-
Shifting of Centricity: Qualitative Meta Synthetic Approach on Caring Experience of Family Members of Patients with Dementia
-
Young Mi Ryu, Mi Yu, Seieun Oh, Haeyoung Lee, Haejin Kim
-
J Korean Acad Nurs 2018;48(5):601-621. Published online January 15, 2018
-
DOI: https://doi.org/10.4040/jkan.2018.48.5.601
-
-
Abstract
PDF
- Abstract
Purpose
This study aimed to synthesize the caring experiences of Korean family members of patients with dementia through a qualitative meta-synthesis method.
Methods
By searching through nine Korean and English databases, we compared 37 qualitative studies on caring experiences of family members of patients with dementia. The selected studies were synthesized through meta-synthesis, proposed by Sandelowski and Barroso (2007).
Results
The meta-synthesis elicited four themes: tough life due to care for patients, changes in relationships, adaptation to caregiver's roles, and new perspectives of life through personal growth. Caregivers were shocked when a sudden diagnosis of dementia was made prior to any preparation on their part. They were tied to their patients all the time and their mind and body got exhausted. Their relationship with patients began to change and they looked at them differently. They experienced conflicts with the other non-caring family members and were alienated from them. They were also socially isolated. However, by building their own care strategies and utilizing social resources, they gradually adapted to their caregiver roles. Finally, they experienced personal growth and acquired a new perspective toward life by accepting their roles and finding meaning in their lives. Shifting the caregiver's centricity from themselves to the patient was the process of becoming human beings who actively constructed their realities while giving meaning to their painful lives and interacting with the environment.
Conclusion
The results of the study can be useful for nurses in understanding the experiences of caregivers of the patients with dementia and in providing them with practical interventions.
-
Citations
Citations to this article as recorded by 
- A qualitative meta-synthesis of the essence of patient experiences of dialysis
Soyoung Jang, Eunyoung E. Suh, Yoonhee Seok Journal of Korean Academy of Nursing.2025; 55(1): 119. CrossRef - Self-care experiences of male spouses of people with dementia: a descriptive phenomenological study
Sua Jung, Jun-Ah Song Aging & Mental Health.2025; : 1. CrossRef - Time Usage and Satisfaction Based on Occupational Area Between Weekdays and Weekends of Family Caregivers and Non-family Caregivers of Dementia Patients
Woo-Hyuk Jang, Jong-Hwi Park Annals of Indian Academy of Neurology.2024; 27(5): 543. CrossRef - Health and medical experience of migrant workers: qualitative meta-synthesis
Hyun-Jin Cho, Kyoungrim Kang, Kyo-Yeon Park Archives of Public Health.2024;[Epub] CrossRef - Time usage analysis according to occupational area and satisfaction level in family caregivers of dementia patients
Woo-Hyuk Jang, Jong-Sik Jang, Jong-Hwi Park PeerJ.2023; 11: e15178. CrossRef - Factors related to depression in primary caregivers of older adults with dementia in the COVID-19 pandemic era: A cross-sectional descriptive study
Su-In Kim, Gwi-Ryung Son Hong Journal of Korean Gerontological Nursing.2023; 25(4): 420. CrossRef - Partners' Experience of Informal Caregiving for Patients With Heart Failure
Zequan Wang, Christine Tocchi Journal of Cardiovascular Nursing.2023; 38(2): E40. CrossRef - Caring Experience of Spouse Caregivers of Persons with Alzheimer's Disease: A Qualitative Study
Jin-Hee Lee, Gwi-Ryung Son Hong Journal of Korean Gerontological Nursing.2022; 24(3): 257. CrossRef - Korean Family Caregivers' Experiences With Managing Behavioral and Psychological Symptoms of Dementia: Keeping Harmony in Daily Life
Jiyeon Kim, Jun-Ah Song, Sua Jung, Hongjin Cheon, Jiyeon Kim Research in Gerontological Nursing.2022; 15(3): 141. CrossRef - Family Caregiver Suffering in Caring for Patients with Amyotrophic Lateral Sclerosis in Korea
Juyeon Oh, Jung-A Kim, Min Sun Chu International Journal of Environmental Research and Public Health.2021; 18(9): 4937. CrossRef - Relationship between Caring Burden and Caring Behavior among Family Caregivers of Elderly with Dementia in Community-Dwelling: Mediating Effects of Caring Self-Efficacy and Social Support
Young Ju Oh, Myung Ha Lee, Hee Sun Kim Korean Journal of Adult Nursing.2020; 32(2): 186. CrossRef - Family Members’ Experience in Caring for Elderly with Dementia in Long-Term Care Hospitals
Eun Kyoung Suh, Hye Ryoung Kim Journal of Korean Gerontological Nursing.2020; 22(4): 335. CrossRef - Caring experiences of family caregivers of patients with heart failure: A meta-ethnographic review of the past 10 years
Eun Young Kim, Seieun Oh, Youn-Jung Son European Journal of Cardiovascular Nursing.2020; 19(6): 473. CrossRef - Influencing Factors on Care Burden among Family Caregivers for Elders with Dementia: Focusing on Family Caregivers using a Support Center for Dementia
Kyung Choon Lim Journal of Korean Academic Society of Nursing Education.2019; 25(1): 136. CrossRef
-
371
View
-
8
Download
-
14
Crossref
-
Decision Making Experience on Breast Reconstruction for Women with Breast Cancer
-
Myungsun Yi, Woo Joung Joung, Eun Young Park, Eun Jin Kwon, Haejin Kim, Ji Young Seo
-
J Korean Acad Nurs 2016;46(6):894-904. Published online December 30, 2016
-
DOI: https://doi.org/10.4040/jkan.2016.46.6.894
-
-
Abstract
PDF
-
Purpose
The purpose of this study was to explore decision making experiences of Korean women with breast cancer who underwent breast reconstruction with/after a mastectomy.
