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Subjective and Objective Caregiver Burden in Parkinson's Disease
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Keum Soon Kim, Bog Ja Kim, Kyung Hee Kim, Myoung Ae Choe, Myungsun Yi, Yang Sook Hah, Sun Ju Chung, So Hi Kwon
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Journal of Korean Academy of Nursing 2007;37(2):242-248. Published online March 28, 2017
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DOI: https://doi.org/10.4040/jkan.2007.37.2.242
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 Abstract
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Purpose
Parkinson's disease (PD) is a common neurodegenerative disorder characterized by motor disabilities and increasing dependence on others for daily life activities with consequent impact on patients' and caregivers' quality of life. The aim of this study was to elucidate the burden on primary caregivers of patients with PD, and identify related factors.
Methods
A cross-sectional descriptive study. Seventy-six primary caregivers of PD patients in a neurology outpatient clinic, Seoul, Korea completed structured questionnaires, of which 68 were analyzed. The structured self-report questionnaire included (1) demographic information on the caregivers, (2) information regarding the disease characteristics of the patients, and (3) the subjective and objective caregiver burdens as assessed on Montgomery, Gonyea, & Hooyman's scale.
Results
The mean age of the caregivers was 54.56 years, and spouses represented the largest proportion(47.0%). Caregivers of PD patients experienced high levels of burden (mean scores on the subjective and objective burdens were 45.22 and 34.90, respectively), which were comparable to the caregiver burdens in stroke, and higher than the caregiver burdens in general chronic disease. Older caregivers and spousal caregivers experienced significantly higher burdens (p=.004 and p=.019, respectively). A greater motor disability and higher modified Hoehn and Yahr grade were related to higher caregiver burden (p=.001 and p=.018, respectively).
Conclusion
Caring for PD patients is associated with a high level of caregiver burden. Therefore, healthcare professionals should identify the burden of caregivers who look after PD patients and develop comprehensive management strategies both for patients and their caregivers.
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Citations
Citations to this article as recorded by  - Perceptions of workload in caregivers involved in the care of patients with Parkinson’s disease: an exploratory - correlational study
Elsa Vitale, Luana Conte, Rosita Pasquadibisceglie, Antonino Calabrò, Cosimo Leone, Maicol Carvello, Roberto Lupo
Journal of Gerontology and Geriatrics.2024; 72(3): 122. CrossRef - Development of the Forman Parkinson’s Disease Symptom Checklist
Bushra Akram, Ivan Suneel
Journal of Professional & Applied Psychology .2022; 3(3): 356. CrossRef - Effects of Multimodal Rehabilitation on the Activities of Daily Living, Quality of Life, and Burden of Care for Patients with Parkinson’s Disease: A Randomized Control Study
Hyun-Se Choi, Seung-Hyun Cho
Healthcare.2022; 10(10): 1888. CrossRef - Parkinson's Disease Caregiver Strain in Singapore
Siok-Bee Tan, Allison F. Williams, Eng-King Tan, Richard B. Clark, Meg E. Morris
Frontiers in Neurology.2020;[Epub] CrossRef - Psychological distress and perceived burden in caregivers of persons with autism spectrum disorder
Eman Khamis Alnazly, Amjed Abojedi
Perspectives in Psychiatric Care.2019; 55(3): 501. CrossRef - Caregiver Burden, Spirituality, and Psychological Well-Being of Parents Having Children with Thalassemia
Jawaria Anum, Rabia Dasti
Journal of Religion and Health.2016; 55(3): 941. CrossRef - Predictors of Depression Among Caregivers of Older Adults With Severe Mental Illness
Sherry M. Cummings, Nancy P. Kropf
Journal of Gerontological Social Work.2015; 58(3): 253. CrossRef - The Relationship among Caregiver Burden, Demographic Variables, and the Clinical Characteristics of Patients with Parkinson’s Disease—A Systematic Review of Studies Using Various Caregiver Burden Instruments
Ingrid Leiknes, Unn-Tone Lien, Elisabeth Severinsson
Open Journal of Nursing.2015; 05(10): 855. CrossRef - A Structural Model of Health-Related Quality of Life in Parkinson’s Disease Patients
JuHee Lee, MoonKi Choi, Dukyoo Jung, Young H. Sohn, JinYong Hong
Western Journal of Nursing Research.2015; 37(8): 1062. CrossRef - Factors Affecting Caregiver Burden in Caregivers of Patients with Parkinson's Disease
Dong Won Kim, Eun Sook Bae
Korean Journal of Adult Nursing.2015; 27(3): 283. CrossRef - Factors Related to Family Caregivers' Burden with the Community-Dwelling Disabled Elderly under the Long-Term Care Insurance System
Eun-Jeong Han, Jung-Myun Lee, Jin-Hee Kwon, Seul-Bi Shin, Jung-Suk Lee
Health Policy and Management.2014; 24(1): 71. CrossRef - Family caregivers experiences of provided home care to persons with Parkinsons disease
Ingrid Leiknes, Sevald Høye
Nordisk sygeplejeforskning.2012; 2(1): 29. CrossRef - Factors Influencing Quality of Life in Caregivers of People with Parkinson's Disease and Implications for Clinical Guidelines
D. Morley, S. Dummett, M. Peters, L. Kelly, P. Hewitson, J. Dawson, R. Fitzpatrick, C. Jenkinson
Parkinson's Disease.2012; 2012: 1. CrossRef
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Research Trend of Complementary and Alternative Medicine
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Kasil Oh, Keum Soon Kim, So Hi Kwon, Jee Won Park
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Journal of Korean Academy of Nursing 2006;36(5):721-731. Published online August 31, 2006
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DOI: https://doi.org/10.4040/jkan.2006.36.5.721
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Abstract
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Purpose
This study was done to describe the research trend of Complementary and Alternative Medicine(CAM) in Korea and internationally.
