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Construct Validity of the Life Transition Scale for Parents of Children with Autism
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Ae Ran Lee, Sun Woo Hong, Se Jin Ju
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J Korean Acad Nurs 2014;44(5):563-572. Published online October 31, 2014
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DOI: https://doi.org/10.4040/jkan.2014.44.5.563
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Abstract
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Purpose
The study was done to identify the construct validity and reliability of the life transition scale (LTS) for parents who have children with autism.
Methods
Exploratory factor analysis (EFA) and confirmative factor analysis (CFA) were conducted to identify the most adequate measurement model for structural validity. Convergent validity and discriminant validity were also conducted for structural validity. Data were collected from 208 parents through self-reported questionnaires and analyzed with SPSS/WIN 15.0 and AMOS 20.0 version.
Results
A four factor-structure was validated (χ2=541.23, p<.001, GFI=.82, RMSEA=.07, IFI=.89, CFI=.89, PNFI=.73, Q (χ2/df)=2.20) at the 3rd order of EFA and CFA, and factors were named as denying, wandering, despairing, and accepting. Both convergent and determinant validity for LTS were 100%. Cronbach's alphas for the reliability of each structure were .77-.90 and .83 for total structure.
Conclusion
The four structures, 24-item instrument showed satisfactory reliability and validity. LTS has the potential to be appropriate for assessing the transition process of life for parents who have children with autism and provides basic directions for differentiated support and care at each stage.
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Citations
Citations to this article as recorded by 
- An Integrated Review of The Factors Influencing Aggression in Children and Adolescents with Autism Spectrum Disorder
Miran Jung, Yeong Seon Hong Journal of Korean Academy of psychiatric and Mental Health Nursing.2022; 31(2): 125. CrossRef - Children with severe disabilities: adaptation, virtual education, and prospects. Experiences of three Peruvian mothers, COVID-19 context
Pilar Maria Gamarra Choque, Edith Gissela Rivera Arellano, Enaidy Reynosa Navarro, Juan Méndez Vergaray, Yolanda Josefina Huayta-Franco, Melissa Fatima Muñante Toledo Journal of Medicine and Life.2022; 15(1): 43. CrossRef - Validity and Reliability of the Life Transition Scale in Parents of Disabled Children Across the Life Transition Process
Sun Woo Hong, JinShil Kim, Hwal Lan Bang Child Health Nursing Research.2020; 26(3): 338. CrossRef - Life Transition Process Effects on Depressive Symptoms in Parents of Children with Autism Spectrum Disorder
Sun Woo Hong, JinShil Kim, Ae Ran Lee, Jeong Sil Choi Child Health Nursing Research.2018; 24(3): 337. CrossRef - Differences in Life Transition Process of Parents Caring for Children with Autism: Based on the Socio-Demographic Characteristics
Ae Ran Lee, Sun Woo Hong Child Health Nursing Research.2015; 21(4): 331. CrossRef
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Development of a Scale to Measure Life Transition Process in Parents of Children with Autism
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Ae Ran Lee, Sun Woo Hong, Se Jin Ju
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J Korean Acad Nurs 2012;42(6):861-869. Published online December 31, 2012
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DOI: https://doi.org/10.4040/jkan.2012.42.6.861
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Abstract
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Purpose
The purpose of this research was to develop a scale to measure the life transition process of parents of children with autism, against the backdrop of a lack of research on this topic.
Methods
Seventy preliminary items were drawn from previous qualitative research, and content validity was tested by three professors as well as three parents of children with autism. A questionnaire survey was also done between August 2011 and February 2012. Data were collected from 207 parents of children with autism and analyzed using descriptive statistics, item analysis, Cronbach's alpha, Pearson correlation coefficients, and factor analysis with the SPSS Win 15.0 program.
Results
Twenty-nine items were selected to constitute the appropriate measuring scale and categorized into 5 factors explaining 63.2% of the total variance. The 5 factors were named; stages of denial (5 items), wandering (6 items), devotion (7 items), frustration (3 items), and finally acceptance (8 items). Cronbach's alpha for the 29 items was .80.
Conclusion
The results of this study not only suggest assessment criteria for the life transition process of parents who have children with autism but also provide basic directions for program development to provide differentiated support and care at each stage.
