Sung Reul Kim; Sook Ja Lee

doi:10.4040/jkan.2013.43.5.636

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Original Article
Health-Illness Transition of Patients with Young-Onset Parkinson's Disease: Sung Reul Kim, Sook Ja Lee; Journal of Korean Academy of Nursing 2013;43(5):636-648.
DOI: https://doi.org/10.4040/jkan.2013.43.5.636
Published online: October 31, 2013

¹College of Nursing, Chonbuk National University, Jeonju, Korea.

²College of Nursing, Korea University, Seoul, Korea.

Address reprint requests to: Lee, Sook Ja. College of Nursing, Korea University, 126-1 Anam-dong 5ga, Sungbuk-gu, Seoul 136-705, Korea. Tel: +82-2-3290-4914, Fax: +82-2-927-4676, scslee@korea.ac.kr

• Received: April 16, 2013 • Accepted: August 20, 2013

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Abstract
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REFERENCES

Abstract

Purpose
The purpose of this study was to explore the health-illness transition of patients with Young-Onset Parkinson's Disease (YOPD).
Methods
From June to November 2011, 17 patients with YOPD who visited a neurologic clinic in a tertiary hospital participated in the study. Data were collected through in-depth interviews and analyzed using the grounded theory of Strauss and Corbin.
Results
The core category of the participants' health-illness transition emerged as 'reshaping identity following uncontrollable changes'. The participants' health-illness transition process consisted of six phases in sequence: ego withdrawal, loss of role, frustration, change of thought, modification of life tract, and second life. Although most participants proceeded through the six phases chronologically, some returned to the frustration phase and then took up the remaining phases.
Conclusion
The study results provide an in-depth understanding of health-illness transition experiences in the participants. These findings suggest a need to develop appropriate nursing intervention strategies according to the different phases in the health-illness transition of patients with YOPD.
Keywords: Parkinson disease; Qualitative research; Transition

This manuscript is based on a part of the first author's doctoral dissertation from Korea University.

