caregivers was related to characteristics of the ALS patient-caregiver couples, such as patient's gender, caregiver's age, gender, marital status, daily time spent in caregiving and burden with one significant canonical variable. The significant variate showed that the lower the age, the time spent in caregiving and the burden of caregivers, the higher the HRQoL of caregivers.

Conclusion

The support systems for caregivers considering caregiver characteristics such as demographics and burden should be implemented to improve the HRQoL of caregivers.

Citations

Citations to this article as recorded by  
  • Health-Related Quality of Life in Spinal Muscular Atrophy Patients and Their Caregivers—A Prospective, Cross-Sectional, Multi-Center Analysis
    Camilla Wohnrade, Ann-Kathrin Velling, Lucas Mix, Claudia D. Wurster, Isabell Cordts, Benjamin Stolte, Daniel Zeller, Zeljko Uzelac, Sophia Platen, Tim Hagenacker, Marcus Deschauer, Paul Lingor, Albert C. Ludolph, Dorothée Lulé, Susanne Petri, Alma Osmano
    Brain Sciences.2023; 13(1): 110.     CrossRef
  • Analysing the influencing factors on caregivers’ burden among amyotrophic lateral sclerosis patients in China: a cross-sectional study based on data mining
    Ling Lian, Minying Zheng, Ruojie He, Jianing Lin, Weineng Chen, Zhong Pei, Xiaoli Yao
    BMJ Open.2022; 12(9): e066402.     CrossRef
  • Intensity of care and perceived burden among informal caregivers to persons with chronic medical conditions: a systematic review and meta-analysis
    Andrea Carboni-Jiménez, Danielle B. Rice, Brooke Levis, Mara Cañedo-Ayala, Mahrukh Imran, Matthew Chiovitti, Andrea Benedetti, Brett D. Thombs
    Disability and Rehabilitation.2022; 44(21): 6230.     CrossRef
  • Information Needs and Preferences of Family Caregivers of Patients With Amyotrophic Lateral Sclerosis
    Hyeon Sik Chu, Juyeon Oh
    Journal of Neuroscience Nursing.2020; 52(5): 207.     CrossRef
  • Association of physical and psychological health status between chronic obstructive pulmonary disease patients and their family caregivers
    Hyun-Hye Chu, Kyeong-Soo Lee, Kwan Ho Lee, Jin Hong Chung, Kyeong-Cheol Shin, Tae-Yoon Hwang
    Health Care for Women International.2019; 40(10): 1019.     CrossRef
  • Factors Influencing Psychosocial Well-Being in Family Caregivers of People with Amyotrophic Lateral Sclerosis
    Hyeon Sik Chu, Young Ran Tak, Seung Hyun Kim
    Journal of Korean Academy of Nursing.2018; 48(4): 454.     CrossRef
  • Information-seeking Behavior and Information Needs in Patients With Amyotrophic Lateral Sclerosis
    Juyeon Oh, Jung A Kim
    CIN: Computers, Informatics, Nursing.2017; 35(7): 345.     CrossRef
  • Patients’ self‐perceived burden, caregivers’ burden and quality of life for amyotrophic lateral sclerosis patients: a cross‐sectional study
    Dan Geng, RuWei Ou, XiaoHui Miao, LiHong Zhao, QianQian Wei, XuePing Chen, Yan Liang, HuiFang Shang, Rong Yang
    Journal of Clinical Nursing.2017; 26(19-20): 3188.     CrossRef
  • Socioeconomic costs of amyotrophic lateral sclerosis according to staging system
    Juyeon Oh, Ji Won An, Seong-Il Oh, Ki Wook Oh, Jung A Kim, Jeong Seop Lee, Seung Hyun Kim
    Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration.2015; 16(3-4): 202.     CrossRef
  • Depression and Caregiving Burden in Families of Patients with Amyotrophic Lateral Sclerosis
    Juyeon Oh, Ji Won An, Ki-Wook Oh, Seong-Il Oh, Jung A Kim, Seung Hyun Kim, Jeong Seop Lee
    Journal of Korean Academy of Nursing.2015; 45(2): 202.     CrossRef
  • The Factors affecting Burdens and Quality of Life of the Family Caregivers of Patients with Rare and Incurable Diseases Using Home Ventilators
    Moon Sook Hwang, Mi Kyoung Lee, Jeong Rye Song
    Korean Journal of Adult Nursing.2014; 26(2): 191.     CrossRef
  • 1,178 View
  • 12 Download
  • 11 Crossref
Close layer
An Analysis of the Meaning of Respite for Family Caregivers of Elderly with Dementia
Mi Ryeong Song, Yong-Mi Lee, Suk-Hee Cheon
J Korean Acad Nurs 2010;40(4):482-492.   Published online August 31, 2010
DOI: https://doi.org/10.4040/jkan.2010.40.4.482
AbstractAbstract PDF
Purpose