Method
A Systematic review of CAM related literature published from 2000 to 2005 was done. A comprehensive search by using 34 CAM modalities as search terms to identify all articles dealing with CAM was undertaken from 4 databases: PubMed, RICHIS, KoreaMed, and Riss4U. A Total of 588 abstracts and 223 original articles were reviewed by two independent reviewers using systematic analysis guidelines. Data regarding the types of study design, characteristics of subjects and researchers, and classification of CAM modalities was recorded. The outcome measures of CAM were identified.
Results
CAM research has been rapidly increasing worldwide in the last decade. In Korea, nursing(53.5%) followed by medicine(42.7%) occupied the majority of CAM research in comparison to medicine(42.9%) and disciplines in CAM(25.0%), like homeopathy, internationally. Prevailing research designs in Korea were experimental and quasi-experimental, however, randomized clinical trials were found. Internationally, survey research was dominant, with the exception of randomized clinical trials that were mostly an experimental design.
Conclusion
The findings suggest that a robust research design in CAM research is needed to accumulate strong scientific evidence and to adopt nursing interventions from CAM modalities.
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Citations
Citations to this article as recorded by - Comparative effects of music therapy and aromatherapy on stress, quality of life, and happiness among shift nurses in Korea: a randomized controlled trial
So-heun Lee, Won-jong Kim, Eun-Hi Choi, Myung-Haeng Hur
Journal of Korean Biological Nursing Science.2024; 26(4): 337. CrossRef - Trends in Korean intervention studies on complementary and alternative therapies in rehabilitation nursing
Da-Jung Kim
Journal of Exercise Rehabilitation.2024; 20(5): 158. CrossRef - Literature review of complementary and alternative therapies: using text mining and analysis of trends in nursing research
Jihye Nam, Hyejin Lee, Seunghyeon Lee, Hyojung Park
BMC Nursing.2024;[Epub] CrossRef - Research Trend about Complementary and Alternative Therapy in Korea using Text Network Analysis
Hae Ree Sung, Jung Lim Lee, Youngji Kim, Jeong Sig Kim
The Korean Journal of Rehabilitation Nursing.2018; 21(2): 61. CrossRef - Experience of Elderly Women Practicing Dan Jeon Breathing: A Phenomenological Study
Journal of East-West Nursing Research.2015; 21(2): 94. CrossRef - The Attitude, Use and Adverse Effects of Complementary and Alternative Medicine (CAM) Therapies among Vulnerable, Community Dwelling Old Adults
Young Im Park, Mi Sook Song, Okhee Ahn, Soon Ok Yang, Insook Lee, Hye Sun Hyun
Journal of Korean Academy of Community Health Nursing.2014; 25(1): 1. CrossRef - Trends in Nursing Research in Korea: Research Trends for Studies Published from the Inaugural Issue to 2010 in the Journal of Korean Academy of Nursing and the Journals Published by Member Societies under Korean Academy of Nursing Science
Myoung-Ae Choe, Nam Cho Kim, Kyung Mi Kim, Sung Jae Kim, Kyung Sook Park, Young Soon Byeon, Sung Rae Shin, Soo Yang, Kyung Sook Lee, Eun Hyun Lee, In Sook Lee, Tae Wha Lee, Myung Ok Cho, Jin Hak Kim
Journal of Korean Academy of Nursing.2014; 44(5): 484. CrossRef - The Process of Acceptance of Complementary and Alternative Therapies (CATs) among Nurses: Grounded Theory Approach
Ae-Kyung Kim, Young-Shin Lee, Hyun-Jung Kim
Journal of Korean Academy of Nursing.2013; 43(5): 669. CrossRef - A Study for the Institutionalization of Alternative Medicine
Kyung-Su Kang
Journal of the Korea Society of Computer and Information.2013; 18(12): 167. CrossRef
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Effects of Abdominal Breathing Training Using Biofeedback on Stress, Immune Response and Quality of Life in Patients with a Mastectomy for Breast Cancer
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Keum Soon Kim, So Woo Lee, Myoung Ae Choe, Myung Sun Yi, Smi Choi, So Hi Kwon
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Journal of Korean Academy of Nursing 2005;35(7):1295-1303. Published online March 28, 2017
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DOI: https://doi.org/10.4040/jkan.2005.35.7.1295
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Abstract
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Purpose
This study was to determine the effects of abdominal breathing training using biofeedback on stress, immune response, and quality of life.
