KSNS
E-SUBMISSION
Search
- Page Path
- HOME > Search
Original Articles
- Depression and Caregiving Burden in Families of Patients with Amyotrophic Lateral Sclerosis
- Juyeon Oh, Ji Won An, Ki-Wook Oh, Seong-Il Oh, Jung A Kim, Seung Hyun Kim, Jeong Seop Lee
- J Korean Acad Nurs 2015;45(2):202-210. Published online April 30, 2015
- DOI: https://doi.org/10.4040/jkan.2015.45.2.202
-
Abstract
PDF Purpose The purpose of this study was to describe depression, caregiving burden and the correlation of the two variables in the families of patients with amyotrophic lateral sclerosis (ALS) and to clarify factors predicting caregiving burden.
Methods A descriptive and cross-sectional study was conducted with 139 family members who provided care to patients with ALS. The characteristics of patients and families, Korean-Beck Depression Inventory (K-BDI), Korean version of Zarit Burden Interview (K-ZBI) and Korean-Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (K-ALSFRS-R) were used as study measures.
Results The mean score for K-BDI was 19.39 out of 63 suggesting sub-clinical depression and 38.2% of the family members exhibited depression. The mean score for K-ZBI was 66.03 out of 88. The predictors for K-ZBI were K-BDI, age of family member, length of time spent per day in caring, relationship to patient and K-ALSFRS-R.
Conclusion The results of this study suggest that levels of depression and caregiving burden are high among family members caring for patients with ALS. As depression is associated with caregiving burden, screening and emotional supports should be provided to reduce the burden of care for these family. Support programs to alleviate the care burden are also needed, considering family demographics, time per day in caring giving and K-ALSFRS-R.
-
Citations
Citations to this article as recorded by
- Effectiveness of the Mindfulness-Based Interventions for Caregivers of Patients with Amyotrophic Lateral Sclerosis: A Scoping Review
Lutfiye İpek, Gokce Yagmur Gunes Gencer, Pınar Kısacık, Sibel Bozgeyik
Journal of Nursology.2025; 28(1): 89. CrossRef - Caring for people living with ALS in Korea: challenges and possible paths forward
Crystal Jing Jing Yeo, Zachary Simmons
Muscle & Nerve.2024; 70(5): 881. CrossRef - The quality of life and depression in primary caregivers of patients with amyotrophic lateral sclerosis is affected by patient-related and culture-specific conditions
Anna Maksymowicz-Śliwińska, Dorothée Lulé, Krzysztof NieporĘcki, Katarzyna Ciećwierska, Albert C. Ludolph, Magdalena Kuźma-Kozakiewicz
Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration.2023; 24(3-4): 317. CrossRef - The experiences of patients with amyotrophic lateral sclerosis of their decision‐making processes to invasive home mechanical ventilation—A qualitative study
Tina Thorborg, Jeanette Finderup, Dorte Skriver Winther, Charlotte Kirkegaard Lorenzen, Pia Dreyer
Nursing Open.2023; 10(8): 5139. CrossRef - Psychological Support for Family Caregivers of Patients With Amyotrophic Lateral Sclerosis at the Time of the Coronavirus Disease 2019 Pandemic: A Pilot Study Using a Telemedicine Approach
Minoo Sharbafshaaer, Daniela Buonanno, Carla Passaniti, Manuela De Stefano, Sabrina Esposito, Fabrizio Canale, Giulia D’Alvano, Marcello Silvestro, Antonio Russo, Gioacchino Tedeschi, Mattia Siciliano, Francesca Trojsi
Frontiers in Psychiatry.2022;[Epub] CrossRef - Factors associated with caring behaviors of family caregivers for patients receiving home mechanical ventilation with tracheostomy: A cross-sectional study
Hyang Sook Kim, Chung Eun Lee, Yong Sook Yang, Tai-Heng Chen