This study was a qualitative research study in which focus group interviews were used to collect data on the meaning of respite for family caregivers who are taking care of elders with dementia.

Methods

The focus group interviews and participants consisted of 2 family caregiver groups, for a total of 8 people taking care of their elders and 5 professional caregivers working in a geriatrics hospital or social welfare institutions. Content analysis was used and debriefing notes were referred in order to analyze the data.

Results

The meaning of respite in this research was measured using 4 main categories: 'Temporary break from routine', 'direct help', 'psychological comfort', 'valuables which cannot be taken easily' and 9 subcategories: 'Temporary diversion of attention', 'temporarily free from my duty', 'taking care of oneself', 'receiving economic help', 'empathize with others', 'comfort based on trust', 'resting together with the elder', 'no time to rest', 'cannot get out of one's obligatory duty'.

Conclusion

The findings of the study show that rest means not only a temporary relief from caretaking, but also a real respite based on the patients' stable state and comfort. These results indicate a new meaning for respite, that the first step of respite program has to begin even when the caregivers do not recognize the need for respite.

Citations

Citations to this article as recorded by  
  • Influence of Self-care on Burnout in Primary Family Caregiver of Person with Dementia
    Jeong Hwa Kwon, Gwi-Ryung Son Hong
    Journal of Korean Academy of Nursing.2021; 51(2): 217.     CrossRef
  • Changes in Family Dynamics in Caregiving for People With Dementia in South Korea: A Qualitative Meta-Synthesis Study
    Seieun Oh, Mi Yu, Young Mi Ryu, Haejin Kim, Haeyoung Lee
    Qualitative Health Research.2020; 30(1): 60.     CrossRef
  • Recognition Study on Usage Motivation and Dissatisfaction Factor at Short Stay Service -Focus on User’s Caregiver
    김영태
    Korean Journal of Gerontological Social Welfare.2018; 73(1): 235.     CrossRef
  • Experience of a Special Rating Dementia Service for Family Caregivers of Elderly People with Dementia
    Hee Kyung Cho, Soo Jung Chang
    Journal of Korean Academy of Community Health Nursing.2018; 29(2): 231.     CrossRef
  • The Postnatal Care Experiences among First Time Chinese Immigrant Mothers Living in Korea
    Ju-Eun Song, So Mi Park, Eun Ha Roh
    Korean Journal of Women Health Nursing.2016; 22(1): 48.     CrossRef
  • Overcoming Experiences of Family Members Caring for Elderly Patients with Dementia at Home
    Mi Ra Sung, Myungsun Yi, Dong Young Lee, Hye Young Jang
    Journal of Korean Academy of Nursing.2013; 43(3): 389.     CrossRef
  • Respite Care for Family Caregivers of Elders with Dementia : Concept Clarification
    Sung-Ok Chang, Mi-Ryeong Song, Gye-Soon Kong, Suk-Hee Choen
    Journal of Korean Academy of Fundamentals of Nursing.2012; 19(1): 23.     CrossRef
  • 1,117 View
  • 3 Download
  • 7 Crossref
Close layer
Effects of Education on Knowledge and Practice of Caregivers of the Stroke Patient
Jae Sun Choi, Young Mi Seo, In Soo Kwon
Journal of Korean Academy of Nursing 2006;36(7):1175-1182.   Published online December 31, 2006
DOI: https://doi.org/10.4040/jkan.2006.36.7.1175
AbstractAbstract PDF
Purpose

This study was conducted to evaluate the effects of stroke patient care education on the knowledge and practice of caregivers of stroke patients.

Method

Data was collected from December 15, 2004 to March 30, 2005. The research design was a non-equivalent control group non-synchronized design. The subjects were forty primary caregivers of stroke patients who were hospitalized in a neurology unit of a university hospital. Forty caregivers, twenty in the experimental group and twenty in the control group were assigned. The experimental group participated 2 times in an education class given by the researcher. Data analysis included -test, and t-test using the SPSS program.

