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6 "Life experiences"
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Original Articles
An Exploration of the Life Experiences of Patients with Chronic Pain: Women with Rheumatoid Arthritis
Hea Kyung Hur
Journal of Nurses Academic Society 1997;27(1):13-25.   Published online March 30, 2017
DOI: https://doi.org/10.4040/jnas.1997.27.1.13
AbstractAbstract PDF

Rheumatoid Arthritis(RA), a chronic and systemic inflammatory disorder, is characterized by joint pain, swelling and stiffness. Patients with RA suffer from joint pain and overall pain. The painful and disabling consequences of RA are accompanied by a variety of affective, cognitive, and behavioral changes. The purpose of this paper was to explore and describe the life experiences of RA patients by eliciting verbal description of their experiences. Participants were nine persons who were diagnosed with RA, and had if for more than six months. They were asked open ended and descriptive questions in order for them to talk about their experiences in their own terms. Interviews were tape recorded and transcribed verbatim. The transcripts were analyzed by Colaizzi method. From the protocols, 213 significant statements about life experience were organized into 83 formulating meanings which were then grouped into five theme clusters. The major themes that emerged from the analysis were 'Emotional Disturbances', 'Trying to Adapt to the Progress of Treatment', ' Change of Role Performances', 'Experiences related to Family'. The result of this study showed that RA patients and families need nursing care based on a deep understanding of their lived experiences in everyday life. Nurses and other health workers must develop rehabilitation programs that focus on the pain control, functional independence and psychosocial factors.

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Nurses' Experiences of the Death of Patients in Geriatric Hospitals
Mi Joung Yi, Jeong Seop Lee
J Korean Acad Nurs 2015;45(4):513-522.   Published online August 31, 2015
DOI: https://doi.org/10.4040/jkan.2015.45.4.513
AbstractAbstract PDF
Purpose

The purpose of this study was to identify and understand nurses' experiences of the death of patients in geriatric hospitals.

Methods

Van Manen's hermeneutic phenomenological analysis was applied in the interpretation of experiential descriptions of seven nurses who had experienced the death of patients in a geriatric hospital.

Results

The essential subjects derived from the experience of the nurses on the death of patients in a geriatric hospital are covered in the following 7 themes. 'Placed in death site', 'Difficult repetition of death and farewell', 'Emotional waves that rushes in after farewell', 'Dilemmas in a place with no preparation to greet expected death', 'Getting dull from continually being struck with sorrow', 'Being together with living death', and 'Showing courtesy for a good farewell and living well'.

Conclusion

The results of this research will contribute to the development of policy on all the deaths of patients in geriatric hospitals and suggest basic data that need to be applied in real practice and directions to introduce plans for realistic improvements in nursing care of deathbed patients in geriatric hospitals.

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Life Experiences of Korean Patients with Hansen's Disease in Sorok Island Hospital
Ya Ki Yang
J Korean Acad Nurs 2014;44(6):639-648.   Published online December 31, 2014
DOI: https://doi.org/10.4040/jkan.2014.44.6.639
AbstractAbstract PDF
Purpose

The purpose of this study was to identify life experiences of Korean patients with Hansen's disease (leprosy).

Methods

For this study, 5 participants from Sorok Island Hospital were purposively chosen. Data were collected through in-depth individual interviews from June to July 2014. Data analysis method was based on Colaizzi's approach.

Results

The study results showed that experiences of patients with Hansen's disease consisted of 14 themes and six theme clusters: 1) Bad disease approaching as fate; 2) Family breakup and far from the village; 3) New life in Sorok Island Hospital; 4) Treatment of Hansen's disease and disability; 5) Life in the disease community; 6) Comfort and hope of life.

Conclusion

The findings of this study indicate that health care professionals should pay attention to patients with Hansen's disease not only to reduce their physical and psychological suffering, but also to help the community and public culture to reduce the social stigma surrounding this disease and causing suffering for the patients. The results of the present study can help us to have a better understanding of various aspects of patients' lived experiences.

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Life Experiences of Mothers in Parenting Children with Hunter's Syndrome
Sung Ye Kang
J Korean Acad Nurs 2012;42(5):609-621.   Published online October 31, 2012
DOI: https://doi.org/10.4040/jkan.2012.42.5.609
AbstractAbstract PDF
Purpose

The purpose of this study was to explore the experiences of Korean mothers in parenting children with Hunter's syndrome, an X linked recessive genetically inherited disease usually affecting boys.

Methods

Data were collected from 14 mothers having children with Hunter's syndrome, through two focus group interviews and individual in-depth interviews. Qualitative data from the field notes and transcribed notes were analyzed using the grounded theory methodology developed by Strauss & Corbin (1998).

Results

The core category about the process of rearing children with Hunter's syndrome was identified as "navigating in the maze". The process of rearing children with Hunter's syndrome passed through three phases; 'entering an unknown region', 'struggling to escape from the unknown region', 'settling down in the unknown region'.

Conclusion

In this study "navigating in the maze", as the core category deeply showed joys and sorrows of mothers in the process of rearing their children with Hunter's syndrome. In this rearing process they gradually adjusted themselves to their given condition. Also they gained initiatively coping strategies to care for, and protect their children. Therefore health care providers can establish supportive programs in the clinical field to empower these mothers by reflecting their proactive coping strategies.

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The Lived Experience of Stigma among Mentally Ill Persons
Myung Sun Hyun, Young Hee Kim, Hee Sun Kang, Kyoung A Nam
J Korean Acad Nurs 2012;42(2):226-235.   Published online April 30, 2012
DOI: https://doi.org/10.4040/jkan.2012.42.2.226
AbstractAbstract PDF
Purpose

The purpose of this study was to explore the subjective experiences of stigma among mentally ill persons.

Methods

Phenomenological methodology was used for the study. Participants were twelve people with mental illness enrolled at the S community mental health center in GyeongGi-Do. Data were collected via in-depth interviews from August 30 to October 1, 2010 and analyzed using Colaizzi's framework.

Results

Four themes and sixteen formulated meanings were identified for the stigma experiences of participants with mental illness. The four themes were 'Incapable of struggling against unfair treatment', 'Living as an outsider', 'Being constrained by oneself', 'Being in suspense over disclosure of oneself'.

Conclusion

The results from this study underscore the need for an educational and awareness programs to reduce public stigma among the general population and self-stigma among people with mental illness. In addition, efforts are also needed to prioritize mental illness stigma as a major public health issue at the government and community level.

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The Actual Experiences of the Living World among Cancer Patients
Jin-Hyang Yang
Journal of Korean Academy of Nursing 2008;38(1):140-151.   Published online February 28, 2008
DOI: https://doi.org/10.4040/jkan.2008.38.1.140
AbstractAbstract PDF
Purpose

The purpose of this study was to understand the meanings and nature of living in the world among cancer patients. The present study adopted a hermeneutic phenomenological method which was developed by van Manen.

Method

The participants for this study were 5 men and 6 women, who were over the age of 20 with admission or a follow up visit in the medical or surgical department. Data were collected by using in-depth interviews and observations from February to September, 2007. The contents of the interviews were tape-recorded with the consent of the subject.

Result

The essential themes that fit into the context of the 4 existential grounds of body, time, space and other people were: a body that cannot be restored, a body that endures and lives, waiting in uncertainty, a valued calculation for the living day, being in a world of invisible power, reestablishing relationships, and reflection on his or her life.

Conclusion

These findings revealed that living in the world is affected to varying degrees by the cancer. It is important for nurses to identify and take care of disabilities and to support the reorientation in the disintegrated life situation. The result of this study can give nurses some insight into these experiences and help promote empathetic care.

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