Sung Sil Hong; Ho Ran Park; Kwang Sung Kim; Sun Hee Choi

doi:10.4040/jkan.2014.44.1.55

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Original Article
Late Effects, Social Adjustment, and Quality of Life in Adolescent Survivors of Childhood Leukemia: Sung Sil Hong, Ho Ran Park, Kwang Sung Kim, Sun Hee Choi; Journal of Korean Academy of Nursing 2014;44(1):55-63.
DOI: https://doi.org/10.4040/jkan.2014.44.1.55
Published online: February 28, 2014

¹Graduate School, The Catholic University of Korea, Seoul, Korea.

²College of Nursing, The Catholic University of Korea, Seoul, Korea.

³BMT Center, Seoul St. Mary's Hospital, The Catholic University of Korea, Seoul, Korea.

Address reprint requests to: Park, Ho Ran. College of Nursing, The Catholic University of Korea, 222 Banpo-daero, Seocho-gu, Seoul 137-701, Korea. Tel: +82-2-2258-7406, Fax: +82-2-2258-7772, hrpark@catholic.ac.kr

• Received: October 15, 2013 • Revised: November 5, 2013 • Accepted: January 2, 2014

This is an Open Access article distributed under the terms of the Creative Commons Attribution NoDerivs License. (http://creativecommons.org/licenses/by-nd/4.0/) If the original work is properly cited and retained without any modification or reproduction, it can be used and re-distributed in any format and medium.

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Abstract
NOTES
REFERENCES

Abstract

Purpose
This study was conducted to examine the late effects, social adjustment, and quality of life in adolescents who had been completely treated for childhood leukemia and their parents.
Methods
Participants consisted of 41 pairs of adolescent survivors (13-18 years) and their parents. Parents checked for their child's physical late effects. The Korean Version of Post-Traumatic Symptoms for psychological late effects, social functioning questionnaire for social adjustment and the PedsQL 4.0 Generic Core Scales for quality of life were completed by adolescents and parents. Data were analyzed using SPSS.
Results
Twenty out of 41 adolescents had one or more physical late effects. Adolescents showed more serious psychological late effect than parents. Five children and seven parents had above cut-off scores and they were considered the high risk group for posttraumatic symptoms. Parent-reported scores were significantly higher than child-reported scores in terms of social adjustment and emotional functioning of quality of life. Low school functioning in adolescents was associated with physical late effects.
Conclusion
The results indicate that long-term and systematic management for childhood leukemia survivors affect positive social adjustment and can further improve quality of life.
Keywords: Leukemia; Survivors; Late effect; Social adjustment; Quality of life

This study was supported by a part of research fund from College of Nursing, The Catholic University of Korea in 2013.

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Figure 1

BMI at study according to transplantation.

Table 1

Socio-demographic and Disease-specific Characteristics

BMI=Body Mass Index.

Table 2

Physical Late Effects (N=41)

^*Multiple response questions; ^†Hyperlipidemia, precocious puberty, etc.; ^‡Hallux valgus, anemia, depression, ovarian cyst (s), febrile seizure, etc.

Table 3

Comparison of Psychological Late Effects, Social Adjustment and Quality of Life between Adolescents and Patents (N=41)

^*Number of above cut-off scores in adolescents and parents.

Table 4

Intercorrelation Coefficients among Psychological Late Effect, Social Adjustment and Quality of Life in Adolescents (N=41)

Figure & Data

REFERENCES

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Late Effects, Social Adjustment, and Quality of Life in Adolescent Survivors of Childhood Leukemia

J Korean Acad Nurs. 2014;44(1):55-63. Published online February 28, 2014

DOI: https://doi.org/10.4040/jkan.2014.44.1.55

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Late Effects, Social Adjustment, and Quality of Life in Adolescent Survivors of Childhood Leukemia

Figure 1 BMI at study according to transplantation.

Figure 1

Late Effects, Social Adjustment, and Quality of Life in Adolescent Survivors of Childhood Leukemia

Table 1

Socio-demographic and Disease-specific Characteristics

BMI=Body Mass Index.

Table 2

Physical Late Effects (N=41)

^*Multiple response questions; ^†Hyperlipidemia, precocious puberty, etc.; ^‡Hallux valgus, anemia, depression, ovarian cyst (s), febrile seizure, etc.

Table 3

Comparison of Psychological Late Effects, Social Adjustment and Quality of Life between Adolescents and Patents (N=41)

^*Number of above cut-off scores in adolescents and parents.

Table 4

Intercorrelation Coefficients among Psychological Late Effect, Social Adjustment and Quality of Life in Adolescents (N=41)

Table 1 Socio-demographic and Disease-specific Characteristics

BMI=Body Mass Index.

Table 2 Physical Late Effects (N=41)

^*Multiple response questions; ^†Hyperlipidemia, precocious puberty, etc.; ^‡Hallux valgus, anemia, depression, ovarian cyst (s), febrile seizure, etc.

Table 3 Comparison of Psychological Late Effects, Social Adjustment and Quality of Life between Adolescents and Patents (N=41)

^*Number of above cut-off scores in adolescents and parents.

Table 4 Intercorrelation Coefficients among Psychological Late Effect, Social Adjustment and Quality of Life in Adolescents (N=41)