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Citations
Citations to this article as recorded by 
- Validity and Reliability of the Life Transition Scale in Parents of Disabled Children Across the Life Transition Process
Sun Woo Hong, JinShil Kim, Hwal Lan Bang Child Health Nursing Research.2020; 26(3): 338. CrossRef - Life Transition Process Effects on Depressive Symptoms in Parents of Children with Autism Spectrum Disorder
Sun Woo Hong, JinShil Kim, Ae Ran Lee, Jeong Sil Choi Child Health Nursing Research.2018; 24(3): 337. CrossRef - Differences in Life Transition Process of Parents Caring for Children with Autism: Based on the Socio-Demographic Characteristics
Ae Ran Lee, Sun Woo Hong Child Health Nursing Research.2015; 21(4): 331. CrossRef - Construct Validity of the Life Transition Scale for Parents of Children with Autism
Ae Ran Lee, Sun Woo Hong, Se Jin Ju Journal of Korean Academy of Nursing.2014; 44(5): 563. CrossRef
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Prerequisite for Korean Advance Directives: From the View of Healthcare Providers
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Shin Mi Kim, Sun Woo Hong, Young Eun, Su Jin Koh
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J Korean Acad Nurs 2012;42(4):486-495. Published online August 31, 2012
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DOI: https://doi.org/10.4040/jkan.2012.42.4.486
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Abstract
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Purpose
The purpose of this study was to explore the main prerequisite for Korean Advance Directives [KAD] to ensure their better use.
Methods
Data were collected from two focus group interviews and individual email responses. Study participants were 5 doctors and 6 nurses. All interview data were transcribed and analyzed using qualitative content analysis.
Results
Three main themes emerged; establishing a philosophy of KAD, protocol to practice KAD, and the KAD document itself. A philosophy is needed to ensure individual needs, consensus to practice AD and identify principle agents. The core of protocol was found to be as follows; 1) process, 2) premise, 3) procedure, 4) contextual preparation, 5) timing, 6) feasibility. Component and feasibility need to be established for the document itself.
Conclusion
For a positive acceptance of KAD in Korean society, a culture sensitive, reality based, and user friendly AD needs to be developed.
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Citations
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- Barriers to Counseling on Advance Directives Based on Counselors’ Experiences: Focus Group Interviews
Yejin Kim, Shin Hye Yoo, Wonho Choi, Min Sun Kim, Hye Yoon Park, Bhumsuk Keam The Korean Journal of Hospice and Palliative Care.2020; 23(3): 126. CrossRef - Development of Advance Directives for Nursing Home Residents
Kyem Ju Lee, Sung Ok Chang Journal of Korean Gerontological Nursing.2019; 21(2): 75. CrossRef - Feasibility of the Korean-Advance Directives Among Community-Dwelling Elderly Persons
Shinmi Kim, Sun Woo Hong, JinShil Kim Holistic Nursing Practice.2017; 31(4): 234. CrossRef - End-of-life care decisions using a Korean advance directive among cancer patient–caregiver dyads
Shinmi Kim, Sujin Koh, Kwonoh Park, Jinshil Kim Palliative and Supportive Care.2017; 15(1): 77. CrossRef - Validation of the Decisional Conflict Scale for Evaluating Advance Care Decision Conflict in Community-dwelling Older Adults
JinShil Kim, Shinmi Kim, Sun Woo Hong, Se-Won Kang, Minjeong An Asian Nursing Research.2017; 11(4): 297. CrossRef - Predictors of Agreement With Writing Advance Directives Among Older Korean Adults
Jaewon Park, Jun-Ah Song Journal of Transcultural Nursing.2016; 27(6): 574. CrossRef - Relationship of social support and decisional conflict to advance directives attitude in Korean older adults: A community‐based cross‐sectional study
JuHee Lee, Dukyoo Jung, MoonKi Choi Japan Journal of Nursing Science.2016; 13(1): 29. CrossRef - The Evaluation of the Korean Advance Directives (K-AD)
KiSook Kim, Shinmi Kim, Sunwoo Hong, JinShil Kim The Korean Journal of Hospice and Palliative Care.2016; 19(2): 109. CrossRef - The Current Status of End-of-Life Care in Korea and Legislation of Well-Dying Act
Ji Eun Lee, Ae Jin Goo, Be Long Cho Journal of the Korean Geriatrics Society.2016; 20(2): 65. CrossRef - Ethical Attitudes according to Education and Clinical Experience of Do-Not-Resuscitate (DNR)
Young Ae Kae, Mi Yeon Lee, Jin Sook Park, Hyo Joo Kim, Tae Youn Jung, Bo Young Jang, Yoon Jeong Kim, Dong-Hoe Koo The Korean Journal of Hospice and Palliative Care.2015; 18(3): 208. CrossRef - Feasibility Evaluation of Korean Advance Directives (K-AD)
Shin Mi Kim, Sun Woo Hong, Jin Shil Kim, Ki Sook Kim The Journal of Korean Academic Society of Nursing Education.2014; 20(4): 639. CrossRef - Factor structure investigation of perceived facilitators and barriers in end‐of‐life care among Korean nurses
JuHee Lee, Mona Choi, So‐sun Kim, Renea Beckstrand Japan Journal of Nursing Science.2014; 11(2): 135. CrossRef - Facilitators and Barriers to Use of Advance Directives in Korea