Methods
The study design was a nonequivalent control group pretest-posttest, quasi-experimental design. Twenty-five breast cancer patients who had completed adjuvant chemotherapy were enrolled. The experimental group(n=12) was provided with abdominal breathing training using biofeedback once a week for 4 weeks. State anxiety, cancer physical symptoms, serum cortisol, T cell subsets(T3, T4, T8), NK cell and quality of life were measured both before and after the intervention.
Results
Though state anxiety, cancer physical symptoms, and serum cortisol were reduced after 4 weeks of abdominal breathing training using biofeedback, there was no statistical significance. It showed, however, improvement in quality of life (p=.02), and T3(p=.04).
Conclusion
Abdominal breathing training using biofeedback improves quality of life in breast cancer patients after a mastectomy. However, the mechanism of this beneficial effect and stress response requires further investigation with special consideration in subject selection and frequency of measurement. Nurses should consider this strategy as a standard nursing intervention for people living with cancer.
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Citations
Citations to this article as recorded by - A Review of Commercial and Medical-Grade Physiological Monitoring Devices for Biofeedback-Assisted Quality of Life Improvement Studies
Pedro Nogueira, Joana Urbano, Luís Paulo Reis, Henrique Lopes Cardoso, Daniel Castro Silva, Ana Paula Rocha, Joaquim Gonçalves, Brígida Mónica Faria
Journal of Medical Systems.2018;[Epub] CrossRef - The Effects of Rehabilitation Treatment on the Immune Cells and Cortisol Levels of Stroke Patients
Dong Sun Oh
Korean Journal of Clinical Laboratory Science.2015; 47(2): 90. CrossRef - Effects of BeHaS Exercise Program on Flexibility, Grip Strength, Stress and Self-esteem in Breast Cancer Survivors
Sun Young Park, Jong Im Kim
Journal of muscle and joint health.2013; 20(3): 171. CrossRef - The Effects of Laughter Therapy on Stress Responses in Patients with Preoperative Breast Cancer
Hae Jeong Han, Aris Park, Hyun Sun Kim, HanKyung Moon, Yeon-Hwan Park
Journal of Korean Oncology Nursing.2011; 11(2): 93. CrossRef - Effects of a Nurse-Led Cognitive-Behavior Therapy on Fatigue and Quality of Life of Patients With Breast Cancer Undergoing Radiotherapy
Haejung Lee, Yeonjung Lim, Myung-Sook Yoo, Yongsuk Kim
Cancer Nursing.2011; 34(6): E22. CrossRef - Effects of Laughter Therapy on Depression, Quality of Life, Resilience and Immune Responses in Breast Cancer Survivors
Eun A Cho, Hyun Ei Oh
Journal of Korean Academy of Nursing.2011; 41(3): 285. CrossRef - The Effects of Relaxation Therapy on Anxiety and Stress of Pregnant Women with Preterm Labor
Myung Sook Choi, Young Joo Park
Korean Journal of Women Health Nursing.2010; 16(4): 336. CrossRef - Effects of Abdominal Breathing on State Anxiety, Stress, and Tocolytic Dosage for Pregnant Women in Preterm Labor
Woo-Jeong Yu, Ju-Eun Song
Journal of Korean Academy of Nursing.2010; 40(3): 442. CrossRef - Complementary Therapy for Improvement of Quality of Life in Cancer Patients
Jun-Young Choi
Journal of the Korean Medical Association.2008; 51(5): 435. CrossRef
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