Suhye Kwon; Young-Sook Tae

doi:10.4040/jkan.2014.44.1.41

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Original Article
The Experience of Adult Korean Children Caring for Parents Institutionalized with Dementia: Suhye Kwon, Young-Sook Tae; Journal of Korean Academy of Nursing 2014;44(1):41-54.
DOI: https://doi.org/10.4040/jkan.2014.44.1.41
Published online: February 28, 2014

College of Nursing, Kosin University, Busan, Korea.

Address reprint requests to: Tae, Young-Sook. College of Nursing, Kosin University, 262 Gamcheon-ro, Seo-gu, Busan 602-702, Korea. Tel: +82-51-990-6446, Fax: +82-51-990-3031, taehope@kosin.ac.kr

• Received: August 19, 2013 • Revised: September 3, 2013 • Accepted: December 29, 2013

This is an Open Access article distributed under the terms of the Creative Commons Attribution NoDerivs License. (http://creativecommons.org/licenses/by-nd/4.0/) If the original work is properly cited and retained without any modification or reproduction, it can be used and re-distributed in any format and medium.

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Abstract
NOTES
REFERENCES

Abstract

Purpose
The purpose of the study was to explore and describe the experience of adult Korean children who are caregivers for parents institutionalized with dementia.
Methods
Participants were fourteen adult children caregivers of elders institutionalized with dementia. Data were collected through in-depth unstructured interviews with individual participants from August to November, 2012. Theoretical sampling was used to the point of theoretical saturation. Data were analyzed using Strauss and Corbin's Grounded Theory Method.
Results
From open coding, 67 concepts, 29 sub-categories, and 14 categories were identified. Analysis revealed that the core category of the experience of adult children caring for their parents institutionalized with dementia was 'enduring the role of a prop' consisting of four phases: initial turmoil, exploration, role adjustment, and acclimation. To manage the role of a prop, participants utilized various action/interactional strategies such as overcoming the unfamiliarity, overseeing the nursing home care, and counterbalancing the caring roles. As a result, participants experienced ambivalence towards the existence of parents with dementia, changes in family relationships, altered viewpoint towards nursing homes, and restructuring of life.
Conclusion
In-depth understanding of the experience will guide nurses to promote effective interventions in order to better support the Korean family caregivers of parents institutionalized with dementia.
Keywords: Nursing home; Institutionalization; Dementia; Adult children; Family caregivers

This manuscript is a revision of the first author's doctoral dissertation from Kosin University.

REFERENCES

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Figure 1

Theoretical framework for enduring the role of a prop.

Table 1

Relationships among Categories using Paradigm Model

Figure & Data

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The Experience of Adult Korean Children Caring for Parents Institutionalized with Dementia

J Korean Acad Nurs. 2014;44(1):41-54. Published online February 28, 2014

DOI: https://doi.org/10.4040/jkan.2014.44.1.41

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The Experience of Adult Korean Children Caring for Parents Institutionalized with Dementia

Figure 1 Theoretical framework for enduring the role of a prop.

Figure 1

The Experience of Adult Korean Children Caring for Parents Institutionalized with Dementia

Table 1

Relationships among Categories using Paradigm Model

Table 1 Relationships among Categories using Paradigm Model