JinShil Kim, Shinmi Kim, Sunwoo Hong Journal of Hospice & Palliative Nursing.2013; 15(7): 410. CrossRef - Development of a Korean Version of an Advance Directive Model via Cognitive Interview
Shin Mi Kim, Young Sun Hong, Sun Woo Hong, Jin Shil Kim, Ki Sook Kim Korean Journal of Hospice and Palliative Care.2013; 16(1): 20. CrossRef - Development of a Korean Version of an Advance Directive Model via Cognitive Interview
Shin Mi Kim, Young Sun Hong, Sun Woo Hong, Jin Shil Kim, Ki Sook Kim The Korean Journal of Hospice and Palliative Care.2013; 16(1): 20. CrossRef - Knowledge regarding Advance Directives among Community-dwelling Elderly
Sun Woo Hong, Shin Mi Kim The Journal of Korean Academic Society of Nursing Education.2013; 19(3): 330. CrossRef
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Life Transition of Mothers of Children with Autism
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Ae Ran Lee, Sun Woo Hong, Ji Soo Kim, Se Jin Ju
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J Korean Acad Nurs 2010;40(6):808-819. Published online December 31, 2010
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DOI: https://doi.org/10.4040/jkan.2010.40.6.808
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Abstract
PDF
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Purpose
While there are a number of studies on children with disabilities, there have been few studies on mothers of children with autism. The purpose of this study was to explore the process of life transition of mothers who have children with autism.
Methods
From June 2007 to May 2009, the researcher interviewed 15 mothers of children with autism living in Seoul City, Gyeonggi or Chonbuk Provinces, and then analyzed the data gathered using the constant comparative method of grounded theory.
Results
"Living together holding a string of fate" was a core category showing along the continuum of life. The basic social process of life transition encompassed 5 stages: stages of denying, wandering, devoting, mind controlling, and finally accepting. These five stages proceeded in phases, though returned back to the wandering stage occasionally.
Conclusion
This study has opened the door to understanding how mothers of children with autism experienced life transition. The findings suggest that differentiated support and care at each stage should be given and there is the need to develop transition assessment tools for mothers of children with autism.
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Citations
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- The influence of mother’s involvement in raising children with autism on maternal anxiety: the mediating role of parental psychological flexibility
Yuqing Zhang, Jingyi Liu, Maoxin Jiang, Fengqin Jia, Meixin Fang, Dianzhi Liu Clinical Psychologist.2025; : 1. CrossRef - The Experiences of the Life of A Mother with A Developmentally Disabled Child: Parse's Human Becoming Research Method
Min Ji Kim, Kyung Mi Sung Journal of Korean Academy of psychiatric and Mental Health Nursing.2024; 33(2): 181. CrossRef - Validity and Reliability of the Life Transition Scale in Parents of Disabled Children Across the Life Transition Process
Sun Woo Hong, JinShil Kim, Hwal Lan Bang Child Health Nursing Research.2020; 26(3): 338. CrossRef - Life Transition Process Effects on Depressive Symptoms in Parents of Children with Autism Spectrum Disorder
Sun Woo Hong, JinShil Kim, Ae Ran Lee, Jeong Sil Choi Child Health Nursing Research.2018; 24(3): 337. CrossRef - Differences in Life Transition Process of Parents Caring for Children with Autism: Based on the Socio-Demographic Characteristics
Ae Ran Lee, Sun Woo Hong Child Health Nursing Research.2015; 21(4): 331. CrossRef - Construct Validity of the Life Transition Scale for Parents of Children with Autism
Ae Ran Lee, Sun Woo Hong, Se Jin Ju Journal of Korean Academy of Nursing.2014; 44(5): 563. CrossRef - Grounded Theoretical Approach to the Life of Mothers as a Caretaker of Children with a Severe Disability
Chan-Young Jeun, Mia Seo The Journal of the Korea Contents Association.2013; 13(4): 239. CrossRef - Development of a Scale to Measure Life Transition Process in Parents of Children with Autism
Ae Ran Lee, Sun Woo Hong, Se Jin Ju Journal of Korean Academy of Nursing.2012; 42(6): 861. CrossRef
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Family Caregivers' Experiences Utilizing a Nursing Home for Their Elderly Family Members
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Sun Woo Hong, Haeng Mi Son
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Journal of Korean Academy of Nursing 2007;37(5):724-735. Published online March 28, 2017
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DOI: https://doi.org/10.4040/jkan.2007.37.5.724
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Abstract
PDF
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Purpose
The purpose of this study was to explore and describe the experiences of the family caregivers using a nursing home for their elderly family members.
