Sun Young Son

doi:10.4040/jkan.2011.41.5.603

Articles

Page Path: HOME > J Korean Acad Nurs > Volume 41(5); 2011 > Article

Original Article
Illness Experience of Adolescents with Hematologic Malignancies: Sun Young Son; Journal of Korean Academy of Nursing 2011;41(5):603-612.
DOI: https://doi.org/10.4040/jkan.2011.41.5.603
Published online: October 31, 2011

Transplant Coordinator, Yonsei University College of Medicine, Gangnam Severance Hospital, Seoul, Korea.

Address reprint requests to: Son, Sun Young. Transplant Coordinator, Yonsei University College of Medicine, Gangnam Severance Hospital, 712 Eonjuro, Gangnam-gu, Seoul 135-720, Korea. Tel: +82-2-20196-1265, FAX: +82-2-2019-4827, Childnurse@hanmail.net

• Received: April 2, 2009 • Accepted: October 24, 2011

185 Views
2 Download
8 Crossref
9 Scopus

prev next

Full Article

Download PDF

Abstract
NOTES
REFERENCES

Abstract

Purpose
The purpose of this study was to describe the experience process of adolescents with hematologic malignancies. The question for the study was "What is the experience of adolescents with hematologic malignancies like?".
Methods
The grounded theory methodology was used for this study. The data were collected through in-depth interview from 10 adolescents with hematologic malignancies. Data collection was done from January to June 2007. Theoretical sampling was used until the data reached saturation.
Results
As a result of the analysis, "Reconstructing self-image from deviated and suspended life" was identified as the core category. And 11 subcategories were identified and they were integrated to the core category. 'Establishment of expanded and matured self' was identified as the consequence.
Conclusion
The results of the study provide a frame for effective individualized nursing intervention strategies in helping adjustment of the adolescents with hematologic malignancies.
Keywords: Adolescent; Neoplasms; Social support; Social adjustment; Qualitative research

This article is a revision of the author's doctoral thesis from Yonsei University.

REFERENCES

1. Anholt U, Fritz G, Keener M. Self-concept in survivors of childhood and adolescent cancer. Journal of Psychosocial Oncology. 1993;11:1–6. doi: 10.1300/J077V11N01_01.Article
2. Cassano J, Nagel K, O'Mara L. Talking with others who "Just know": Perceptions of adolescents with cancer who participate in a teen group. Journal of Pediatric Oncology Nursing. 2008;25:193–199. doi: 10.1177/1043454208319972.Article PubMed PDF
3. Chang HS. Attachments to parents, separation-individuation and psychological adjustment in late adolescence. Korean Journal of Developmental Psychology. 2002;15:101–121.
4. Choi JY. Development of a treatment stage based nursing intervention protocol for adolescents with cancer. 2000;Seoul, Yonsei University. Unpublished doctoral dissertation.
5. Enskar K, Carlsson M, Golsater M, Hamrin E, Kreuger A. Parental reports of changes and challenges that result from parenting a child with cancer. Journal of Pediatric Oncology Nursing. 1997;14:156–163. doi: 10.1016/S1043-4542(97)90051-5.Article PubMed
6. Forinder U, Posse E. A life on hold: Adolescents' experiences of stem cell transplantation in a long-term perspective. Journal of Child Health Care. 2009;12:301–313. doi: 10.1177/1367493508096205.Article PDF
7. Griffith K, Hart L. Characteristics of adolescent cancer survivors who pursue postsecondary education. Cancer Nursing. 2000;23:468–475.Article PubMed
8. Hokkanen H, Eriksson E, Ahonen O, Salantera S. Adolescents with cancer: Experience of life and how it could be made easier. Cancer Nursing. 2004;27:325–335.Article PubMed
9. Im SB, Jung CS. A comparison of stressors and coping behaviors of the high school students who have suicidal ideation vs those who do not. Journal of Korean Academy of Nursing. 2002;32:254–264.Article PDF
10. Ishibashi A. The need of children and adolescents with cancer for information and social support. Cancer Nursing. 2001;24:61–67.Article PubMed
11. Kane J, Primomo M. Alleviating the suffering of seriously ill children. American Journal of Hospice Palliative Care. 2001;18:161–169. doi: 10.1177/104990910101800307.Article PubMed PDF
12. Kang KA. The experience of adolescents with cancer. Korean Journal of Nursing Query. 1997;6(2):67–87.
13. Kim HR. The experience of adolescents with childhood cancer in a self-help group program. 2006;Seoul, Yonsei University. Unpublished masters' thesis.
14. Kim HO, Lee JS. Emotional autonomy in Korean and German adolescents. The Korean Journal of Development Psychology. 2006;19:21–40.
15. Lincoln YS, Guba EG. Naturalistic inquiry. 1985;Newbury Park, CA, Sage Publications.
16. Linder LA. Measuring physical symptoms in children and adolescents with cancer. Cancer Nursing. 2005;28:16–26.Article PubMed
17. Meltzer LJ, Rourke MT. Oncology summer camp: Benefits of social comparison. Children's Health Care. 2005;34:305–314. doi: 10.1207/s15326888chc3404_5.Article
18. Ryu EJ, Choi KS, Seo JS, Nam BW. The relationships of internet addiction, depression, and suicidal ideation in adolescents. Journal of Korean Academy of Nursing. 2004;34:102–110.Article PubMed PDF
19. Ryu MA. Content analysis on psychosocial adjustment of adolescent survivors of leukemia. Journal of Korean Academy of Child Health Nursing. 2006;12:304–313.
20. Strauss A, Corbin J. Basics of qualitative research: Techniques and procedures for developing grounded theory. 1998;2nd ed. Thousand Oaks, CA, Sage Publications.
21. Ward-Smith P, McCaskie B, Rhoton S. Adolescent evaluated quality of life: A longitudinal study. Journal of Pediatric Oncology Nursing. 2007;24:329–333. doi: 10.1177/1043454207308067.Article PubMed PDF
22. Whyte F, Smith L. A literature review of adolescence and cancer. European Journal of Cancer Care. 1997;6:137–146. doi: 10.1046/j.1365-2354.1997.00022.x.Article PubMed
23. Woodgate R, Degner L. A substantive theory of keeping the spirit alive: The spirit within children with cancer and their families. Journal of Pediatric Oncology Nursing. 2003;20:103–119. doi: 10.1053/jpon.2003.75.Article PubMed PDF
24. Woodgate RL. A different way of being: Adolescents' Experiences with cancer. Cancer Nursing. 2005;28:8–15.Article PubMed
25. Woodgate RL. The importance of being there: Perspective of social support by adolescents with cancer. Journal of Pediatric Oncology Nursing. 2006a;23:122–134. doi: 10.1177/1043454206287396.PubMed
26. Woodgate RL. Life is never the same: Childhood cancer narratives. European Journal of Cancer Care. 2006b;15:8–18. doi: 10.1111/j.1365-2354.2005.00614.x.Article PubMed
27. Woodgate RL. Feeling state. Cancer Nursing. 2008;31:229–238.PubMed

