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Research Paper
A qualitative meta-synthesis of the essence of patient experiences of dialysis
Soyoung Jang, Eunyoung E. Suh, Yoonhee Seok
J Korean Acad Nurs 2025;55(1):119-136.   Published online February 19, 2025
DOI: https://doi.org/10.4040/jkan.24102
AbstractAbstract PDFePub
Purpose
This study aimed to understand the experiences of dialysis and their meaning among patients with chronic kidney disease through a meta-synthesis of the existing literature. Since 2010, the prevalence of end-stage renal disease has doubled in South Korea, which has the sixth-highest incidence worldwide. Although most kidney disease patients undergo dialysis to attenuate disease-related symptoms and prolong their lives, the implications of dialysis on their lives, together with the role played by patients’ significant others, remain underexplored. Similarly, existing research has not considered both patients with hemodialysis and peritoneal dialysis.
Methods
In this meta-synthesis, seven electronic databases (PubMed, CINAHL, EMBASE, PsycINFO, DBpia, KISS, and RISS) were searched for the terms “dialysis” and “qualitative.” Thirty qualitative studies were selected for examination.
Results
The overriding theme observed in the studies was “I do not have much time left.”–navigating the dual realities of one’s limited existence, while other key themes were: (1) the inevitable experience of the troubles of dialysis, (2) life is extended, but deteriorating in every aspect, (3) accepting dialysis with a positive outlook for life, and (4) essential support experienced in an exhausting life.
Conclusion
These findings are important for the design and delivery of practical and tailored nursing interventions to help patients overcome the various challenges related to dialysis treatment, and improve their quality of life.
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Original Articles
Illness Experience of People with Chronic Hepatitis B in Korea
Myungsun Yi, Eun Ok Choi, Seung Woon Paik, Keum Soon Kim, Sangman Kwak, Hwa Jin Lee
Journal of Korean Academy of Nursing 2007;37(5):665-675.   Published online March 28, 2017
DOI: https://doi.org/10.4040/jkan.2007.37.5.665
AbstractAbstract PDF
Purpose

The purpose of this study was to explore the experiences of people with chronic hepatitis B (CHB) in Korea. The specific aim was to identify major problems that people with CHB face and strategies that they are dealing with.

Methods

A grounded theory method was utilized. The data were collected by individual in-depth interviews from 12 CHB patients from one of the major hospitals in Korea.

Results

After constant comparative analysis, a core category emerged as “illness management with self-reliance and will.” Seven major strategies that were identified in dealing with the illness were maintaining receptive and positive attitudes; restraining excessive work and greed; searching for information; controlling illness information; adhering to practices for not spreading the viral disease; abstaining from alcohol and smoking and maintaining healthy eating habits; nd using alternative therapies. The outcomes that result from employing these strategies were identified as burden, depression and helplessness, stress for maintaining compliance, and dispirited interpersonal relationships.

Conclusion

The results of this study suggest that most people with CHB in Korea have problems in psychosocial area. Thus health professionals need to provide not only informational support but also emotional one to improve quality of life of the people with CHB.

Citations

Citations to this article as recorded by  
  • Hepatitis B Virus Infection
    Yeonsoo Jang, Sunjoo Boo, Hyera Yoo
    Gastroenterology Nursing.2018; 41(5): 388.     CrossRef
  • Illness Experience of Patients with Chronic Hepatitis C Participating in Clinical Trials
    Hoo-Jeung Cho, Euna Park
    Osong Public Health and Research Perspectives.2016; 7(6): 394.     CrossRef
  • Prevalence and severity of depression in chronic viral hepatitis in Iran
    Mojgan Mirabdolhagh Hazaveh, Taraneh Dormohammadi Toosi, Mohsen Nasiri Toosi, Amir Tavakoli, Fatemeh Shahbazi
    Gastroenterology Report.2015; 3(3): 234.     CrossRef
  • A study of Fatigue, Depression and Sleep Disorders in Patients with Chronic Liver Disease
    Ji-Suk Kim, Hae-Sook Hong, Yeon-Kyung Na
    Journal of Korean Biological Nursing Science.2012; 14(1): 1.     CrossRef
  • Complexity and Uncertainty of Living with an Invisible Virus of Hepatitis B in Korea
    Haeok Lee, Jin Hyang Yang, Myung Ok Cho, Jacqueline Fawcett
    Journal of Cancer Education.2010; 25(3): 337.     CrossRef
  • The Meaning of Illness among Korean Americans with Chronic Hepatitis B
    Jin-Hyang Yang, Hae-Ok Lee, Myung-Ok Cho
    Journal of Korean Academy of Nursing.2010; 40(5): 662.     CrossRef
  • Qualitative Research Investigating Patterns of Health Care Behavior among Korean Patients with Chronic Hepatitis B
    Jin-Hyang Yang, Myung-Ok Cho, Hae-Ok Lee
    Journal of Korean Academy of Nursing.2009; 39(6): 805.     CrossRef
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  • 7 Crossref
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The Lived Experience of Patients with Heart Transplantation: A Phenomenological Study
Younghui Hwang, Myungsun Yi
J Korean Acad Nurs 2017;47(1):110-120.   Published online February 28, 2017
DOI: https://doi.org/10.4040/jkan.2017.47.1.110
AbstractAbstract PDF
Purpose