Method
Participants for this study were 1 man and 9 women caregivers. Data was collected through in-depth interviews from October, 2005 to April, 2006 and analyzed using Strauss and Corbin's grounded theory methodology.
Results
“Finding a way to live together” emerged as a core category and it reflected expanding consciousness allowing them to see each other in a more positive view. The basic social process of “finding a way to live together” includes 3 phases: 1) recognizing the problems, 2) finding solutions to the problems, and 3) accepting the changes in their surrounding. Lack of privacy, family troubles, extreme distress, and unavailable caregivers are reflected in the process of recognizing the problems. The process of finding solutions was making a decision, obtaining family agreement, choosing the best nursing home, and enduring the financial burden. Possible outcomes of the last phase include recovering peace of mind and continuing conflict.
Conclusion
Findings from this study offer suggestions for developing a strategy to help not only the elderly but also the family caregivers.
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- Development of the Care Burden Scale for Family of Elderly in Nursing Facilities
Eun Jeong Kim, Kyung Mi Sung Journal of Korean Academy of psychiatric and Mental Health Nursing.2024; 33(1): 80. CrossRef - Useful lessons for the provision of services in long-term care facilities in South Korea: operators’ experiences illuminate the phenomenon of working with the elderly in the field
Young Ran Tak, Hae Young Woo, Lee Han Yi, Ah Rim Kim International Journal of Qualitative Studies on Health and Well-being.2019;[Epub] CrossRef - Hospice care education needs of nursing home staff in South Korea: a cross-sectional study
Mihyun Park, Hye-Ah Yeom, Sr Jinsun Yong BMC Palliative Care.2019;[Epub] CrossRef - Prise en charge d’un proche âgé dépendant à domicile en Corée du Sud : recherche sur les aidantes principales de la génération du baby-boom
Yoonji Oh Enfances, Familles, Générations.2017;[Epub] CrossRef - The Barriers and Solution of Providing Long-term Care Services at Home for the Beneficiaries with Mild Dementia: A Focus Group Interview
Mi Sook Song, Kyung Sook Lim Journal of Korean Public Health Nursing.2016; 30(2): 259. CrossRef - Assessment of Long-Term Care Service Needs in the Baby Boom Generation
Song Yi Han Journal of Korean Academy of Community Health Nursing.2016; 27(1): 21. CrossRef - Feelings of Guilt and Depression in Family Caregivers after Nursing Home Placement of Older Adults
Sun Young You, Young Ran Tak Journal of Korean Gerontological Nursing.2014; 16(3): 276. CrossRef - Grounded Theory Approach on the Adaptation Process in Facility of Long-Term Care Elderly
신용석, Jung-Woo Kim, 김수정 Korean Journal of Social Welfare.2013; 65(3): 155. CrossRef - A Study on the conflict among Siblings Regarding the Long-term Care of Older Parents
Yoo,Hi-Jung Korean Journal of Family Social Work.2013; null(40): 63. CrossRef - A Study of Determinants of Caregivers’ Attitudes towards Utilization of Residential Care in the UK: Focused on Scottish Family Caregiver in Edinburgh City
이현숙 Health and Social Welfare Review.2013; 33(1): 260. CrossRef - Knowledge regarding Advance Directives among Community-dwelling Elderly
Sun Woo Hong, Shin Mi Kim The Journal of Korean Academic Society of Nursing Education.2013; 19(3): 330. CrossRef - Nursing Home Placement: The Process of Decision Making and Adaptation among Adult Children Caregivers of Demented Parents in Korea
Su-Hye Kwon, Young-Sook Tae Asian Nursing Research.2012; 6(4): 143. CrossRef - The Study on commodification of filial piety through Long term care service
홍세영, 서종희 Korean Journal of Gerontological Social Welfare.2012; null(57): 51. CrossRef - Validity and Reliability of the Korean Version of the Observable Indicators of Nursing Home Care Quality Evaluation Instrument
Jia Lee Journal of Korean Academy of Nursing.2008; 38(3): 474. CrossRef
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