-
Subjective and Objective Caregiver Burden in Parkinson's Disease
-
Keum Soon Kim, Bog Ja Kim, Kyung Hee Kim, Myoung Ae Choe, Myungsun Yi, Yang Sook Hah, Sun Ju Chung, So Hi Kwon
-
Journal of Korean Academy of Nursing 2007;37(2):242-248. Published online March 28, 2017
-
DOI: https://doi.org/10.4040/jkan.2007.37.2.242
-
-
 Abstract
 PDF
-
Purpose
Parkinson's disease (PD) is a common neurodegenerative disorder characterized by motor disabilities and increasing dependence on others for daily life activities with consequent impact on patients' and caregivers' quality of life. The aim of this study was to elucidate the burden on primary caregivers of patients with PD, and identify related factors.
Methods
A cross-sectional descriptive study. Seventy-six primary caregivers of PD patients in a neurology outpatient clinic, Seoul, Korea completed structured questionnaires, of which 68 were analyzed. The structured self-report questionnaire included (1) demographic information on the caregivers, (2) information regarding the disease characteristics of the patients, and (3) the subjective and objective caregiver burdens as assessed on Montgomery, Gonyea, & Hooyman's scale.
Results
The mean age of the caregivers was 54.56 years, and spouses represented the largest proportion(47.0%). Caregivers of PD patients experienced high levels of burden (mean scores on the subjective and objective burdens were 45.22 and 34.90, respectively), which were comparable to the caregiver burdens in stroke, and higher than the caregiver burdens in general chronic disease. Older caregivers and spousal caregivers experienced significantly higher burdens (p=.004 and p=.019, respectively). A greater motor disability and higher modified Hoehn and Yahr grade were related to higher caregiver burden (p=.001 and p=.018, respectively).
Conclusion
Caring for PD patients is associated with a high level of caregiver burden. Therefore, healthcare professionals should identify the burden of caregivers who look after PD patients and develop comprehensive management strategies both for patients and their caregivers.
-
Citations
Citations to this article as recorded by  - Perceptions of workload in caregivers involved in the care of patients with Parkinson’s disease: an exploratory - correlational study
Elsa Vitale, Luana Conte, Rosita Pasquadibisceglie, Antonino Calabrò, Cosimo Leone, Maicol Carvello, Roberto Lupo
Journal of Gerontology and Geriatrics.2024; 72(3): 122. CrossRef - Development of the Forman Parkinson’s Disease Symptom Checklist
Bushra Akram, Ivan Suneel
Journal of Professional & Applied Psychology .2022; 3(3): 356. CrossRef - Effects of Multimodal Rehabilitation on the Activities of Daily Living, Quality of Life, and Burden of Care for Patients with Parkinson’s Disease: A Randomized Control Study
Hyun-Se Choi, Seung-Hyun Cho
Healthcare.2022; 10(10): 1888. CrossRef - Parkinson's Disease Caregiver Strain in Singapore
Siok-Bee Tan, Allison F. Williams, Eng-King Tan, Richard B. Clark, Meg E. Morris
Frontiers in Neurology.2020;[Epub] CrossRef - Psychological distress and perceived burden in caregivers of persons with autism spectrum disorder
Eman Khamis Alnazly, Amjed Abojedi
Perspectives in Psychiatric Care.2019; 55(3): 501. CrossRef - Caregiver Burden, Spirituality, and Psychological Well-Being of Parents Having Children with Thalassemia
Jawaria Anum, Rabia Dasti
Journal of Religion and Health.2016; 55(3): 941. CrossRef - Predictors of Depression Among Caregivers of Older Adults With Severe Mental Illness
Sherry M. Cummings, Nancy P. Kropf
Journal of Gerontological Social Work.2015; 58(3): 253. CrossRef - The Relationship among Caregiver Burden, Demographic Variables, and the Clinical Characteristics of Patients with Parkinson’s Disease—A Systematic Review of Studies Using Various Caregiver Burden Instruments
Ingrid Leiknes, Unn-Tone Lien, Elisabeth Severinsson
Open Journal of Nursing.2015; 05(10): 855. CrossRef - A Structural Model of Health-Related Quality of Life in Parkinson’s Disease Patients
JuHee Lee, MoonKi Choi, Dukyoo Jung, Young H. Sohn, JinYong Hong
Western Journal of Nursing Research.2015; 37(8): 1062. CrossRef - Factors Affecting Caregiver Burden in Caregivers of Patients with Parkinson's Disease
Dong Won Kim, Eun Sook Bae
Korean Journal of Adult Nursing.2015; 27(3): 283. CrossRef - Factors Related to Family Caregivers' Burden with the Community-Dwelling Disabled Elderly under the Long-Term Care Insurance System
Eun-Jeong Han, Jung-Myun Lee, Jin-Hee Kwon, Seul-Bi Shin, Jung-Suk Lee
Health Policy and Management.2014; 24(1): 71. CrossRef - Family caregivers experiences of provided home care to persons with Parkinsons disease
Ingrid Leiknes, Sevald Høye
Nordisk sygeplejeforskning.2012; 2(1): 29. CrossRef - Factors Influencing Quality of Life in Caregivers of People with Parkinson's Disease and Implications for Clinical Guidelines
D. Morley, S. Dummett, M. Peters, L. Kelly, P. Hewitson, J. Dawson, R. Fitzpatrick, C. Jenkinson
Parkinson's Disease.2012; 2012: 1. CrossRef
-
201
View
-
2
Download
-
13
Crossref
|
KSNS
E-SUBMISSION
