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4 "Autistic disorder"
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Original Articles
Development of an Interaction Behaviors Checklist for Early Detection of Autistic Children
Sook Bin Im
Journal of Korean Academy of Nursing 2005;35(1):5-15.   Published online March 28, 2017
DOI: https://doi.org/10.4040/jkan.2005.35.1.5
AbstractAbstract PDF
Purpose

This study was conducted to develop a behavioral checklist to predict an autistic disorder and to identify the earliest detecting time.

Method

One hundred and fifty eight children including normal, autistic, institutionalized normal, and retarded were assessed using critical interaction behavioral markers from literature review. Data was collected by semi-structured mother-child interaction by videotape recording and analyzed by factor analysis, Cronbach α, Kappa, χ2, and Duncan.

Result

Ten behavioral markers were sorted into 2 factors; joint-attention and synchronized behavior. Autistic children were impaired in pretend play, prodeclarative pointing, proimperative pointing, gaze-monitoring, referential looking, showing, joint-attention, rhythmical vocal exchange, and synchronized laughing. The sychronized behavior was also a critical marker to predict the autistic disorder. However, it was difficult to differentiate autistic disorder from mental retardation. In addition, the appropriate detecting time was around 18 months after birth.

Conclusion

This checklist should be behavior markers to predict autistic disorder and could be useful as educational material at children's clinics, parents class, and for caregivers in the health center. In addition, early detection should lead to treatment being started as soon after 18 months of age as possible.

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Construct Validity of the Life Transition Scale for Parents of Children with Autism
Ae Ran Lee, Sun Woo Hong, Se Jin Ju
J Korean Acad Nurs 2014;44(5):563-572.   Published online October 31, 2014
DOI: https://doi.org/10.4040/jkan.2014.44.5.563
AbstractAbstract PDF
Purpose

The study was done to identify the construct validity and reliability of the life transition scale (LTS) for parents who have children with autism.

Methods

Exploratory factor analysis (EFA) and confirmative factor analysis (CFA) were conducted to identify the most adequate measurement model for structural validity. Convergent validity and discriminant validity were also conducted for structural validity. Data were collected from 208 parents through self-reported questionnaires and analyzed with SPSS/WIN 15.0 and AMOS 20.0 version.

Results

A four factor-structure was validated (χ2=541.23, p<.001, GFI=.82, RMSEA=.07, IFI=.89, CFI=.89, PNFI=.73, Q (χ2/df)=2.20) at the 3rd order of EFA and CFA, and factors were named as denying, wandering, despairing, and accepting. Both convergent and determinant validity for LTS were 100%. Cronbach's alphas for the reliability of each structure were .77-.90 and .83 for total structure.

Conclusion

The four structures, 24-item instrument showed satisfactory reliability and validity. LTS has the potential to be appropriate for assessing the transition process of life for parents who have children with autism and provides basic directions for differentiated support and care at each stage.

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Development of a Scale to Measure Life Transition Process in Parents of Children with Autism
Ae Ran Lee, Sun Woo Hong, Se Jin Ju
J Korean Acad Nurs 2012;42(6):861-869.   Published online December 31, 2012
DOI: https://doi.org/10.4040/jkan.2012.42.6.861
AbstractAbstract PDF
Purpose

The purpose of this research was to develop a scale to measure the life transition process of parents of children with autism, against the backdrop of a lack of research on this topic.

Methods

Seventy preliminary items were drawn from previous qualitative research, and content validity was tested by three professors as well as three parents of children with autism. A questionnaire survey was also done between August 2011 and February 2012. Data were collected from 207 parents of children with autism and analyzed using descriptive statistics, item analysis, Cronbach's alpha, Pearson correlation coefficients, and factor analysis with the SPSS Win 15.0 program.

Results

Twenty-nine items were selected to constitute the appropriate measuring scale and categorized into 5 factors explaining 63.2% of the total variance. The 5 factors were named; stages of denial (5 items), wandering (6 items), devotion (7 items), frustration (3 items), and finally acceptance (8 items). Cronbach's alpha for the 29 items was .80.

Conclusion

The results of this study not only suggest assessment criteria for the life transition process of parents who have children with autism but also provide basic directions for program development to provide differentiated support and care at each stage.

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Life Transition of Mothers of Children with Autism
Ae Ran Lee, Sun Woo Hong, Ji Soo Kim, Se Jin Ju
J Korean Acad Nurs 2010;40(6):808-819.   Published online December 31, 2010
DOI: https://doi.org/10.4040/jkan.2010.40.6.808
AbstractAbstract PDF
Purpose

While there are a number of studies on children with disabilities, there have been few studies on mothers of children with autism. The purpose of this study was to explore the process of life transition of mothers who have children with autism.

Methods

From June 2007 to May 2009, the researcher interviewed 15 mothers of children with autism living in Seoul City, Gyeonggi or Chonbuk Provinces, and then analyzed the data gathered using the constant comparative method of grounded theory.

Results

"Living together holding a string of fate" was a core category showing along the continuum of life. The basic social process of life transition encompassed 5 stages: stages of denying, wandering, devoting, mind controlling, and finally accepting. These five stages proceeded in phases, though returned back to the wandering stage occasionally.

Conclusion

This study has opened the door to understanding how mothers of children with autism experienced life transition. The findings suggest that differentiated support and care at each stage should be given and there is the need to develop transition assessment tools for mothers of children with autism.

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