Result

Knowledge(t=5..87, p=o.oo) and practice(t=5.53, p=0.00) of the experimental group were significantly different from the control group.

Conclusion

The stroke patient care education developed in this studyshows a significant promotion of knowledge and practice of caregivers. Thus this program can be recommanded as an intervention model for stroke patients and caregivers.

Citations

Citations to this article as recorded by  
  • Conocimientos, actitudes y prácticas de familiares y cuidadores frente al ataque cerebrovascular: estudio de corte transversal
    Federico Arturo Silva Sieger , Paula Andrea Ardila Navas, Claudia Soto Hernández, José Alejandro Mendoza, Luis Alberto López Romero
    Acta Neurológica Colombiana.2025;[Epub]     CrossRef
  • Comprehensive Stroke Education Program (CSEP) on Knowledge and Quality of Life among Patients with Stroke and Burden among Caregivers
    Baminidevi Nagarajan
    Nursing and Health Care.2019; : 71.     CrossRef
  • Effects of a Self-help Management Program at Public Health Centers on Self-efficacy, Self-esteem, Knowledge of Stroke, and Family Supports in Stroke Patients
    Koung-Oh Chang
    Journal of Korean Academy of Community Health Nursing.2013; 24(4): 388.     CrossRef
  • The Effects of Self-help Management Program on Knowledge about Stroke, Self-efficacy and Self-esteem in People with Stroke
    Koung-Oh Chang, Jung Yeon Park
    Journal of muscle and joint health.2013; 20(1): 1.     CrossRef
  • The Effects of an Environmental Education with Newspaper in Education (NIE) on the Environmental Concern and Practice
    Ki-Wol Sung
    Journal of Korean Academy of Nursing.2008; 38(6): 891.     CrossRef
  • 923 View
  • 7 Download
  • 5 Crossref
Close layer
Evaluation of a Self-efficacy-based Basic Life Support Program for High-risk Patients' Family Caregivers
Kyunghee Kang, Insook Lee
Journal of Korean Academy of Nursing 2005;35(6):1081-1090.   Published online October 31, 2005
DOI: https://doi.org/10.4040/jkan.2005.35.6.1081
AbstractAbstract PDF
Purpose

The purpose of this study was to evaluate a Self-efficacy-based Basic Life Support (SEBLS) program for high-risk patients' family caregivers on cardiac arrest. The SEBLS program was constructed on the basis of Bandura's self-efficacy resources as well as the International Liaison Committee on Resuscitation's “2000 Guidelines for CPR and ECC”.

Method

The effect of the SEBLS program on emergency response self-efficacy and emergency response behavior such as BLS(Basic Life Support) knowledge and BLS skill performance was measured by a simulated control group pretest-posttest design. Study subjects were38 high-risk patients' family caregivers(20 experimental subjects and 18 control subjects) whose family patients were admitted to a general hospital in Incheon, Korea.

Result

1. Emergency response self-efficacy was significantly higher in the experimental subjects who participated in the SEBLS program than in the control subjects. (t=8.3102, p=0.0001). 2. For emergency response behavior, BLS knowledge (t=5.6941, p=0.0001) and BLS skill performance (t=27.8281, p=0.0001) was significantly higher in experimental subjects than in control subjects.

Conclusion

A SEBLS program can increase emergency response self-efficacy and emergency response behavior, and could be an effective intervention for high-risk patient's family caregivers. Long-term additional studies are needed to determine the lasting effects of the program.

Citations

Citations to this article as recorded by  
  • Factors Influencing for Intention to Perform Cardiopulmonary Resuscitation in Elementary and Secondary School Teachers
    Kyoung Sun Song, Kyung-Yeon Park
    Journal of Korean Academy of Community Health Nursing.2020; 31(3): 384.     CrossRef
  • The Effects of Knowledge, Attitude, and Self-efficacy of CPR on Willingness to Perform CPR in Family Members of Patients with Heart Disease
    Jung Min Park, Sangeun Jun
    Korean Journal of Adult Nursing.2018; 30(1): 79.     CrossRef
  • 748 View
  • 9 Download
  • 2 Crossref
Close layer

J Korean Acad Nurs : Journal of Korean Academy of Nursing
Close layer
TOP