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The Experience of Adult Korean Children Caring for Parents Institutionalized with Dementia
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Suhye Kwon, Young-Sook Tae
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J Korean Acad Nurs 2014;44(1):41-54. Published online February 28, 2014
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DOI: https://doi.org/10.4040/jkan.2014.44.1.41
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 Abstract
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Purpose
The purpose of the study was to explore and describe the experience of adult Korean children who are caregivers for parents institutionalized with dementia.
Methods
Participants were fourteen adult children caregivers of elders institutionalized with dementia. Data were collected through in-depth unstructured interviews with individual participants from August to November, 2012. Theoretical sampling was used to the point of theoretical saturation. Data were analyzed using Strauss and Corbin's Grounded Theory Method.
Results
From open coding, 67 concepts, 29 sub-categories, and 14 categories were identified. Analysis revealed that the core category of the experience of adult children caring for their parents institutionalized with dementia was 'enduring the role of a prop' consisting of four phases: initial turmoil, exploration, role adjustment, and acclimation. To manage the role of a prop, participants utilized various action/interactional strategies such as overcoming the unfamiliarity, overseeing the nursing home care, and counterbalancing the caring roles. As a result, participants experienced ambivalence towards the existence of parents with dementia, changes in family relationships, altered viewpoint towards nursing homes, and restructuring of life.
Conclusion
In-depth understanding of the experience will guide nurses to promote effective interventions in order to better support the Korean family caregivers of parents institutionalized with dementia.
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Citations
Citations to this article as recorded by  - Development of the Care Burden Scale for Family of Elderly in Nursing Facilities
Eun Jeong Kim, Kyung Mi Sung
Journal of Korean Academy of psychiatric and Mental Health Nursing.2024; 33(1): 80. CrossRef - A web-based care assistant for caregivers of the elderly: Development and pilot study
Hwawoo Jeon, Yong Suk Choi, Yoonseob Lim
DIGITAL HEALTH.2023;[Epub] CrossRef - Time in the State of Dementia Caregiving in South Korea: When Care Becomes (Non-)Waiting
Jieun Lee
Culture, Medicine, and Psychiatry.2023; 47(4): 898. CrossRef - Depression, anxiety, and sleep quality of caregivers of children with spinal muscular atrophy
Almala Pinar Ergenekon, Zeynep Gümüş, Cansu Yilmaz Yegit, Muruvvet Cenk, Aynur Gulieva, Mine Kalyoncu, Merve Selcuk, Seyda Karabulut, Gulten Ozturk, Ela Erdem Eralp, Olcay Unver, Bulent Karadag, Yasemin Gokdemir
Pediatric Pulmonology.2023; 58(6): 1697. CrossRef - Empathy and perceived burden in caregivers of patients with schizophrenia spectrum disorders
Rosaria Di Lorenzo, Anna Girone, Nunzio Panzera, Gianluca Fiore, Margherita Pinelli, Giulia Venturi, Federica Magarini, Paola Ferri
BMC Health Services Research.2021;[Epub] CrossRef - Family Members’ Experience in Caring for Elderly with Dementia in Long-Term Care Hospitals
Eun Kyoung Suh, Hye Ryoung Kim
Journal of Korean Gerontological Nursing.2020; 22(4): 335. CrossRef - Development and Validation of the Scale for Partnership in Care—for Family (SPIC-F)
Hye-Young Jang, Eun-Ok Song
International Journal of Environmental Research and Public Health.2020; 17(6): 1882. CrossRef - Partnership between staff and family in long-term care facility: a hybrid concept analysis
Hye-Young Jang
International Journal of Qualitative Studies on Health and Well-being.2020; 15(1): 1801179. CrossRef - Development and Psychometric Evaluation of a Fear of Dementia Scale for Community-Dwelling Older Adults
Minkyung LEE, Dukyoo JUNG
Journal of Nursing Research.2020; 28(3): e94. CrossRef - Predictors of Satisfaction with Care Services among Family Members of Older Adult Residents of Long-Term Care Facilities
Eun-Ok Song, Hye-Young Jang
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Minkyung Lee, Dukyoo Jung
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Shuai Liu, Chonghui Li, Zhihong Shi, Xiaodan Wang, Yuying Zhou, Shuling Liu, Jing Liu, Tao Yu, Yong Ji
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Dong-Heun Ahn, Yung-Jin Lee, Ji-Hun Jeong, Yong-Rok Kim, Jong-Bum Park
Annals of Rehabilitation Medicine.2015; 39(1): 74. CrossRef
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Experiences of successful aging in older adults with mild cognitive impairment: raising oneself up in the unsettling crisis of old age
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Haeyun Shin, Suhye Kwon
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Received September 26, 2024 Accepted March 16, 2025 Published online April 2, 2025
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DOI: https://doi.org/10.4040/jkan.24114
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Abstract
 ePub
- Purpose
The purpose of this study was to understand experiences of successful aging experience in older adults with mild cognitive impairment.
Methods
The participants were 15 older adults with mild cognitive impairment who had experienced successful aging. Data were collected from January to October 2021 through individual deep, unstructured interviews. Data analysis was performed using Charmaz’s grounded theory method. In addition, the consolidated criteria for reporting qualitative research checklist was used to ensure the quality of the study.
Results
The key category representing experiences of successful aging experience in older adults with mild cognitive impairment was “raising oneself up in the unsettling crisis of old age.” Four stages were derived: “feeling anguished due to the strange signals of memory,” “being shaken by fading memory,” “maintaining balance for a healthy old age,” and “recovering the composure of old age.”
Conclusion
Participants tried to successfully achieve aging while implementing their own plans and strategies in the midst of the challenges of old age, when the mind and body were unsettled by mild cognitive impairment. The results of this study provide a deep understanding of experiences of successful aging in older adults with mild cognitive impairment, potentially contributing to the development of nursing intervention programs to promote the successful pursuit of aging in this population. In addition, it is necessary to develop and implement a program to facilitate the integration of successful aging in older adults with mild cognitive impairment.
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