Figure 1

Adjustment process of Korean adolescents to hematologic malignancies.

Table 1

The Characteristics of Participants

Figure & Data

REFERENCES

Citations

Citations to this article as recorded by

Development and psychometric properties of the social adjustment scale for youth cancer survivors in South Korea
Sumi Oh, Hyejung Lee, Sue Kim, Sanghee Kim, Chuhl Joo Lyu, Chang Gi Park, Hyoung Jin Kang
Asia-Pacific Journal of Oncology Nursing.2023; 10(7): 100241. CrossRef
Parents’ Perception of Self-Management Behaviors for Their Children With Spina Bifida in South Korea: A Qualitative Study
Hyun Jung Yun, Eun Kyoung Choi, Sang Won Han
Rehabilitation Nursing.2021; 46(2): 73. CrossRef
Health-related Quality of Life of Children and Adolescents after Hematopoietic Stem Cell Transplantation
Yu Min Hwang, Kyung-Sook Bang
Child Health Nursing Research.2020; 26(4): 402. CrossRef
Posttraumatic Growth of Adolescents with Childhood Leukemia and their Parents
Sungsil Hong, Ho Ran Park, Sun Hee Choi
Child Health Nursing Research.2019; 25(1): 9. CrossRef
Measurement Properties of Self-Report Questionnaires Measuring the Social Adjustment for Youth after Treatment of Childhood Cancer: Systematic Review
Su-Mi Oh, Sun-Young Park, Hye-Jung Lee, Ju Hee Lee
Child Health Nursing Research.2018; 24(1): 78. CrossRef
The Illness Adaptation Process of Patients Suffering from Myelodysplastic Syndrome (MDS): Doing My Best in Uncertainty
Ae-Kyung Kim
Korean Journal of Adult Nursing.2017; 29(5): 472. CrossRef
Predictors of Resilience in Adolescents with Leukemia
Sung Sil Hong, Ho Ran Park
Journal of Korean Academy of Nursing.2015; 45(4): 595. CrossRef
Impact of psychological and cancer-related factors on HRQoL for Korean childhood cancer survivors
Myung Ah Rhee, Kyong Mee Chung, Yuri Lee, Hana K. Choi, Jung Woo Han, Hyo Sun Kim, Sun Hee Kim, Yoon Jung Shin, Chuhl Joo Lyu
Quality of Life Research.2014; 23(9): 2603. CrossRef

Cite

CITE: export Copy Download Format; Close

Download Citation

Download a citation file in RIS format that can be imported by all major citation management software, including EndNote, ProCite, RefWorks, and Reference Manager.

Format: