1College of Nursing, Chonbuk National University, Jeonju, Korea.
2College of Nursing, Korea University, Seoul, Korea.
Address reprint requests to: Lee, Sook Ja. College of Nursing, Korea University, 126-1 Anam-dong 5ga, Sungbuk-gu, Seoul 136-705, Korea. Tel: +82-2-3290-4914, Fax: +82-2-927-4676, scslee@korea.ac.kr
• Received: April 16, 2013 • Accepted: August 20, 2013
The purpose of this study was to explore the health-illness transition of patients with Young-Onset Parkinson's Disease (YOPD).
Methods
From June to November 2011, 17 patients with YOPD who visited a neurologic clinic in a tertiary hospital participated in the study. Data were collected through in-depth interviews and analyzed using the grounded theory of Strauss and Corbin.
Results
The core category of the participants' health-illness transition emerged as 'reshaping identity following uncontrollable changes'. The participants' health-illness transition process consisted of six phases in sequence: ego withdrawal, loss of role, frustration, change of thought, modification of life tract, and second life. Although most participants proceeded through the six phases chronologically, some returned to the frustration phase and then took up the remaining phases.
Conclusion
The study results provide an in-depth understanding of health-illness transition experiences in the participants. These findings suggest a need to develop appropriate nursing intervention strategies according to the different phases in the health-illness transition of patients with YOPD.
8. Fox SH, Katzenschlager R, Lim SY, Ravina B, Seppi K, Coelho M, et al. The movement disorder society evidence-based medicine review update: Treatments for the motor symptoms of Parkinson's disease. Mov Disord. 2011;26:Suppl 3. S2–S41. http://dx.doi.org/10.1002/mds.23829ArticlePubMed
10. Guba EG, Lincoln YS. Effective evaluation: Improving the usefulness of evaluation results through responsive and naturalistic approaches. San Francisco, CA: Jossey-Bass; 1981.
12. Kim SR, Chung SJ, Hee SY, Im JH, Lee MC. Factors related to quality of life in patients with Parkinson's disease. J Korean Neurol Assoc. 2005;23(6):770–775.
15. Lee KO, Lyoo CH, Lee MS. Parkin gene mutation in Korean patients with young age onset sporadic Parkinson's disease. J Korean Neurol Assoc. 2006;24(1):26–30.
16. Meleis AI, Sawyer LM, Im EO, Messias DK, Schumacher K. Experiencing transitions: An emerging middle-range theory. ANS Adv Nurs Sci. 2000;23(1):12–28.Article
18. Park YR. Process of seeking positive life of patients with Parkinson' s disease. J Korean Acad Nurs. 2006;36(5):710–720.ArticlePDF
19. Periquet M, Latouche M, Lohmann E, Rawal N, De Michele G, Ricard S, et al. Parkin mutations are frequent in patients with isolated early-onset parkinsonism. Brain. 2003;126(Pt 6):1271–1278.ArticlePubMed
20. Schrag A, Ben-Shlomo Y, Quinn NP. Cross sectional prevalence survey of idiopathic Parkinson's disease and Parkinsonism in London. BMJ. 2000;321(7252):21–22.ArticlePubMedPMC
21. Schrag A, Hovris A, Morley D, Quinn N, Jahanshahi M. Young-versus older-onset Parkinson's disease: Impact of disease and psychosocial consequences. Mov Disord. 2003;18(11):1250–1256. http://dx.doi.org/10.1002/mds.10527ArticlePubMed
24. Strauss A, Corbin JM. Basics of qualitative research: Techniques and procedures for developing grounded theory. 2nd ed. Thousand Oaks, CA: Sage Publications, Inc; 1998.
25. Whitney CM. Maintaining the square. How older adults with Parkinson's disease sustain quality in their lives. J Gerontol Nurs. 2004;30(1):28–35.ArticlePubMed
26. Williams S, Keady J. 'stony road… 19 year journey' ridging' hrough late-stage Parkinson' disease. J Res Nurs. 2008;13(5):373–388. http://dx.doi.org/10.1177/1744987108095160
Figure 1
Health-illness transition process of patients with Young-Onset Parkinson's Disease: Reshaping identity following uncontrollable changes.
Figure & Data
REFERENCES
Citations
Citations to this article as recorded by
Factors Associated With Uncertainty in Illness Among People With Parkinson’s Disease MoonKi Choi, JuHee Lee, Eui Geum Oh, Sang Hui Chu, Young H. Sohn, Chang Gi Park Clinical Nursing Research.2020; 29(7): 469. CrossRef
Issues on Health Care for People With Parkinson's Disease in Korea JuHee Lee, Yonju Yoo, Sangwoo Ahn, MoonKi Choi Topics in Geriatric Rehabilitation.2018; 34(2): 131. CrossRef
Lived Experiences of Elderly Living Alone with Parkinson Disease Yang Sin Kim, Hee Kyung Kim, Yangsook Lee Korean Journal of Adult Nursing.2018; 30(4): 394. CrossRef
Association among type D personality, non-motor symptoms, and quality of life in Parkinson's disease: A cross-sectional study Sung Reul Kim, Ji Young Kim, Hyun Kyung Kim, Kyeung Eun Lim, Mi Sun Kim, Sun Ju Chung Geriatric Nursing.2017; 38(5): 431. CrossRef