Abstract

• Purpose
  Parkinson's disease (PD) is a common neurodegenerative disorder characterized by motor disabilities and increasing dependence on others for daily life activities with consequent impact on patients' and caregivers' quality of life. The aim of this study was to elucidate the burden on primary caregivers of patients with PD, and identify related factors.
• Methods
  A cross-sectional descriptive study. Seventy-six primary caregivers of PD patients in a neurology outpatient clinic, Seoul, Korea completed structured questionnaires, of which 68 were analyzed. The structured self-report questionnaire included (1) demographic information on the caregivers, (2) information regarding the disease characteristics of the patients, and (3) the subjective and objective caregiver burdens as assessed on Montgomery, Gonyea, & Hooyman's scale.
• Results
  The mean age of the caregivers was 54.56 years, and spouses represented the largest proportion(47.0%). Caregivers of PD patients experienced high levels of burden (mean scores on the subjective and objective burdens were 45.22 and 34.90, respectively), which were comparable to the caregiver burdens in stroke, and higher than the caregiver burdens in general chronic disease. Older caregivers and spousal caregivers experienced significantly higher burdens (p=.004 and p=.019, respectively). A greater motor disability and higher modified Hoehn and Yahr grade were related to higher caregiver burden (p=.001 and p=.018, respectively).
• Conclusion
  Caring for PD patients is associated with a high level of caregiver burden. Therefore, healthcare professionals should identify the burden of caregivers who look after PD patients and develop comprehensive management strategies both for patients and their caregivers.
• Keywords: Burden; Caregiver; Parkinson's disease

Figure & Data

REFERENCES

Citations

Citations to this article as recorded by  

• Perceptions of workload in caregivers involved in the care of patients with Parkinson’s disease: an exploratory - correlational study
  Elsa Vitale, Luana Conte, Rosita Pasquadibisceglie, Antonino Calabrò, Cosimo Leone, Maicol Carvello, Roberto Lupo
  Journal of Gerontology and Geriatrics.2024; 72(3): 122.     CrossRef
• Development of the Forman Parkinson’s Disease Symptom Checklist
  Bushra Akram, Ivan Suneel
  Journal of Professional & Applied Psychology .2022; 3(3): 356.     CrossRef
• Effects of Multimodal Rehabilitation on the Activities of Daily Living, Quality of Life, and Burden of Care for Patients with Parkinson’s Disease: A Randomized Control Study
  Hyun-Se Choi, Seung-Hyun Cho
  Healthcare.2022; 10(10): 1888.     CrossRef
• Parkinson's Disease Caregiver Strain in Singapore
  Siok-Bee Tan, Allison F. Williams, Eng-King Tan, Richard B. Clark, Meg E. Morris
  Frontiers in Neurology.2020;[Epub]     CrossRef
• Psychological distress and perceived burden in caregivers of persons with autism spectrum disorder
  Eman Khamis Alnazly, Amjed Abojedi
  Perspectives in Psychiatric Care.2019; 55(3): 501.     CrossRef
• Caregiver Burden, Spirituality, and Psychological Well-Being of Parents Having Children with Thalassemia
  Jawaria Anum, Rabia Dasti
  Journal of Religion and Health.2016; 55(3): 941.     CrossRef
• Predictors of Depression Among Caregivers of Older Adults With Severe Mental Illness
  Sherry M. Cummings, Nancy P. Kropf
  Journal of Gerontological Social Work.2015; 58(3): 253.     CrossRef
• The Relationship among Caregiver Burden, Demographic Variables, and the Clinical Characteristics of Patients with Parkinson’s Disease—A Systematic Review of Studies Using Various Caregiver Burden Instruments
  Ingrid Leiknes, Unn-Tone Lien, Elisabeth Severinsson
  Open Journal of Nursing.2015; 05(10): 855.     CrossRef
• A Structural Model of Health-Related Quality of Life in Parkinson’s Disease Patients
  JuHee Lee, MoonKi Choi, Dukyoo Jung, Young H. Sohn, JinYong Hong
  Western Journal of Nursing Research.2015; 37(8): 1062.     CrossRef
• Factors Affecting Caregiver Burden in Caregivers of Patients with Parkinson's Disease
  Dong Won Kim, Eun Sook Bae
  Korean Journal of Adult Nursing.2015; 27(3): 283.     CrossRef
• Factors Related to Family Caregivers' Burden with the Community-Dwelling Disabled Elderly under the Long-Term Care Insurance System
  Eun-Jeong Han, Jung-Myun Lee, Jin-Hee Kwon, Seul-Bi Shin, Jung-Suk Lee
  Health Policy and Management.2014; 24(1): 71.     CrossRef
• Family caregivers’ experiences of provided home care to persons with Parkinson’s disease
  Ingrid Leiknes, Sevald Høye
  Nordisk sygeplejeforskning.2012; 2(1): 29.     CrossRef
• Factors Influencing Quality of Life in Caregivers of People with Parkinson's Disease and Implications for Clinical Guidelines
  D. Morley, S. Dummett, M. Peters, L. Kelly, P. Hewitson, J. Dawson, R. Fitzpatrick, C. Jenkinson
  Parkinson's Disease.2012; 2012: 1.     CrossRef