PLOS ONE.2021; 16(7): e0254987. CrossRef - Family Caregiver Suffering in Caring for Patients with Amyotrophic Lateral Sclerosis in Korea
Juyeon Oh, Jung-A Kim, Min Sun Chu
International Journal of Environmental Research and Public Health.2021; 18(9): 4937. CrossRef - Everyday life experiences of close relatives of people with amyotrophic lateral sclerosis receiving home mechanical ventilation—A qualitative study
Dorte Winther, Charlotte Kirkegaard Lorenzen, Pia Dreyer
Journal of Clinical Nursing.2020; 29(13-14): 2306. CrossRef - Unmet supportive care needs mediate the relationship between functional status and quality of life in patients with amyotrophic lateral sclerosis
Juyeon Oh, Seung Hyun Kim, Jung A Kim
Palliative and Supportive Care.2019; 17(6): 650. CrossRef - The Impact of Cognitive and Behavioral Symptoms on ALS Patients and Their Caregivers
Jashelle Caga, Sharpley Hsieh, Patricia Lillo, Kaitlin Dudley, Eneida Mioshi
Frontiers in Neurology.2019;[Epub] CrossRef - Validity and Utility of the Center for Epidemiological Studies Depression Scale for Detecting Depression in Family Caregivers of Persons with Dementia
Jiangbo Ying, Philip Yap, Mihir Gandhi, Tau Ming Liew
Dementia and Geriatric Cognitive Disorders.2019; 47(4-6): 323. CrossRef - Caregiving burden and depression in paid caregivers of hospitalized patients: a pilot study in China
Yao-Dan Liang, Ya-Li Wang, Zhi Li, Li He, Ying Xu, Qing Zhang, Gui-Ying You, Xu-Hua Mi
BMC Public Health.2018;[Epub] CrossRef - The amyotrophic lateral sclerosis supportive care needs assessment instrument: Development and psychometric evaluation
Juyeon Oh, Seong-il Oh, Jung A Kim
Palliative and Supportive Care.2018; 16(6): 692. CrossRef - Factors Influencing Psychosocial Well-Being in Family Caregivers of People with Amyotrophic Lateral Sclerosis
Hyeon Sik Chu, Young Ran Tak, Seung Hyun Kim
Journal of Korean Academy of Nursing.2018; 48(4): 454. CrossRef - Factor analysis of the Zarit Burden Interview in family caregivers of patients with amyotrophic lateral sclerosis
Juyeon Oh, Jung A. Kim
Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration.2018; 19(1-2): 50. CrossRef - An exploration into caring for a stroke-survivor in Lima, Peru: Emotional impact, stress factors, coping mechanisms and unmet needs of informal caregivers
M. Amalia Pesantes, Lena R. Brandt, Alessandra Ipince, J. Jaime Miranda, Francisco Diez-Canseco
eNeurologicalSci.2017; 6: 33. CrossRef - Information-seeking Behavior and Information Needs in Patients With Amyotrophic Lateral Sclerosis
Juyeon Oh, Jung A Kim
CIN: Computers, Informatics, Nursing.2017; 35(7): 345. CrossRef - Supportive care needs of patients with amyotrophic lateral sclerosis/motor neuron disease and their caregivers: A scoping review
Juyeon Oh, Jung A Kim
Journal of Clinical Nursing.2017; 26(23-24): 4129. CrossRef - Convergence Study on Burden in Families Caregivers of Patients with Burn
Gye-Hyun Jung, Hyun-Ju Na
Journal of the Korea Convergence Society.2016; 7(6): 275. CrossRef
- Effectiveness of the Mindfulness-Based Interventions for Caregivers of Patients with Amyotrophic Lateral Sclerosis: A Scoping Review
- 267 View
- 6 Download
- 19 Crossref
- Caregiver Burden in Caring for Elders Before and After Long-term Care Service in Korea
- Hung Sa Lee
- J Korean Acad Nurs 2012;42(2):236-247. Published online April 30, 2012
- DOI: https://doi.org/10.4040/jkan.2012.42.2.236
-
Abstract
PDF
Purpose Purposes of this study were: evaluation of family burden of caring for elders who receive long term care services, and examination of differences in burden before and after the introduction of long term care service in Korea.