REFERENCES

1. Burgener SC, Berger B. Measuring perceived stigma in persons with progressive neurological disease: Alzheimer's dementia and Parkinson's disease. Dementia. 2008;7(1):31–53. http://dx.doi.org/10.1177/1471301207085366Article PDF
2. Calne SM, Kumar A. Young onset Parkinson's disease. Practical management of medical issues. Parkinsonism Relat Disord. 2008;14(2):133–142. http://dx.doi.org/10.1016/j.parkreldis.2007.07.007Article PubMed
3. Calne SM, Lidstone SC, Kumar A. Psychosocial issues in young-onset Parkinson's disease: Current research and challenges. Parkinsonism Relat Disord. 2008;14(2):143–150. http://dx.doi.org/10.1016/j.parkreldis.2007.07.012Article PubMed
4. Chick N, Meleis AI. Transitions: A nursing concern. In: Chinn P, editor. Nursing research methodology: Issues and implementation. Rockville, MD: Aspen Publishers; 1986. p. 237–257.
5. Chung SJ. Genetics in Parkinson' disease. J Korean Med Assoc. 2011;54(1):70–78. http://dx.doi.org/10.5124/jkma.2011.54.1.70Article
6. de Lau LM, Breteler MM. Epidemiology of Parkinson's disease. Lancet Neurol. 2006;5(6):525–535. http://dx.doi.org/10.1016/s1474-4422(06)70471-9Article PubMed
7. Ellis JM. Psychological transition into a residential care facility: Older people's experiences. J Adv Nurs. 2010;66(5):1159–1168. http://dx.doi.org/10.1111/j.1365-2648.2010.05280.xArticle PubMed
8. Fox SH, Katzenschlager R, Lim SY, Ravina B, Seppi K, Coelho M, et al. The movement disorder society evidence-based medicine review update: Treatments for the motor symptoms of Parkinson's disease. Mov Disord. 2011;26:Suppl 3. S2–S41. http://dx.doi.org/10.1002/mds.23829Article PubMed
9. Fox SH, Lang AE. Levodopa-related motor complicationsphenomenology. Mov Disord. 2008;23:Suppl 3. S509–S514. http://dx.doi.org/10.1002/mds.22021Article PubMed PDF
10. Guba EG, Lincoln YS. Effective evaluation: Improving the usefulness of evaluation results through responsive and naturalistic approaches. San Francisco, CA: Jossey-Bass; 1981.
11. Haahr A, Kirkevold M, Hall EO, Østergaard K. Living with advanced Parkinson's disease: A constant struggle with unpredictability. J Adv Nurs. 2011;67(2):408–417. http://dx.doi.org/10.1111/j.1365-2648.2010.05459.xArticle PubMed
12. Kim SR, Chung SJ, Hee SY, Im JH, Lee MC. Factors related to quality of life in patients with Parkinson's disease. J Korean Neurol Assoc. 2005;23(6):770–775.
13. Kostić VS. Treatment of young-onset Parkinson's disease: Role of dopamine receptor agonists. Parkinsonism Relat Disord. 2009;15:Suppl 4. S71–S75. http://dx.doi.org/10.1016/s1353-8020(09)70839-9Article PubMed
14. Kralik D, Visentin K, van Loon A. Transition: A literature review. J Adv Nurs. 2006;55(3):320–329. http://dx.doi.org/10.1111/j.1365-2648.2006.03899.xArticle PubMed
15. Lee KO, Lyoo CH, Lee MS. Parkin gene mutation in Korean patients with young age onset sporadic Parkinson's disease. J Korean Neurol Assoc. 2006;24(1):26–30.
16. Meleis AI, Sawyer LM, Im EO, Messias DK, Schumacher K. Experiencing transitions: An emerging middle-range theory. ANS Adv Nurs Sci. 2000;23(1):12–28.Article
17. National Health Insurance Service. 2002-2008 medical treatment trends analysis of geriatric diseases in Korea. 2010;Retrieved February 1, 2010. from http://www.nhic.or.kr/cms/board/board/Board.jsp?act=VIEW&communityKey=B0039&boardId=21956
18. Park YR. Process of seeking positive life of patients with Parkinson' s disease. J Korean Acad Nurs. 2006;36(5):710–720.Article PDF
19. Periquet M, Latouche M, Lohmann E, Rawal N, De Michele G, Ricard S, et al. Parkin mutations are frequent in patients with isolated early-onset parkinsonism. Brain. 2003;126(Pt 6):1271–1278.Article PubMed
20. Schrag A, Ben-Shlomo Y, Quinn NP. Cross sectional prevalence survey of idiopathic Parkinson's disease and Parkinsonism in London. BMJ. 2000;321(7252):21–22.Article PubMed PMC
21. Schrag A, Hovris A, Morley D, Quinn N, Jahanshahi M. Young-versus older-onset Parkinson's disease: Impact of disease and psychosocial consequences. Mov Disord. 2003;18(11):1250–1256. http://dx.doi.org/10.1002/mds.10527Article PubMed
22. Schrag A, Schott JM. Epidemiological, clinical, and genetic characteristics of early-onset parkinsonism. Lancet Neurol. 2006;5(4):355–363. http://dx.doi.org/10.1016/s1474-4422(06)70411-2Article PubMed
23. Stocchi F, Tagliati M, Olanow CW. Treatment of levodopa-induced motor complications. Mov Disord. 2008;23:Suppl 3. S599–S612. http://dx.doi.org/10.1002/mds.22052Article PubMed PDF
24. Strauss A, Corbin JM. Basics of qualitative research: Techniques and procedures for developing grounded theory. 2nd ed. Thousand Oaks, CA: Sage Publications, Inc; 1998.
25. Whitney CM. Maintaining the square. How older adults with Parkinson's disease sustain quality in their lives. J Gerontol Nurs. 2004;30(1):28–35.Article PubMed
26. Williams S, Keady J. 'stony road… 19 year journey' ridging' hrough late-stage Parkinson' disease. J Res Nurs. 2008;13(5):373–388. http://dx.doi.org/10.1177/1744987108095160

Figure 1

Health-illness transition process of patients with Young-Onset Parkinson's Disease: Reshaping identity following uncontrollable changes.

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Health-Illness Transition of Patients with Young-Onset Parkinson's Disease

J Korean Acad Nurs. 2013;43(5):636-648. Published online October 31, 2013

DOI: https://doi.org/10.4040/jkan.2013.43.5.636

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Health-Illness Transition of Patients with Young-Onset Parkinson's Disease

Figure 1 Health-illness transition process of patients with Young-Onset Parkinson's Disease: Reshaping identity following uncontrollable changes.

Figure 1

Health-Illness Transition of Patients with Young-Onset Parkinson's Disease