Skip Navigation
Skip to contents

J Korean Acad Nurs : Journal of Korean Academy of Nursing

OPEN ACCESS

Author index

Page Path
HOME > Browse articles > Author index
Search
Woo Joung Joung 3 Articles
Illness Experience of Married Korean Women with Epilepsy
Young-Min Shon, Woo Joung Joung
J Korean Acad Nurs 2017;47(3):289-304.   Published online January 15, 2017
DOI: https://doi.org/10.4040/jkan.2017.47.3.289
AbstractAbstract PDF
Abstract Purpose

The purpose of this study was to understand and describe the illness experience of married Korean women with epilepsy.

Methods

Data were collected during 2015~2016 through individual in-depth interviews with 12 married women with epilepsy. Verbatim transcripts were analyzed using Giorgi's phenomenological analysis to uncover the meaning of the illness experience of the participants.

Results

The study results showed that the illness experience of married Korean women with epilepsy was clustered into a specific description of situated structure and a general description of situated structure. Six themes from 20 meaning units were identified: 1) Undermined self-esteem with stigma of being epileptic; 2) Limited social interaction; 3) Suffering sorrow as a ‘disqualified being’; 4) Shuttling back and forth across the boundary between healthy and epileptic; 5) Desperate struggle to meet the expectation of given role; 6) Self-empowering through self-restriction and realization.

Conclusion

The findings from this study show that both the enacted and felt stigma of epilepsy impact on the life of married Korean women with epilepsy. Although the participants face social and interpersonal restriction and prejudices, they try their best to fulfill their role rather than to be cared for as patients. As the stigma and hardships of the participants are related to lack of knowledge, health professionals should focus not just on clinical intervention but also on providing targeted educational programs and counseling for these women to dispel the stigma of the disease and to increase their quality of life.

Citations

Citations to this article as recorded by  
  • Systematic review of frequency of felt and enacted stigma in epilepsy and determining factors and attitudes toward persons living with epilepsy—Report from the International League Against Epilepsy Task Force on Stigma in Epilepsy
    Churl‐Su Kwon, Ann Jacoby, Amza Ali, Joan Austin, Gretchen L. Birbeck, Patricia Braga, J. Helen Cross, Hanneke de Boer, Tarun Dua, Paula T. Fernandes, Kirsten M. Fiest, Jonathan Goldstein, Sheryl Haut, Diane Lorenzetti, Janet Mifsud, Solomon Moshe, Karen
    Epilepsia.2022; 63(3): 573.     CrossRef
  • Structural Equation Modeling on Health-Related Quality of Life in Adults with Epilepsy
    Jeong Ok Ko, Myung Ha Lee
    Journal of Korean Academy of Nursing.2017; 47(5): 624.     CrossRef
  • 594 View
  • 3 Download
  • 2 Crossref
Close layer
Hermeneutic Phenomenological Study on Caring Experience of the Mothers of Children with Epilepsy
Woo Joung Joung, Myungsun Yi
J Korean Acad Nurs 2017;47(1):71-85.   Published online February 28, 2017
DOI: https://doi.org/10.4040/jkan.2017.47.1.71
AbstractAbstract PDF
Purpose

The purpose of this study was to develop a deeper understanding of the experience of mothers caring for children with epilepsy.

Methods

Data were collected through individual in-depth interviews and observation from 12 mothers of children with epilepsy. Data were collected from December, 2014 to February, 2015 and analyzed using van Manen's hermeneutic phenomenological methodology to identify essential themes of their experience.

Results

The essential themes that fit into the context of the 4-existential grounds of time, body, other people, and space were: Lived time-ongoing influence of the past, living in insecure present, fearful future with no answer; Lived body-bonded body, burned out state; Lived other-burden but also support, shrunken down; Lived space-narrowed range of activity, widened horizon.

Conclusion

The findings in this study show in-depth understanding of the hardships of mothers who are caring for children with epilepsy. The beauty and greatness of these mothers are revealed through the analysis of various phenomenological materials such as literary and artistic work reflecting socio-cultural context, as well as vivid care experiences of mothers of children with epilepsy. This will be helpful in increasing understanding of the nature of caregivers' experience for medical professionals dealing with patients and caregivers. Also it helps to improve the understanding of the disease among the general public, followed by a more warming and caring attitude towards patients and family members. Finally, it will enhance psychological well-being and overall quality of life of the epileptic children and their families.

Citations

Citations to this article as recorded by  
  • Development of a parent questionnaire to assess treatment adherence for a child or adolescent with epilepsy
    Juna Lee, Ju Young Yoon
    Epilepsy & Behavior.2023; 140: 109112.     CrossRef
  • A Predictive Model of Resilience in Mothers of Children with Developmental Disabilities
    Youyoung Cho, Hyeonok Kim
    Journal of Korean Academy of Nursing.2022; 52(4): 407.     CrossRef
  • 444 View
  • 4 Download
  • 2 Crossref
Close layer
Decision Making Experience on Breast Reconstruction for Women with Breast Cancer
Myungsun Yi, Woo Joung Joung, Eun Young Park, Eun Jin Kwon, Haejin Kim, Ji Young Seo
J Korean Acad Nurs 2016;46(6):894-904.   Published online December 30, 2016
DOI: https://doi.org/10.4040/jkan.2016.46.6.894
AbstractAbstract PDF
Purpose

The purpose of this study was to explore decision making experiences of Korean women with breast cancer who underwent breast reconstruction with/after a mastectomy.