Methods Data were collected by questionnaires from 416 caregivers of elders who were registered with the Long Term Care Insurance Corporation in six cities. Data were collected in September, 2010 and analyzed using descriptive statistics, paired t-test, and ANOVA with the Scheffe test, and stepwise multiple regression.
Results Family burden decreased significantly after long-term care service was initiated. Subjective burden decreased from 2.93 to 2.69 (t=11.78,
p <.001), and objective burden, from 3.40 to 3.10 (t=12.73,p <.001). Stepwise multiple regression analysis revealed that factors affecting subjective burden were family relations (F=13.60,p =.003), age (F=5.47,p =.019), job (F=6.98,p =.008), and education (F=4.59,p =.032), and that factors affecting objective burden were living together (F=17.66,p <.001), job (F=13.34,p =.003), monthly income (F=6.61,p =.010), and type of service (F=6.62,p =.010).Conclusion The results of this first study to investigate caregiver burden after the Korean Long-term Care Insurance System was begun provide positive information for the development of strategies to decrease family burden in long term care.
-
Citations
Citations to this article as recorded by- Comparison of Sleep Quality between Families of Dementia Patients and General Population in Community: Analysis with the Korea Community Health Survey
Mina Kim, Young-Hoon Lee
Korean Journal of Health Promotion.2023; 23(3): 139. CrossRef - Registered Nurses’ Experiences of End-of-Life Care in Nursing Homes of South Korea: A Qualitative Study
Soo-Jung Chang
Healthcare.2022; 10(11): 2213. CrossRef - Study on the Nutrient Intake and Dietary Quality of Elderly Residents on Various Meal Types in Long-Term Care Facility
Hee-Sook Lim, Eun Bi Oh, Yoo Kyoung Park, Hae-Yun Chung
Journal of the East Asian Society of Dietary Life.2020; 30(2): 172. CrossRef - Factors Affecting Family Caregivers' Burden and Depression in Home-based Long-Term Care Service under the Long-Term Care Insurance System
Hung Sa Lee, Chunmi Kim
Journal of Korean Academy of Community Health Nursing.2018; 29(4): 530. CrossRef - Effect of Family Caregiving on Depression in the First 3 Months After Spinal Cord Injury
Min-Gu Kang, Chul-Hyun Kim, Eunhee Park, Jae-Won Huh, Won-Jong Yang, Tae-Woo Nam, Yu-Sun Min, Tae-Du Jung
Annals of Rehabilitation Medicine.2018; 42(1): 130. CrossRef - Relationship between caregiving burden and depression in caregivers of individuals with intellectual disabilities in Korea
Su-Jung Nam, Eun-Young Park
Journal of Mental Health.2017; 26(1): 50. CrossRef - The Effect of Post-Stroke Depression on Rehabilitation Outcome and the Impact of Caregiver Type as a Factor of Post-Stroke Depression
Dong-Heun Ahn, Yung-Jin Lee, Ji-Hun Jeong, Yong-Rok Kim, Jong-Bum Park
Annals of Rehabilitation Medicine.2015; 39(1): 74. CrossRef - Factors Related to Family Caregivers' Burden with the Community-Dwelling Disabled Elderly under the Long-Term Care Insurance System
Eun-Jeong Han, Jung-Myun Lee, Jin-Hee Kwon, Seul-Bi Shin, Jung-Suk Lee
Health Policy and Management.2014; 24(1): 71. CrossRef
- Comparison of Sleep Quality between Families of Dementia Patients and General Population in Community: Analysis with the Korea Community Health Survey
- 294 View
- 2 Download
- 8 Crossref
First
Prev
