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Depression and Caregiving Burden in Families of Patients with Amyotrophic Lateral Sclerosis
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Juyeon Oh, Ji Won An, Ki-Wook Oh, Seong-Il Oh, Jung A Kim, Seung Hyun Kim, Jeong Seop Lee
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J Korean Acad Nurs 2015;45(2):202-210. Published online April 30, 2015
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DOI: https://doi.org/10.4040/jkan.2015.45.2.202
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 Abstract
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Purpose
The purpose of this study was to describe depression, caregiving burden and the correlation of the two variables in the families of patients with amyotrophic lateral sclerosis (ALS) and to clarify factors predicting caregiving burden.
Methods
A descriptive and cross-sectional study was conducted with 139 family members who provided care to patients with ALS. The characteristics of patients and families, Korean-Beck Depression Inventory (K-BDI), Korean version of Zarit Burden Interview (K-ZBI) and Korean-Amyotrophic Lateral Sclerosis Functional Rating Scale - Revised (K-ALSFRS-R) were used as study measures.
Results
The mean score for K-BDI was 19.39 out of 63 suggesting sub-clinical depression and 38.2% of the family members exhibited depression. The mean score for K-ZBI was 66.03 out of 88. The predictors for K-ZBI were K-BDI, age of family member, length of time spent per day in caring, relationship to patient and K-ALSFRS-R.
Conclusion
The results of this study suggest that levels of depression and caregiving burden are high among family members caring for patients with ALS. As depression is associated with caregiving burden, screening and emotional supports should be provided to reduce the burden of care for these family. Support programs to alleviate the care burden are also needed, considering family demographics, time per day in caring giving and K-ALSFRS-R.
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Citations
Citations to this article as recorded by  - Effectiveness of the Mindfulness-Based Interventions for Caregivers of Patients with Amyotrophic Lateral Sclerosis: A Scoping Review
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Journal of Nursology.2025; 28(1): 89. CrossRef - Caring for people living with ALS in Korea: challenges and possible paths forward
Crystal Jing Jing Yeo, Zachary Simmons
Muscle & Nerve.2024; 70(5): 881. CrossRef - The quality of life and depression in primary caregivers of patients with amyotrophic lateral sclerosis is affected by patient-related and culture-specific conditions
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PLOS ONE.2021; 16(7): e0254987. CrossRef - Family Caregiver Suffering in Caring for Patients with Amyotrophic Lateral Sclerosis in Korea
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International Journal of Environmental Research and Public Health.2021; 18(9): 4937. CrossRef - Everyday life experiences of close relatives of people with amyotrophic lateral sclerosis receiving home mechanical ventilation—A qualitative study
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Journal of Clinical Nursing.2020; 29(13-14): 2306. CrossRef - Unmet supportive care needs mediate the relationship between functional status and quality of life in patients with amyotrophic lateral sclerosis
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Dementia and Geriatric Cognitive Disorders.2019; 47(4-6): 323. CrossRef - Caregiving burden and depression in paid caregivers of hospitalized patients: a pilot study in China
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BMC Public Health.2018;[Epub] CrossRef - The amyotrophic lateral sclerosis supportive care needs assessment instrument: Development and psychometric evaluation
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Palliative and Supportive Care.2018; 16(6): 692. CrossRef - Factors Influencing Psychosocial Well-Being in Family Caregivers of People with Amyotrophic Lateral Sclerosis
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Journal of Korean Academy of Nursing.2018; 48(4): 454. CrossRef - Factor analysis of the Zarit Burden Interview in family caregivers of patients with amyotrophic lateral sclerosis
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eNeurologicalSci.2017; 6: 33. CrossRef - Information-seeking Behavior and Information Needs in Patients With Amyotrophic Lateral Sclerosis
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CIN: Computers, Informatics, Nursing.2017; 35(7): 345. CrossRef - Supportive care needs of patients with amyotrophic lateral sclerosis/motor neuron disease and their caregivers: A scoping review
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