Methods

Data were collected during 2015-2016 through individual in-depth interviews with 10 women who had both mastectomy and breast reconstruction, and analyzed using phenomenological method to identify essential themes on experiences of making a decision to have breast reconstruction.

Results

Five theme clusters emerged. First, “expected loss of sexuality and discovery of autonomy” illustrates various aims of breast reconstruction. Second, “holding tight to the reputation of doctors amid uncertainty” specifies the importance of a trust relationship with their physician despite a lack of information. Third, “family members to step back in position” describes support or opposition from family members in the decision making process. Fourth, “bewilderment due to the paradox of appearance-oriented views” illustrates paradoxical environment, resulting in confusion and anger. Lastly, “decision to be made quickly with limited time to oneself” describes the crazy whirling process of decision making.

Conclusion

Findings highlight aims, worries, barriers, and facilitators that women with breast cancer experience when making a decision about breast reconstruction. Deciding on breast reconstruction was not only a burden for women in a state of shock with a diagnosis of breast cancer, but also an opportunity to decide to integrate their body, femininity, and self which might be wounded from a mastectomy. These findings will help oncology professionals provide effective educational counselling before the operation to promote higher satisfaction after the operation.

Citations

Citations to this article as recorded by  
  • Influence of body image on quality of life in breast cancer patients undergoing breast reconstruction: Mediating of self‐esteem
    Yunhee Jang, Mihyeon Seong, Sohyune Sok
    Journal of Clinical Nursing.2023; 32(17-18): 6366.     CrossRef
  • Effects of decision aids on breast reconstruction: A systematic review and meta‐analysis of randomised controlled trials
    Shu Yang, Lin Yu, Chunmiao Zhang, Mengmeng Xu, Qi Tian, Xuan Cui, Yantong Liu, Shuanghan Yu, Minglu Cao, Wei Zhang
    Journal of Clinical Nursing.2023; 32(7-8): 1025.     CrossRef
  • “Struggling to Accept the New Breast as Part of My Body” – The Challenge of Immediate Breast Reconstruction in Women With Breast Cancer
    Jeehee Han, Juhye Jin, Sanghee Kim, Dong Won Lee, Sue Kim
    Cancer Nursing.2022; 45(4): 262.     CrossRef
  • Do COVID-19–Related Treatment Changes Influence Fear of Cancer Recurrence, Anxiety, and Depression in Breast Cancer Patients?
    Soo Yeon Kim, Sue Kim
    Cancer Nursing.2022; 45(2): E628.     CrossRef
  • A Decision Tree Model for Breast Reconstruction of Women with Breast Cancer: A Mixed Method Approach
    Eun Young Park, Myungsun Yi, Hye Sook Kim, Haejin Kim
    International Journal of Environmental Research and Public Health.2021; 18(7): 3579.     CrossRef
  • The Lived Experience of Body Alteration and Body Image with Regard to Immediate Breast Reconstruction among Women with Breast Cancer
    Jeonghee Ahn, Eunyoung E Suh
    Journal of Korean Academy of Nursing.2021; 51(2): 245.     CrossRef
  • Factors Influencing Quality of Life Among Breast Cancer Patients Following Immediate Breast Reconstruction
    A Young Kim, Jeong Hye Kim
    Asian Oncology Nursing.2020; 20(1): 1.     CrossRef
  • Korean Translation and Psychometric Evaluation of Korean Version EORTC QLQ-BRECON23
    Soo-Kyung Bok, Youngshin Song, Ancho Lim, Hyunsuk Choi, Hyunkyung Shin, Sohyun Jin
    International Journal of Environmental Research and Public Health.2020; 17(24): 9163.     CrossRef
  • Operation Experiences of Women with Breast Cancer
    Hyeon-Young Kim, Sun Hwa Shin
    Journal of Korean Academy of Fundamentals of Nursing.2020; 27(2): 129.     CrossRef
  • “Waiting for breast reconstruction”: An interpretative phenomenological analysis of heterosexual couples’ experiences of mastectomy for breast cancer
    Kristopher Lamore, Cécile Flahault, Léonor Fasse, Aurélie Untas
    European Journal of Oncology Nursing.2019; 42: 42.     CrossRef
  • Breast reconstruction statistics in Korea from the Big Data Hub of the Health Insurance Review and Assessment Service
    Jae-Won Kim, Jun-Ho Lee, Tae-Gon Kim, Yong-Ha Kim, Kyu Jin Chung
    Archives of Plastic Surgery.2018; 45(05): 441.     CrossRef
  • 235 View
  • 6 Download
  • 11 Crossref
Close layer

J Korean Acad Nurs : Journal of Korean Academy of Nursing
Close layer
TOP