Journal of Korean Academy of Nursing

Original Articles

Self-Management Experiences of the Adolescents with Chronic Kidney Disease: Sug Young Lee, Heesun Shin; J Korean Acad Nurs 2018;48(3):266-278. Published online January 15, 2018; DOI: https://doi.org/10.4040/jkan.2018.48.3.266

Abstract Purpose

The aim of this study was to develop a substantive theory on self-management conducted by the adolescents with chronic kidney disease from their lived experience.

Methods

Data was collected through in-depth interviews from May to December in 2015 with thirteen adolescents with chronic kidney disease. The data collected were analyzed on the basis of Strauss and Corbin's grounded theory.

Results

The core of the category found in this study was “overcoming the unstable sense of self- control and integrating disease experience into their life”. The causal conditions triggering the central phenomenon were “restriction in daily life” and “manifestation and aggravation of symptom”. The central phenomenon in the experience of self-management within the adolescents with chronic kidney disease was “unstable sense of self control”. The intervening condition for unstable self control were “micro system support” and “motivational resources”. This study found that the adolescents with chronic kidney disease followed a series of strategies when they faced the central phenomenon, including; passive coping, reappraisal of illness, active coping, compliance with treatment, controlling physical activity, and adjusting school life. With these strategic approaches, the adolescents with chronic kidney disease could maintain their active lifestyles and achieve their health behaviors. The process of self-management by these adolescents passed through four phases; limited experience caused by diseases, effort for normalization, reorganizing their daily lives, and integration with daily lives and self-management.

Conclusion

This Study explored the process and experience of self-management of adolescents with chronic kidney disease. These findings can be used for basis for developing substantive theory and nursing intervention strategy for adolescents with chronic kidney diseases.

Citations

Citations to this article as recorded by

Concept Analysis of Self-management in Children with Chronic Kidney Diseases through Walker and Avant’s Method
Sug Young Lee
Journal of Korean Academy of Fundamentals of Nursing.2025; 32(1): 105. CrossRef
Factors associated with healthcare transition readiness for adolescents with chronic conditions: A cross-sectional study
Hye Seung Hong, YeoJin Im
Journal of Child Health Care.2024;[Epub] CrossRef
Validity and reliability of the Korean caregiver contribution to self-care chronic illness inventory
Juhee Lee, Eunyoung Kim, Misook Chung, Insun Yeom
Scientific Reports.2023;[Epub] CrossRef
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Illness Experiences of Adolescents with Type 1 Diabetes
Ji Eun Kim, Ilaria Campesi
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Physical activity and the ‘pediatric inactivity triad’ in children living with chronic kidney disease: a narrative review
Thomas J. Wilkinson, Lauren L. O’Mahoney, Patrick Highton, Joao L. Viana, Heitor S. Ribeiro, Courtney J. Lightfoot, Ffion Curtis, Kamlesh Khunti
Therapeutic Advances in Chronic Disease.2022;[Epub] CrossRef
Factor analysis of the Korean version of the Illness Cognition Questionnaire for adolescents with chronic illness
Dasuel Lee, Dae‐Chul Jeong, Nack‐Gyun Chung, Sunhee Lee
International Journal of Nursing Practice.2021;[Epub] CrossRef

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Structural Equation Modeling on Quality of Life in Pre-dialysis Patients with Chronic Kidney Disease: Hye Won Kim, Smi Choi-Kwon; J Korean Acad Nurs 2012;42(5):699-708. Published online October 12, 2012; DOI: https://doi.org/10.4040/jkan.2012.42.5.699

Abstract PDF

Purpose

This study was designed to test structural equation modeling of the quality of life of pre-dialysis patients, in order to provide guidelines for the development of interventions and strategies to improve the quality of life of patients with Chronic Kidney Disease (CKD).

Methods

Participants were patients who visited the nephrology outpatient department of a tertiary hospital located in Seoul. Data on demographic factors, social support, nutritional status, physical factors and biobehavioral factors and quality of life were collected between March 4 and March 31, 2011.

Results

In the final analysis 208 patients were included. Of the patients 42% were in a malnourished state. Anxious or depressed patients accounted for 62.0%, 72.6%, respectively. Model fit indices for the hypothetical model were in good agreement with the recommended levels (GFI= .94 and CFI= .99). Quality of life in pre-dialysis patients with CKD was significantly affected by demographic factors, social support, nutritional status, physical factors and biobehavioral factors. Biobehavioral factors had the strongest and most direct influence on quality of life of patients with CKD.

Conclusion

In order to improve the quality of life in pre-dialysis patients with CKD, comprehensive interventions are necessary to assess and manage biobehavioral factors, physical factors and nutritional status.

Citations

Citations to this article as recorded by

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Hyun Ju Lee, Jiyoung Park
Korean Journal of Adult Nursing.2020; 32(3): 305. CrossRef
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Hyo Jung Park, Yoonju Lee
Korean Journal of Adult Nursing.2019; 31(2): 190. CrossRef
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Jeonghye Chae, Youngsuk Kim
Asian Oncology Nursing.2017; 17(4): 237. CrossRef
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Dong-Ryeol Ryu, Jung-Hyun Kim, Hyun-Jung Kim, Min-Sook Kyung, Jung-Tak Park
Korean Journal of Community Nutrition.2017; 22(5): 426. CrossRef
Evaluation of Mental Disorders Using Proton Magnetic Resonance Spectroscopy in Dialysis and Predialysis Patients
Chun-Yun Zhang, Ying Chen, Shan Chen, Xiang-Chuang Kong, Yuan Liu, Chao-Qun You, Cheng Wan, Philip A. Bondzie, Hua Su, Chun Zhang, Fang-Fang He
Kidney and Blood Pressure Research.2017; 42(4): 686. CrossRef
Structural equation modeling of the quality of life for patients with marfan syndrome
Ju Ryoung Moon, Yong Ae Cho, June Huh, I-Seok Kang, Duk-Kyung Kim
Health and Quality of Life Outcomes.2016;[Epub] CrossRef
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Mi Youn Cha, Hae Sook Hong
Journal of Korean Academy of Nursing.2015; 45(2): 221. CrossRef
A Predictive Model of Quality of Life for Stomach Cancer Patients with Gastrectomy
Young Suk Kim, Young Sook Tae
Korean Journal of Adult Nursing.2015; 27(6): 613. CrossRef

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