The purpose of this study was to describe the lived experience of patients with heart transplantation in Korea.

Methods

Individual indepth interviews and a focus group interview were used to collect the data from nine patients who had heart transplantations in 2015. All interviews were audio-taped and verbatim transcripts were made for the analysis. Data were analyzed using Colaizzi's phenomenological method.

Results

Among the nine participants, eight were men. Mean age was 57.30 years. Six theme clusters emerged from the analysis. ‘Joy of rebirth obtained by good luck’ describes the pleasure and expectation of new life after narrow survival. ‘Suffering from adverse drug effects’ illustrates various psychosocial difficulties, such as low self-esteem, helplessness, alienation, and burnout, arising from the side effects of medications. ‘Body and mind of being bewildered’ illustrates disintegrated health and haunting fear of death. ‘Alienation disconnected with society’ describes isolated feeling of existence due to misunderstandings from society. ‘Suffering overcome with gratitude and responsibility’ includes overcoming experience through various social supports and suitable jobs. Finally, ‘acceptance of suffering accompanied with new heart’ illustrate changed perspective of life itself.

Conclusion

The findings in this study provide deep understanding and insights of the lived experience of heart related illness for these patients and should help in the development of tailored-interventions for patients with heart transplantation.

Citations

Citations to this article as recorded by  
  • An educational design and development project for pediatric heart transplant recipients and their families
    Go-Eun Kim, Eun Kyoung Choi, HyeJung Lee, Yu-Mi Im
    Journal of Pediatric Nursing.2022; 66: e152.     CrossRef
  • Clinical outcomes of a nurse-led post-discharge education program for heart-transplant recipients: A retrospective cohort study
    Ji Hyeon Lee, Seok-Min Kang, Young Ah. Kim, Sang Hui Chu
    Applied Nursing Research.2021; 59: 151427.     CrossRef
  • Lived Experiences of Korean Young Adults After Heart Transplantation: A Phenomenological Approach
    Hye Jin Yoo, Eunyoung E. Suh
    Asian Nursing Research.2021; 15(2): 89.     CrossRef
  • Life experiences of adult heart transplant recipients: a new life, challenges, and coping
    CEBECİ Fatma, CETİN Cigdem, CATAL Emine, BAYEZİD Omer
    Quality of Life Research.2021; 30(6): 1619.     CrossRef
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  • 4 Crossref
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Life Experience of Patients suffering from Crohn's Disease
Yang-Sook Yoo, Eun-Ju Lee, Ok-Hee Cho
J Korean Acad Nurs 2013;43(3):409-419.   Published online June 28, 2013
DOI: https://doi.org/10.4040/jkan.2013.43.3.409
AbstractAbstract PDF
Purpose

The purpose of this study was to describe and explore the experience process of life of patients with Crohn's disease.

Methods

Using a grounded theory methodology, 24 interviews were performed with 7 men and 5 women, 17-47 years of age, suffering from Crohn's disease.

Results

'Tuning of two conflicting lives' was identified as the core category, and 5 subcategories were identified and they were integrated into the core category. The identified outcomes were 'Living a withdrawn life', 'coping flexibly', 'drifting with tangled emotions' and 'maintaining long-term remission'.

Conclusion

When caring for these patients, it is important to identify needs, allow patients to express what they want at that moment and support them in maintaining a daily life that can be perceived as normal.

Citations

Citations to this article as recorded by  
  • Regaining normality: A grounded theory study of the illness experiences of Chinese patients living with Crohn’s disease
    Jiayin Ruan, Yunxian Zhou
    International Journal of Nursing Studies.2019; 93: 87.     CrossRef
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