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Hermeneutic Phenomenological Study on Caring Experience of Spouses of Elderly People with Dementia at Home
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Hye-Young Jang, Myungsun Yi
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J Korean Acad Nurs 2017;47(3):367-379. Published online January 15, 2017
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DOI: https://doi.org/10.4040/jkan.2017.47.3.367
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 Abstract
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- Abstract
Purpose
This study aimed to understand and describe the caring experiences of spouses of elderly people with dementia.
Methods
The hermeneutic phenomenological method was used and participants were 12 spouses aged 65 and over who were taking care of their husbands or wives with dementia at home. Data were collected from individual in-depth interviews on participants’ actual caring experiences. Additionally, novels, movies, and memoirs on elderly couples with partner who had dementia were included as data for the analysis. The qualitative data analysis software program was used to manage and process the collected qualitative data. Data were analyzed using hermeneutic phenomenological analysis based on four fundamental existentials including lived body, lived space, lived time, and lived others.
Results
Five essential themes emerged from the analysis: 1) body moving like an old machine, 2) swamp of despair filling with hope, 3) sweet time after bitterness, 4) disappointed elderly couple in the empty nest, and 5) unappreciation vs. empathetic feelings. These essential themes were comprehensively summarized as “the road leading to the maturation of life with dedication and hope while bearing the weight of caring based on the couple's relationship.”
Conclusion
The findings indicate that the nature of the caring experience of spouses of elderly individuals with dementia is filled with many dynamic and paradoxical dimensions. Thus, results of the study would help with developing interventions tailored specifically for elderly spouse caregivers to support their role adaptation and ultimately improving their quality of life.
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Citations
Citations to this article as recorded by  - Relationship between anxiety and fatigue in dementia family caregivers: hope as a mediator
Jiin-Ling Jiang, Shing-Ling Chang, Ke-chieh Wang, Yu-Chin Ma
BMC Nursing.2025;[Epub] CrossRef - Self-care experiences of male spouses of people with dementia: a descriptive phenomenological study
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Aging & Mental Health.2025; : 1. CrossRef - A web-based care assistant for caregivers of the elderly: Development and pilot study
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DIGITAL HEALTH.2023;[Epub] CrossRef - Predictors of Sleep Quality in Spouse Caregivers of Community-Dwelling People With Dementia Using Propensity Score Matching Analysis
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Scandinavian Journal of Disability Research.2023; 25(1): 132. CrossRef - Caring Experience of Spouse Caregivers of Persons with Alzheimer's Disease: A Qualitative Study
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International Journal of Environmental Research and Public Health.2020; 17(6): 1882. CrossRef - Family Members’ Experience in Caring for Elderly with Dementia in Long-Term Care Hospitals
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Journal of Korean Gerontological Nursing.2020; 22(4): 335. CrossRef - Partnership between staff and family in long-term care facility: a hybrid concept analysis
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International Journal of Qualitative Studies on Health and Well-being.2020; 15(1): 1801179. CrossRef - Predictors of Health-related Quality of Life among Spouses of Older Adults with Dementia in the Community-dwelling
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Journal of Korean Academy of Community Health Nursing.2019; 30(4): 518. CrossRef - Empathy in Family Caregivers for Persons with Dementia: A Q Methodology Study
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Journal of Korean Gerontological Nursing.2017; 19(3): 214. CrossRef
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