Methods
Data were collected during 2015-2016 through individual in-depth interviews with 10 women who had both mastectomy and breast reconstruction, and analyzed using phenomenological method to identify essential themes on experiences of making a decision to have breast reconstruction.
Results
Five theme clusters emerged. First, “expected loss of sexuality and discovery of autonomy” illustrates various aims of breast reconstruction. Second, “holding tight to the reputation of doctors amid uncertainty” specifies the importance of a trust relationship with their physician despite a lack of information. Third, “family members to step back in position” describes support or opposition from family members in the decision making process. Fourth, “bewilderment due to the paradox of appearance-oriented views” illustrates paradoxical environment, resulting in confusion and anger. Lastly, “decision to be made quickly with limited time to oneself” describes the crazy whirling process of decision making.
Conclusion
Findings highlight aims, worries, barriers, and facilitators that women with breast cancer experience when making a decision about breast reconstruction. Deciding on breast reconstruction was not only a burden for women in a state of shock with a diagnosis of breast cancer, but also an opportunity to decide to integrate their body, femininity, and self which might be wounded from a mastectomy. These findings will help oncology professionals provide effective educational counselling before the operation to promote higher satisfaction after the operation.
-
Citations
Citations to this article as recorded by 
- Influence of body image on quality of life in breast cancer patients undergoing breast reconstruction: Mediating of self‐esteem
Yunhee Jang, Mihyeon Seong, Sohyune Sok Journal of Clinical Nursing.2023; 32(17-18): 6366. CrossRef - Effects of decision aids on breast reconstruction: A systematic review and meta‐analysis of randomised controlled trials
Shu Yang, Lin Yu, Chunmiao Zhang, Mengmeng Xu, Qi Tian, Xuan Cui, Yantong Liu, Shuanghan Yu, Minglu Cao, Wei Zhang Journal of Clinical Nursing.2023; 32(7-8): 1025. CrossRef - “Struggling to Accept the New Breast as Part of My Body” – The Challenge of Immediate Breast Reconstruction in Women With Breast Cancer
Jeehee Han, Juhye Jin, Sanghee Kim, Dong Won Lee, Sue Kim Cancer Nursing.2022; 45(4): 262. CrossRef - Do COVID-19–Related Treatment Changes Influence Fear of Cancer Recurrence, Anxiety, and Depression in Breast Cancer Patients?
Soo Yeon Kim, Sue Kim Cancer Nursing.2022; 45(2): E628. CrossRef - A Decision Tree Model for Breast Reconstruction of Women with Breast Cancer: A Mixed Method Approach
Eun Young Park, Myungsun Yi, Hye Sook Kim, Haejin Kim International Journal of Environmental Research and Public Health.2021; 18(7): 3579. CrossRef - The Lived Experience of Body Alteration and Body Image with Regard to Immediate Breast Reconstruction among Women with Breast Cancer
Jeonghee Ahn, Eunyoung E Suh Journal of Korean Academy of Nursing.2021; 51(2): 245. CrossRef - Factors Influencing Quality of Life Among Breast Cancer Patients Following Immediate Breast Reconstruction
A Young Kim, Jeong Hye Kim Asian Oncology Nursing.2020; 20(1): 1. CrossRef - Korean Translation and Psychometric Evaluation of Korean Version EORTC QLQ-BRECON23
Soo-Kyung Bok, Youngshin Song, Ancho Lim, Hyunsuk Choi, Hyunkyung Shin, Sohyun Jin International Journal of Environmental Research and Public Health.2020; 17(24): 9163. CrossRef - Operation Experiences of Women with Breast Cancer
Hyeon-Young Kim, Sun Hwa Shin Journal of Korean Academy of Fundamentals of Nursing.2020; 27(2): 129. CrossRef - “Waiting for breast reconstruction”: An interpretative phenomenological analysis of heterosexual couples’ experiences of mastectomy for breast cancer
Kristopher Lamore, Cécile Flahault, Léonor Fasse, Aurélie Untas European Journal of Oncology Nursing.2019; 42: 42. CrossRef - Breast reconstruction statistics in Korea from the Big Data Hub of the Health Insurance Review and Assessment Service
Jae-Won Kim, Jun-Ho Lee, Tae-Gon Kim, Yong-Ha Kim, Kyu Jin Chung Archives of Plastic Surgery.2018; 45(05): 441. CrossRef
-
235
View
-
6
Download
-
11
Crossref
|